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Uterine carcinosarcoma, MMMT, survivors ...I would like to from you

nolib1966's picture
nolib1966
Posts: 12
Joined: Jun 2014
 

I am 66 years old.   In September of 2013 I started bleeding, after not having a period since 1998.  I went to my famiIy doctor and she did a pap test.  The test came back negetive but she wanted a biopsy done by a gynecologist.  The biopsy came back negetive, but the gynecologist wanted to do a D&C because I was still bleeding.

The D&C, done in October, showed uterine carcinosarcoma.  She referred me to a gynecologist oncologist.

The gynecologist oncologist did a hysterectomy,plus removed ovaries,24 lymph nodes,cervix, and the fallopian tubes. That was done the week before Christmas. The biopsy  and a spot result was a tumor between the inner and outter wall of the uterus and a spot within the right ovary.  I had 6 chemo treatments(Taxol-carboplatin).  They were 21 days apart. I was to follow it by 3 radiation treatments 1 week apart.  The chemo treatments went fine, only redisule nperipheral neuropathy(numbness and tingling of the hands and feet).  My doctor said to go home and give my body time to recover from the chemo before the raditiation treatments would start.

I met with the raditiation oncologist on June 3 and she said a PET scan would need to be done to know where to aim the rays.   The PET scan was done 2 days later with the doctor getting the results in time for my appointment later that day.

She said I have good news and bad news.  The good news is you do not need radition treatments at this time.  The bad news is the PET scan showed both left& right lung has innumerble pulmonary nodules, the liver has two spots, and the peritoneum(skin covering the internal organs) has two spots.  With spots of cancer located so far apart radition at this time is not an option.

I met my new oncologist last week and found out they will do further testing on the specimen taken at my hysterectomy.  It will be a few weeks before I know my next step in the treatment of my cancer.  

The doctor thought the advanced testing will give a better chance of getting the right chemo drug or drugs to stop this from growing.  The chemo drugs and treatment schedule I had usually works.  I'm special..........I don't want to be THAT special!

Has anyone online went through this recurrance/on-going cancer?   It was a shock to hear the caner had not only came back, but also went beyound the pelvis area to the lungs and liver.

I know frame of mind has a lot to do with healing,so I am exercising,doing my normal activities with friends and family, reading the inspirational books, and saying thank you to people who tell me I am in their prayers.

Please answer

JS

Judemo
Posts: 101
Joined: Jun 2014

I think it was just missed somehow, but sorry from all of us here at this discussion board :).  How are you doing J.S?  You were the only person at first who responded to my very first message back in June, then a few other wonderful ladies responded after you but I know how it feels when you post something and really want someone to reply and don't get a response.  I would then set off on a internet search which forced me to educate myself on all these below-the-belt female cancers.  Sometimes I think people just get busy and don't check the board (like myself sometimes). I think others have been going through so much pain and suffering with treatment or recovery that they probably get tired of talking about cancer which I completely understand, God love these people.  Regardless, I wanted to check in with you to see how your doing.  What's new? How are you feeling?

It happened to Me's picture
It happened to Me
Posts: 163
Joined: Apr 2014

I don't remember seeing this one.  I have read that the carcinsarcoma is more aggressive than carcinoma.   I've read in other posts where women have had recurrences shortly after their chemo..  I am 5 months NED and will have my next 3 month check-up on the 11th.    I'm sure there will be women on this board that will be able to help.  Staying strong and don't give up on this board.

Jeanette

nolib1966's picture
nolib1966
Posts: 12
Joined: Jun 2014

When I signed on in June I would check often to see if there was any comments to my entry.  After a few weeks I stopped checking.  Thank you for the private email.  I did read it last week but was in the middle of doctor's appointments.

 THANK YOU ALL FOR YOUR WELL WISHES, SUPPORT, AND PRAYERS

Here's where I am:  July 18 I went to my family doctor because i had the stomach flu.  She felt a mass in my adominal area and ordered a Ct scan, it showed the 5.1cm x 4.0cm was now 15 x 8.4cm.  The other adominal tumor went fron 2.4 cm x 3.2 went to 6.1 x 5.7 cm.  The spots on my liver had doubled in size and the lungs had numerous metastases with 3cm being the largest.  Bare in mind this is only a 6 week period.  MyGP advised me to call my radiation doctor and schedule an appointment.  I did.

