Aug 20, 2014 - 2:48 pm
first I really appreciate each if you. Here's my new situation I'd like to know if there is anyone out there going thru this.
3 years ago I had segmented mandilbectomy, fibula free flab to reconstruct jaw bone. All teeth removed and implants put in. Six weeks radiation. no reoccurrence of scc so far. I was told last week that I have ORN. The radiation killed the new jaw bone (made from fibula) as well as more if remaining mandible. My original was sixteen hours long at md Anderson in houston texas. Now I must have same surgery again. They will remove my fibula from my other leg to make another jaw bone. I have to have the trach, feeding tube and whole bit again. My question is has anyone out there had this same thing. im wondering how ill do with fibulas missing from both legs. It's been three years and my leg with missing fibula makes me fall a lot (they say it's good it's just my new normal) . Lol
thanks and anyone willing to share what they went thru with this surgery. M