Jun 09, 2014 - 6:17 pm
My story: Feb. thru May, 2013, I was either spotting or bleeding and I had been tracking it for another health condition I was suffering at the time. My PCP sent me to an ob/gyn. She did a pap test and it came back with two different atypical cells. Had a colposcopy in June, 2013 and they diagnosed it as endometrial cancer. I was sent to an oncologist Ob/gyn on July 1. The ob/gyn here in town said that they thought is was caught in time and I would have a hysterectomy and "maybe" radiation. When I went for my first consultation and he said, "you have a rare type of cancer". Mouth dropped. He told us that it was UPSC and it was rare for someone my age (51) to have this type of cancer and it's rare that it's found on a pap test. Thus, the journey of UPSC began. I, too, started reading online about it as well as some other folks in my world. I got scared and quit reading. July, 2013, I had a radical hysterectomy and they took lymph nodes and found a pea sized nodule on the back of my pelvis. They did a pelvic wash. They took the ovaries, tubes, and cervix. Results showed it had already spread. Back of pelvis, small tumor in uterus, some on the ovary and some on the paracholic gutter. Stage 3A, close to Stage 4. The doctor doesn't feel like radiation would benefit me based on the something or other. He explained it but I forgot what he said. I had 6 rds. carboplatin/Taxol every three weeks. That started in August, 2013. I finished Jan. 2, 2014 because between rd 4 and rd 5, my numbers were too low and I ended up giving myself shots for 5 days to jumpstart the baby white blood cells. I am a massage therapist and have been out of work since just before my surgery. I started in March, doing 1 - 30 minute massage and now am able to do 2 - 30 minute massages, three times a week. Chemo. effects were: hair loss, neuropathy in hands and feet, Day 5 and 6 were my worst days. Most people tell me I did really well with chemo. Had my 1 month check up and a couple nodes in my chest lit up. they took it again on my 3 month check up (May, 2014) and told me I was in NED. Hooray. In April, 2014, I was looking online for hopefully someone who had the same thing I did. I found Lindaprocopia. Wow. I read and read and read this thread. I've had trouble with user names and login's and now csn has helped me with that. Not sure who is still online from the linda posts except for Debrajo and Ro10. My question is: how long does it take to get my stamina and energy back? Thanks to all who have posted. You guys are a wealth of information. I was so relieved that someone else had my kind of cancer. Thanks for letting me share my story.