My chemo doctor got back the report we had been waiting for to tell us which chemo drug would work for me.  There were 9 different ones( none FDA approved) for my cancer. They were all in pill form.  The insurance will not cover unapproved treatment.

The radiation doctor thought she could shrink the two worrisome tumors in the adominal area and said it could be done at the same time I was taking the chemo pill.  All sounded great except the price on the pill is $8100 a month.  

I am trying to get a hold of a foundation who might be able to help me.

Inbetween I thought maybe I could get operated on to remove the 2 largest tumors and went to see two obgyn/onc.  The both said no.  They both advised against radiation treatment at this time.  The first said he thought cisplatin and ifosfamide for chemo and the second adriamycin..  

After gettin a second and third opinion I now know I want to follow my chemo doctor's advice with the chemo pill that tested good on my speicman and radiation treatments.  

I am hoping to start the radiation tratments this week and the pills when we can get them. 

I don't have a med group to direct me so I am on my own.  I do have a husband who is behind me 150% and family and friends who are there when I want to talk.  I still go to my games(bingo, bunco,  and cards) 5 or 6 times a week.  It helps to get out of the house and see people.  I still ride my stationary bike 1 hour and get 2 oz fresh wheatgrass juice each morning.  I will continue to do it as long as I can.  I don't know what effects I will feel from the chemo or radiation treatments.

 

Ro10's picture
Ro10
Posts: 1574
Joined: Jan 2009

I am sorry that your abd tumor is growing.  What a difficult decision you have to make when you get different opinions from your doctors.  Good luck with what you decide.  Your pills sound very expensive out of pocket.  I hope some foundTion comes forward to help you.  I hope your radiation goes well this week and you have few side effects.  I hope it shrinks your tumor.  I am glad you have a supportive husband.  I know how important that is.  My husband has been to every appointment, test, lab, and treatment with me.  I an glad you are finding diversions for you to get out and not think about cancer all the time.  Wishing the best for you.  In peace and caring.

ConnieSW's picture
ConnieSW
Posts: 710
Joined: Jun 2012

Good luck with the foundation.  I'm pulling for you.  You sound like a very strong woman.

Abbycat2's picture
Abbycat2
Posts: 271
Joined: Feb 2014

I am sorry to hear  about what you have endured recently, but am hopeful that the radiation will shrink the tumors in your abdomen and that you will be able to obtain the chemo in pill form.  It is so difficult to make sense of everything when dealing with cancer.  We all hope that the decisions we make are the correct ones and will lead to good outcomes.  I am uncertain how I missed your original post, but I don't recall seeing it.  I wish you the very best with your treatment.

Warm Wishes,

Cathy

 

ConnieSW's picture
ConnieSW
Posts: 710
Joined: Jun 2012

I, too, missed this somehow.  The writer hasn't been on the board for a month.  I do hope she comes back and gives us another chance.

Ro10's picture
Ro10
Posts: 1574
Joined: Jan 2009

I do not have MMMT, but have UPSC which is also an aggressive cancer.  I am sorry to hear that you have so many nodules in your lungs and liver.  I hope with the extra testing they can find the right chemo combination for you.  I have dealt with two recurrences and am working on a third recurrence.  Luckily my recurrences have stayed in the lymph nodes.  There are many chemo choices and I hope you start a new one soon.  I hope you continue with your positive attitude and enjoy your family and friends.  You remain in my thoughts and prayers.  In peace and caring.

lmd419
Posts: 7
Joined: May 2014

Hi JS, 

My mom has Uterine Carcinosarcoma.  She was diagnosed in November of 2013, had a full hysterectomy soon after.  She began Carboplatin/Taxol chemo in January 2014.  Her next CT Scan showed a golf ball size growth at the base of her spine.  The doctor planned to operate to remove it but scheduled a PET Scan first.  The PET Scan showed small nodules on both of her lungs, so instead of surgery, he immediately put her on a different chemo that consisted of Gemzar/Avastin/Taxotere.  Like you, her doctor said radiation was not an option due to the mulitple locations.

She had another CT Scan in early July that showed very little growth - however, there was still growth.  He basically gave us the option of continuting on the same chemo for another 9 weeks or to try a new chemo.  We want to be as agressive as we can with this, so we decided to try the new chemo, which is Ifosfamide/Taxol.  She has had the most side effects so far with this last drug, but overall she has handled all three very well.

