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harleywiz's picture
harleywiz
Posts: 16
Joined: Aug 2014

Hello im new to the group stage 4 colon cancer with mets to liver nd groin  finshed my first round of chemo in nov 2013 had 2 tumors in my colon and spots in my groin and liver recived  ostomy and and the chemo took care of the spots  had my 3rd pet scan wed found it back in my groin nodes had surgy and they removed 3 nodes waiting for results but allready know what there going to say so dont know whats next more chemo or what still cant belive i have cancer dont feel any diffrent and all my blood work comes back good thought i had a chance till i got a bump in my groin and were back to start all over again

lp1964's picture
lp1964
Posts: 901
Joined: Jun 2013

I don't have any experience with Stage 4 and i am sorry to hear that news. There are many people here that will give you good advise and getting a second opinion doesn't hurt either.

I wish you good luch with the treatment.

Laz

Trubrit's picture
Trubrit
Posts: 1631
Joined: Jan 2013

I am sorry that you have the dreaded Cancer, but now you have it, and have found this forum, you will find much support and information. 

I started my journey Stage III and then after only a few months NED, they found a met in the liver, so up I go to Stage IV. 

There are many here that are 3 & 4 and we all have experience across the board, so we can usually help. Although, at the end of the day, your oncologist is the you  turn to. 

Stay as strong as you can. A positive outlook can take you a long, long way and get you through some real tough times. 

I look forward to getting to know you here on the forum. 

 

Nana b's picture
Nana b
Posts: 3017
Joined: May 2009

Welcome and sorry that you are here.  I'm also Stage 4, diagnosed Nov 2008.  I was in remission for 2.5 years, then a met surfaced on my liver, and now I have two mets on my lungs and two on my chest lymph nodes.   Staying positive, staying strong, and doing all I can to stay healthy As possible. 

We we are here for each other, so any questions ask away. 

 

Raquel 

 

Yolllmbs's picture
Yolllmbs
Posts: 238
Joined: May 2014

It came back. The forum is a great place to meet people in the same situation.  I will add you to the prayer list.  i was given the advice to keep paper and pen handy. Write all your questions down and ask ask ask until you get answers you understand and accept. 

 

Yolanda

Phil64's picture
Phil64
Posts: 499
Joined: Apr 2012

There are all too many people on this forum that know exactly what you are saying. I thank God that I'm feeling great today.  And I try to live in the moement... But it is very challenging knowing that the cancer is there.  Blessings to you.  Praying for strength and faith as we face today and tomorrow. Good luck my friend.

Philip

fatbob2010's picture
fatbob2010
Posts: 440
Joined: May 2012

Glad you found us, sorry to see you here.  This is a great place to ask questions and just vent from time to time.

Hoping for great news following the groin surgery.

Art

harleywiz's picture
harleywiz
Posts: 16
Joined: Aug 2014

well i guess thursday i'll know were we go from here let you know what they want to do

Easyflip's picture
Easyflip
Posts: 177
Joined: May 2013

Sorry to hear the news, I finished chemo November 2013 too, I was stage 3 and had a lymph node light up and then mysteriously disappear and now there's a spot in my liver. This is a marathon and we will be living with cancer in some way or another the rest of our lives. The trick is to not let it rule your life, listen to the docs and be proactive but try to be happy.  Be grateful for the care and support you're receiving, try to live in the moment and a little humor now and then helps. Welcome to the forum and good luck!

Helen321's picture
Helen321
Posts: 878
Joined: May 2012

Hey Harley, Let us know.  Let's just let this be it.  There are quite a few people who are stage IV and in remission on here.

thingy45's picture
thingy45
Posts: 585
Joined: Apr 2011

Good luck in your treatment Harley, take it one day at a time.

harleywiz's picture
harleywiz
Posts: 16
Joined: Aug 2014

doc says removed 3 lymp nodes two with cancer one with out same cancer i have so at least it not somthing new cancer doc on monday guess he will let me know what he wants to do

keep ya updated later

Trubrit's picture
Trubrit
Posts: 1631
Joined: Jan 2013

and nice to see you on your feet and not in the hospital bed. Here's hoping you stay on your feet and out of the hospital. 

Hope they are able to take care of your lymph nodes in good order and have you back to being NED. 

Thinking of you!

SUE/TRU

harleywiz's picture
harleywiz
Posts: 16
Joined: Aug 2014

it seems when i go in to the discusion it will now only let me reply to some one in the post and not let me post in the dicussion would you know why thanks

Lovekitties's picture
Lovekitties
Posts: 2990
Joined: Jan 2010

If you want to edit/add to what you originally posted you can.

Go to that post at the top of the string of replies.

Just over top of that box, in blue I believe, you will see the word edit.  Click here and it will put that post in the same type of window you first wrote it in.  You can also change the title.

When done with your changes, go to the bottom and click cubmit.

 

Marie who loves kitties

Trubrit's picture
Trubrit
Posts: 1631
Joined: Jan 2013

And if you want to edit a post you added to a thread, you can only do it if that post has not been replied to. Like now, you can't edit your post asking this question. But if nobody has answered, then you will see an edit button onthe bottom right if your post.  

Your initial post you can edit, as said above. You can even edit the subject line, which I find very helpful. 

Hope this helps. 

harleywiz's picture
harleywiz
Posts: 16
Joined: Aug 2014

so he seen the report 3 nodes removed 2 winth cancer i asked whats next  and he said one of two things 1. can start chemo or @. wait 3 months and do pet scan

he suggest the wait 3 months becuse cancer nodes were cut out instead of suffering throught chemo again any thoughts on what way to go? thanks in advance

Easyflip's picture
Easyflip
Posts: 177
Joined: May 2013

On the chemo no chemo question. Personally if the doc is giving you the option I would go no chemo but do everything I could to boost my immune system. Check out the book radical remission, learn about supplements, exercise, get your mind right, maybe cannabis oil. Follow your gut. I worry that chemo destroys your immune system, the one thing you really need to fight off cancer. Just my opinion- not telling you what to do.

Good Luck!

Helen321's picture
Helen321
Posts: 878
Joined: May 2012

I opted for chemo and a healthier lifestyle.  I haven't given up sugar but I no longer eat junk.  I've gone all organic.  You have to go with your gut and what feels right for you.  Also I never heard of the PET scan limitation.  That seems harsh considering so many people with illnesses need them.  I could see limiting to 3 scans a year but not in a lifetime.  My doctor won't scan me often, she says the stuff you have to drink alone will kill you.  

tanstaafl's picture
tanstaafl
Posts: 1006
Joined: Oct 2010

For metastatic lymph nodes, my stage IV wife has been using daily oral chemo + cimetidine + PSK + high dose vitamin D + a lot of complementary stuff similar to Life Extension Foundation's recommendations, for over 4 years.   She can still play the piano!  More doctors thought she'd be playing a golden harp several years ago.  Click "tanstaafl" for more with links.

harleywiz's picture
harleywiz
Posts: 16
Joined: Aug 2014

so i decided to hold on 2nd round of chemo and wait for my pet scan in nov but i found out thats theres some no helth law only 3 pet scans in your life time this will be my 4th i dont know if it will be approved or not any thoughts also i stoped useing suger best i can does any one know if splenda is a good opition also i see alot of people useing honey but from what i can tell thats still sugar in your body 

Trubrit's picture
Trubrit
Posts: 1631
Joined: Jan 2013

I hope that information is incorrect. PET scans will definitely be a part of my future and I've already had two. 

 

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