Jul 18, 2014 - 12:36 am
Please can anyone tell me what their experience with this is? I also have possibly adenocarinoma endocervical which im assuming is cervical cancer? I'm reading all of this from my internet health portal from the DRs office from a Pap smear & biopsy back in June. I need answers. I was all set to have a radical hysterectomy this past Monday when my GYN Oncologist came in right before they were going to take me to surgery to tell me he was throwing me a curve ball & that instead he was going to do a coninization of my uterus to take more biopsies and probably more of my cervix. I was put under general anesthesia and they put in stitches and now I'm recovering at home awaiting pathology reports. SOoooo, today was the day I was supposed to get results when my GYN/ONCs office called to say the DR wanted to send the pathology results for a second opinion at the oncologist pathology DRs at Washington University (STL) & now this will tack on 6 more days of waiting. I originally was supposed to have a radical hyst with the whole shebang taken out then they were to stage the cancer, then this curve ball was thrown at me. Anyone have similar experience? My CT scan (2 weeks ago) of pelvic & abdomen showed right lower abdominal quadrant mass then I had a PET scan last week that was negative. My DR said he thinks it was just fibroid that showed up on CT. But, he doesn't say much. Then the nurse inadvertently asked me out of the blue if I had a history of bladder CA (that was while she was telling me the results of the PET scan)! What the heck? Anyone with any thoughts? My GYN/ONC did not give me a CA 125 blood test and looks like my other blood work is normal. CT of chest was normal. The only pain I was having that brought me into a DRs office a few months ago was right shoulder, scapular & lung pain. Those X-rays back then came back normal. Sorry for my rant but I'm so confused. Thank you for taking the time to read my story. I will know more next Tues July 22nd. This might all be nothing????!!! Fiibroids? I have had Hx of HPV, never cleared. I have had sores in the vulva area for a couple of years that come and go that seem like pimples but really sore and itchy. Was told a few years ago that my STD tests just showed HPV but my regular GYN at that time didn't seem too concerned. But I've been having itchiness and sores off & on for a while now and just contributes it to spinning and running with spandex on. I'm 49, married with no children.