I have researched all of the meds she has tried/is trying and there are some great success stories with all of them.  This cancer is tricky and everyone is different...what works for one may not work for another. 

I do hope you come back to read the comments!!  Best wishes!

nolib1966's picture
nolib1966
Posts: 12
Joined: Jun 2014

I am posting for my sister JS.

As of today September 14, she is back home after almost a month away.  She was hospitalized with a colon blockage on Aug 17 and was there until Aug 30 at which time we was moved to a rehab center until September 10.  I am very happy to say the comforts of being home are immeasurable.

While in the hospital the chemo pill started and the radiation was completed.  There will be no scan for a few weeks to let everything start their job.  The radiation is working somewhat as she can use the bathroom now. No real adverse reactions to chemo except slight neuropathy and of course the dreaded nausea.

With extended family coming from all over the United States to assist where needed and give my super star brother-in-law a little relief we are all doing what we can to get through this. Her sons are always near by for anything our special person needs, wants and desires. So far my daughter, our brother and myself have come from Washington State, another sister from Michigan and then Brother and sister-in-law from Alaska will be here shortly after I leave. 

Her friends are so wonderful from bringing jello to cards, visits and phone calls.  They are just as important if not more so in some ways then what family is.  Not to diminish one or the other but they are blessed with being in closer proximity to help and keep her mind busy and keeping up spirits for both of them, sister and brother-in-law.

I can not thank this blog enough.  This gives my sister some place to go where she knows she is not alone.  I tell her that alot but seeing your posts I think makes it more real.  While I am not expeienceing  first hand your illness, I too am going through this along with all loved ones who are praying, cooking, care giving and just plain loving all of you in this horrible disease.

Please remeber none of you are alone. the fight goes on.  One battle at a time, then one day maybe the war will be won.

Thank you all for your good thought prayers and know they are all coming back to you as well.

JS siser

It happened to Me's picture
It happened to Me
Posts: 163
Joined: Apr 2014

That is great that JS is back home and has so much support.  Support (family and friends) is HUGE in us getting better.  That's even documented in a book I'm reading about a doctor who was diagnosed with brain cancer.  It's called "Anti Cancer  A New Way of Live" by David Servan-Schreiber.   While I don't agree with everything he has said thus far, I do really like what he has to say about how important family and friends and attitude is in getting better.  That helps boost the immune system too. 

I still feel bad that we missed JS's first post.  That gave us all a lesson in being diligent to respond when someone new posts.   Do as much research as you can for your sister on foods to eat, lifestyle changes, make sure she laughs alot and makes memories even though she has the dreaded C word.  It makes life and all the after effects of surgery, radiation, chemo. etc tolerable.

Tell JS we said "Hello" and to keep fighting like a girl.   Take care and thank your family members for supporting your sister.

Jeanette

Kaleena's picture
Kaleena
Posts: 1335
Joined: Nov 2009

Dear JS Sister

thank you for giving us an update on JS.    I am glad that she has a lot of loving support.   Please know that I send my prayers and comfort to you, JS, and family and friends.   I am sorry JS had to be hospitalized for a blockage but glad that she is back home.   Please tell JS she is thought of and hope that she can reply soon when she is up to it.

hugs to all

Kathy

ps.  How are you doing JS sister ?   It is not easy staying strong for your sister.   I am sending you a personal prayer for continued strength .

Ro10's picture
Ro10
Posts: 1574
Joined: Jan 2009

Thank you for the update.  So sorry to hear JS had to be hospitalized, but glad she is at home.  Family and friends are so important.  Glad JS has plenty of support from both family and friends.  Hoping the pill and radiation are both helping to reduce the tumors.  Wishing all of you peace and comfort, and the strength to carry on.  In peace and caring.

nolib1966's picture
nolib1966
Posts: 12
Joined: Jun 2014

Well this is JS sister once again.

 Great news for the day.  She has completed all thearpys at home, no more physical or occupational therapys needed at this time.  She has been out in her yard a little and we even cooked a little dinner together the other night.  Her appetite is still in tact and she is keeping her food down now if we can just get it out the other end we'll be good.  No home nursing neccessary and good spirits abound. The circumference of her abdomin has gone from 104 cm to 94.  So hopefully the tumors are on the run.  She was not able to set up when I first got here and now she sets up and plays a game or two. She has had a bout with canker sores in her mouth but maybe we have that under control as well.

Her chemo pills were supposed to be 4 a day we started at 2 a day, now we are at 3 a day.  The side effects are not as bad as the infusions would have been. The chemo is called Voltrin. it like my sister said is not approved for this type of cancer YET, but God willing and the creek don't rise it'll work in this case.

I again would like to say thank you for this blog. I am going home to Seattle area today, but now that I know this exsits I will be able to read all your entries. My prayers are with all of you and your supporters in this war.  The battles are many and we can only win 1 at a time so choose which battle is the most important today and conquer it. If you are having disagreements with another person or are haboring ill feelings about anything, cut that dog loose, it don't hunt!!! You need your undivided attention on YOUR battle and the rest will take care of itself. and if it doesn't who cares? 

Again thank you all for being here for and with my sister and fighting the fight.  YOU ARE NOT ALONE.  Repeat this daily and beleive it.  YOU ARE NOT ALONE.

JS Sister

 

Kaleena's picture
Kaleena
Posts: 1335
Joined: Nov 2009

Dear JS Sister:

Thanks for sharing the news that your sister is doing better.   It is good that she is starting to get up and move a bit and even go outside.   We will keep the prayers coming!   My best to you, JS and your families.

Kathy

Judemo
Posts: 101
Joined: Jun 2014

So good to hear updates!  I'm so happy to hear JS is in her own home living her life.  We are all pulling for you JS!  Love your picture and you look like a true sweetheart! you are in all of our hearts, thoughts, & Prayers.

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 746
Joined: Mar 2013

SO happy to hear this!!!  "Sister", know that there is NOTHING like the love and support of your family and friends at a time like this.  I CANNOT imagine what my twin sister was thinking but I also know that is who I wanted to come and be with me for after my surgery.  The journey's are different, but they are both very real. 

 

Sisters three's picture
Sisters three
Posts: 159
Joined: Nov 2012

Garden therapy is the best, when you throw In a little bird watching your troubles seem to fly off with them. She is very lucky to have so many family members supporting her! Take care!

 

Lisa

 

 

krayne
Posts: 1
Joined: Sep 2014

Please keep us posted!!

ConnieSW's picture
ConnieSW
Posts: 710
Joined: Jun 2012

I've been hoping things continue to improve.

 

greetings, Krayne.

Double Whammy's picture
Double Whammy
Posts: 2449
Joined: Jun 2010

Sending out my support and love for continued improvement.

Suzanne

 

nolib1966's picture
nolib1966
Posts: 12
Joined: Jun 2014

it is with heavy heart I ask all of you for your prayers for my sister she's taken a turn for the worse. the doctors have told us that they can do no more for her. there is leakage from tumors and that infection has eaten a hole in the colon.  they cannot find an antibiotic to fight it.  she was admitted to the hospital on Tuesday today is Wednesday night West Coast time 945 and they have said that they can do no more for her.

I know we are not alone and I thank you for that please keep her in your prayers thank you. I will keep you all informed as to what happens, please remember none of you are alone.  I know I say this often but I never thought I'd be saying it for myself.  As long as I say it maybe my 1 remaining sister will not leave me .

Thank you for letting me say to you what I can't say out loud.  If I were to say it out loud that would make it real. 

 

JS BABY SISTER

 

 

Ardnasnit's picture
Ardnasnit
Posts: 16
Joined: Jul 2014

JS Baby Sister,

I will be praying for both You and your sister.

Sandra

ConnieSW's picture
ConnieSW
Posts: 710
Joined: Jun 2012

I still feel bad because we let JS down initially.  Will you please share with her that we are keeping  her ( and you, too) in our hearts.  I hope they are keeping her comfortable  so the rest of the time you have together can be cherished.  Be strong. Come talk to us anytime.  Someone is almost always here.

Ro10's picture
Ro10
Posts: 1574
Joined: Jan 2009

i am so sorry to read about your sister taking a turn for the worse.  I pray for peace and comfort for both of you.  Feel free to come back and vent any time.

It happened to Me's picture
It happened to Me
Posts: 163
Joined: Apr 2014

My heart breaks for you and your family.  I will keep you in my prayers.  That's gotta be tough and unbearable at times.  I, too, pray that they keep her comfortable or try something maybe it a long shot.  I'll pray for a miracle.  I hope that time is spent well.  It's hard to put into words how to tell someone how you feel in times like these.  Thank you for trusting your sorrow and inner most thoughts with us.

Jeanette

nolib1966's picture
nolib1966
Posts: 12
Joined: Jun 2014

We are all being taken care of in Escondido, CA. 2 of our brothers,1 sister in law and I joined my super star brother in law and another sister in law yesterday.   We are from Alaska and Washington.  My strength is leaving to drive down today from home with at least one of my daughters. If not 2.

My nephews are such strong loving men. They are in their 40s but the love they have for their mother reeks of the 3yr olds that would go crying to her when they would be hurt. The pain they are feeling, we are all feeling, is that life as we know it , will never be the same. And they feel so sad and mad that they can't make this hurt go away for her. I don't know how to help them through this, I don't know if I'm strong enough, or if I will be able to find the words to make this easier for them to get through this utter catastrophe. 

Our family suffered a huge blow in December when we lost another sister to this God awful cancer family.  She passed from complications of lung cancer. And now this. Our family started out with 8 siblings. 4 boys, 4 girls. We have lost 2 of the 4 girls and I am hanging on to the hope that the 1 sister we have left will wake up just long enough to say she knows we're here and she knows she is not alone. I am so afraid she doesn't know we are here still fighting the fight as best we can from the side lines. I'm so afraid she thinks she's alone. I guess I'm just so afraid. 

I must apologize to you all. I know this blog is to pass knowledge onto the next generation of fighters we have coming, and believe you me, there will be more, I just want them and you all to know you are not alone. The fight will go on, my prayer is that some of the research monies that are given, go to this type of cancer.  Carcinosarcoma, this is one Bad Mamma Jamma. 1 in100,000 get this type. And in less than a year, it has taken a very active healthy woman, who by the way, never smoked, or drank in excess, was by all accounts over the top happy and healthy and this S O B has drained her of everything. Her laugh, her wisdom, her gardening her entire life. The one thing this Devil cannot take is her spirit. This I will not and can not allow. When her individual battles are over the fight will continue until 1 day this war will be won! !!

Thank you all for your time, strength, your well wishes and most of all for fighting the fight. When we are all born we know that no one gets out of this alive. I just don't have the words to express my most sincerest respect for the fighters and the cheerleaders. I don't understand why this happens to certain people but as long as you know, now and always YOU ARE NOT ALONE. Just when you think your alone, turn around and look at your footprints.  As you started this journey. Their were 2 sets.  Yours and His. In the end He will carry you, if you let him. Please let Him.

My family would like to thank you for accepting our sister into this super elite group of understanding, loving people. It helps to know none of us are alone. 

JS Sister

It happened to Me's picture
It happened to Me
Posts: 163
Joined: Apr 2014

We Peach Sisters stick together and we care about each other.  This board isn't only for knowledge, it's for heartfelt sadness or gladness, whatever the case may be.  I, too, was full of life, healthy etc., when I was diagnosed with UPSC (another rare Uterine cancer).  I am sure that JS knows that family is with her.  As close as you guys are, SHE KNOWS she's not alone.  I pray for all of you.  I can't imagine losing my mother or my sister but understand losing loved one's (aunt and friend) to cancer.  There's a unique connection between mother and son, I can see it with my mother and brother.  I think you are truly amazing, that you have such a close knit family.  You are going to be ok JS Sister, when you need to be strong, you will.  When you need to say something, the words will come out.  I see the faith in you and know God will keep you safe in His arms through this and He will carry your sister with the love of a Father carrying his daughter.  We on earth will suffer a terrible loss, but JS will have no more pain and that is a blessing.  You are a blessing JS sister.  Keep posting.  Come here whenever you need a shoulder or a safe place to vent.  You have alot to offer this group as well as this group helping you.  Please keep connected.

Jeanette

Ro10's picture
Ro10
Posts: 1574
Joined: Jan 2009

i continue to pray for you, your sister and your family.  I pray for peace and comfort for all of you.  I know this is a difficult time for all of you.  continue to talk to JS.  They say hearing is the last to go, so even though JS may not respond to you, she can hear you.  What a wonderful family you have.  JS knows this, too.  

You do not need  to apologize for sharing your despair and feelings you have.  They are normal feelings when some one you love is suffering.  I hope the hospital is keeping JS comfortable.   Come back anytime and vent your frustrations.   We have no answers as to why some of got Cancer even if we tried to live a healthy life.  But "it is what it is".  I am just so sorry JS is losing her battle.  

I pray for continued strength for you andyourfamily to be with JS at this time.  It will be a comfort for her.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 746
Joined: Mar 2013

JS Sister. 

May God hold you and your family in His loving hands as you travel this horrible journey.  As a warrior or loved one, you are always welcome here to vent, laugh, and too often, cry.  You and your family are in peoples thoughts and prayers and will not be forgotten. 

It may not seem as though your sister doens't know you are there, but I believe she does.  When you are surrounded by love you know it, and it gives your the peace you need at any hour.

God bless you all.

ConnieSW's picture
ConnieSW
Posts: 710
Joined: Jun 2012

I keep thinking about you as you maintain your vigil.  As a nurse, it was always important to me to try to be there when a patient died.  It  seemed that since there was someone there to mark our coming into this life, hopefully, someone would note our leaving.  I wish you comfort and peace.

nolib1966's picture
nolib1966
Posts: 12
Joined: Jun 2014

I have thought long and hard to find the words. I usually have no problem with that ,however they just won't come. If I am honest in my logical mind, I would have to say I'm so happy the pain for my sister is gone, she is at peace, she is with our other sister who left just 10 short months ago. But the truth is I'm not logical right now. I am completely and utterly heart broken. Her spirit was released and relieved on Saturday October 4,2014. My nephews and Super Star Brother in law, well the strength and love they have shown is totally incredibly. We were blessed to have 3 of our 5 siblings here with her,2 of our brothers and myself. I was talking with her, the last words she heard were the words I always said "Connie, I love you, your not alone. "  Then 2 breaths later she was released on her journey to a better place. 

I would again like to thank this forum for the opportunity to share, get the word out about Volitrin, I hope if given sooner could have been the answer for her. So any of you peach sisters out there talk with your chemo doctor to see if it could be right for you. 

Well ladies I will close with my usual words.  You are not alone. Keep fighting the fight and win each battle one day at a time, then one day this war will be won! 

You are not alone, repeat this several times a day. Then believe it. You are not alone. 

JS BABY SISTER

It happened to Me's picture
It happened to Me
Posts: 163
Joined: Apr 2014

JS Baby Sister, I am SO sorry for your loss.  I can't even imagine what it would feel like to lose not only one sister 10 months ago, but another one on Saturday.  I have been praying for you and JS and the family.  I am so thankful though that so many were present.  I am sure she heard and she already knew that she is loved.   I am so glad that you could share your heart here on this board.  I know there are so many emotions going on inside you.  I lost my aunt in April and a good friend in January and I am still in the grieving mode at times.  This might sound weird, but one of the most precious things I've ever witnessed were the passing of family and friends, who were ushered into glory.  The peacefulness on their face and loved one's all around and knowing that they no loner had any pain or limitations.  I hope at some point, you and your family will cherish that moment.

Please let her husband and boys know that they are being prayed for and that we share in their sorrow.  Since I have joined this board, we have lost a couple members and I cry when that happens.  We love our sisters.

Please JS Baby Sister to feel free to come back to this board.  To just check in, to cry, to share your heart.  We are here and you are not alone.

Jeanette

Ro10's picture
Ro10
Posts: 1574
Joined: Jan 2009

Sending my deepest sympathy.  I too have experienced the loss of  two siblingS.   It is not easy, but I took comfort in knowing I was there for them at the end.  They too knew they were lived and not alone.  Sending peace and comfort to you and your family.  Nobody   especter you to be logical.  We totally understand your broken heart.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 746
Joined: Mar 2013

Baby sister, I am so sorry.  I am sitting here crying for you and your family.  I am so glad you were with her and she will be with you always.  Hopefully you will find a wonderful way to celebrate your sister and all that she was.

May God walk along side you and your family at this time and may you have some peace.

 

Kaleena's picture
Kaleena
Posts: 1335
Joined: Nov 2009

Dear JS Baby Sister:

As hard as it must be, thank you for sharing JS's journey with us.   I am saying a special prayer for "Connie" and also for you and the rest of your family to help get you through this.   Please stop in from time to time to let us know how you are doing.

I am deeply sadden for your loss.  Sending comforting hugs to you.

Kathy

nolib1966's picture
nolib1966
Posts: 12
Joined: Jun 2014

While the kitchen seems a bit empty with 7 people in it, we are trying to take one day at a time. When that appears to be too much we try one hour and I'm sure you are all aware of the rest of that saying.

I am quite humbled at the response we have gotten from this forum. You are all so encouraging while fighting your own individual fights. We pray for you, we pray you stay strong, we pray for your cheerleaders, we pray for doctors to find the RIGHT treatment for you, together we pray.  Remember always you are loved, respected and most of all you are not alone. 

Please accept my offer as a cheerleader for all of you. I feel maybe if some of you might be a little light on backers you should have at least one person to remind you that YOU ARE NOT ALONE. And if this forum could vote to have a cheerleader I am throwing my hat in the ring. I have experience, I don't need to be in the same room, city or state. I try to be a good at listening, praying and just being around for virtual hugs.

Even if this resume is rejected, my family and I are so appreciative of your acceptance, encouragement and never ending prayers and support. 

Thank you all for this opportunity to meet all you peach sisters, while we are not blood, we are sisters in the fight. 

JS BABY SISTER

 

It happened to Me's picture
It happened to Me
Posts: 163
Joined: Apr 2014

I, for one, would love for you to be a cheerleader.  You are apart of this sisterhood.  I don't think we can have enough cheerleaders.  Thank you for sharing with us.  However, we want you to come back to us when you need a cheerleader or a shoulder to cry on in the loss of Connie.  This board is great for virtual hugs.

Jeanette

debrajo's picture
debrajo
Posts: 815
Joined: Sep 2011

I second what Jeanette said!  You ARE hired!  We need a cheer leader at times , even if it's to tell us to quit whining and start fighting!  Welcome on board and feel free to jump in at any time and kick  tail if need be!  Best, Debrajo

JS Sister's picture
JS Sister
Posts: 4
Joined: Oct 2014

It has taken me a minute to try to adjust to the changes in my life. One day at a time, slowly I think Im getting back to normal, what ever that is. Then all of a sudden I'm not. Believe it or not, this discussion board helps me and I hope it helps you too.

Now, back to the subject at hand.  Who needs what? Virtual hugs all around,hey you over there in the corner, get over here, get this hug. You are not alone! !! I promise, even in the darkest of times, even if you think you are the only one who has felt this bad, sad, sick, alone or just lonely with a room full of people. Trust me, this is the place to be. If you're new, after your first blog, you are a peach sister. We can help you, but you need to make the first move.  Once you're ready and only then, can the warmth of this room help you. 

I know some people monitor for a while before blogging. My sister did, but once she/we started it got easier. We can't tell you when it'll be right for you but know when it is you'll be welcomed with open arms, advice and loving companionship.

I also promise, from that point on, you will NOT BE ALONE.  This awful thing called cancer, sometimes plays with your mind as well as your body. So when you think your alone, and no one cares, come home to this site. You will find here, the same battles you are fighting may have been won by someone who is already here to offer what worked for them. It may or may not work for you but until you try you won't know. Or maybe you can help someone else with your experience. 

Please remember you are not and will not be alone. I feel that was one of the most important things my sister learned. I can not tell you how much this site helped her and me.

I will close now, with my famous last words, YOU ARE NOT ALONE.  With much respect for all.

JS Sister

ConnieSW's picture
ConnieSW
Posts: 710
Joined: Jun 2012

Not only are you hired but you get a raise.  What a great cheerleader.  You and Connie were lucky to have each other.  Now your words (both of you) will help many women to come.

It happened to Me's picture
It happened to Me
Posts: 163
Joined: Apr 2014

Glad you came back to cheer us on.  That post was wonderful.  Your User name is appropriate.  We all know who you are.  I think you will begin a new normal now.  Each season of life, it seems to me (now), that we adjust to a new normal.  I'm still struggling to find that new normal.  I'm glad your sister found solace from this group.  I really feel bad that somehow we missed her first post.  I thank the person who reached out to her with a personal email.  That was so great of you.  I'm really glad JS came back and gave us a second chance.  Take care of yourself JS Sister and thanks for staying on board with us.

Jeanette

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