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ioanna
Posts: 36
Joined: Apr 2014

Hello everyone!

I have been a member for quite some time but I haven't had the courage to write. I am 35 years old, married and I have a wonderful 2 year-old daughter. Last September I was diagnosed with cervical cancer stage 2b.

I finished treatment in mid December and I had an examination in February (CT and blood). Everything was ok.

I had another CT and blood test about 10 days ago. Blood test showed leukopenia (never recovered after treatment) and increased breast cancer indicator. I had a breast ultrasound which showed nothing bad.

The CT results came back on Wednesday and everything seems ok except for a block of lymph nodes near the spinal cord around kidney height, that are slightly swollen. So I am up for a pet scan on Monday.Doc says it could be either a met, or sth irrelevant or even nothing important.

I am afraid it could be a met.I have had an infection in the ear bone and I was taking xefo rapid for 2 weeks, and then Amoxicillin for a week. I have constipation, my thighs are slightly swollen and pain in lower back.

I am terrified. Is met in lymph nodes usual? Does anyone know anything about this?

thanks for your time and best wishes for everyone :)

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 577
Joined: Mar 2013

Welcome ionna to posting.  I do not have any insight for you but perhaps one of the other wonderful women will.  I would recommend taking a breath.  As you know, that is hard to do, but it does sound like your doctor is on top of this and that is good.

ccfighter
Posts: 399
Joined: Jan 2012

Hi ioanna,

welcome to our lovely group.  I'm sorry that you have had to deal with this diagnosis.  It does sound like you are getting good care and are being followed appropriately.  It is hard to say what your lymph nodes are.  Your doctor is right in that it really could be anything.  A pet scan will help in figuring out if it is a met or not.  Lymph nodes can enlarge for many reasons.  When you have pelvic radiation, lymph nodes can become damaged and lymphadema can result, which could explain the swelling in you thighs.  Did you have a hysterectomy?  Do you know what type of cervical cancer you have, squamous or Adeno?  Leukopenia is not unusual after treatment and can take some time to recover.  The pelvic bone is one of the largest manufactures of blood cells and radiation can cause damage to the bone marrow.  

Prior to treatment did tests indicate spread to lymph nodes?  I was diagnosed 2a2 and had mets to my hypogastric lymph nodes (pelvic lymph nodes).  They were removed during my hysterectomy.  I later did have a recurrence but not in my lymph nodes, though it is a common place to have a recurrence.

i hope that your pet scan is clean and there is a simple cause for these findings.  Hugs.

ioanna
Posts: 36
Joined: Apr 2014

Hello,

Thanks for your reply.

I had the pet scan today and will be getting the results on Wednesday.Yes, the doctor I have is great, not only as a doc but also human.

My back still hurts a lot and I can't walk well. I had squamous cancer2b and I did not have a hysterectomy (off protocol). Only pelvic lymph nodes were initially a bit enlarged but did not show signs of cancer in the ct scan. The doctor radiated them just to make sure.

I hope my back gets better soon because I can't work like this and I really have to... How have you been doing?

ccfighter
Posts: 399
Joined: Jan 2012

I really hope that you get good results on Wedneday.  

I also hope that you find some relief for the back pain.  Do you have some meds that provide relief?  A combo of tylenol and advil may help, or if you have percocets or diladid that may do the trick, although cause some sleepiness and brain fog.

I am doing well.  My recurrence occured in my lung and abdominal wall and I had surgery to remove them in dec of 2012, did more chemo which I finished in may of 2013 and have had clear scans since.  I sleep with my fingers and toes crossed ;)  I am active and fully engaged in my kids (6,9,11 years old) life and loving every bit of it.  I still struggle with some anxiety issues, but...small potatoes, even though it can be quite crippling at times.

 

Let us know how things go on Wednesday.  We are all rooting for you!  hugs.

ioanna
Posts: 36
Joined: Apr 2014

It's not good. Waiting for doc..... :(

ccfighter
Posts: 399
Joined: Jan 2012

Oh no!  I am sending positive vibes for you.  Try to keep calm until you have all the info.  We are here for you.  Big hugs.

ioanna
Posts: 36
Joined: Apr 2014

I have a recurrence in paraortical lymph nodes and one near left

ovaries.

I am starting carbo/taxol on Tuesday. Three rounds, one every three weeks. After that we'll do CT and MRI to check progress and decide how to continue.

The weird part is that apart from low whites, my blood tests are great. All cancer indicators are far below limit (????).

Hope everything turns out good:)

ccfighter
Posts: 399
Joined: Jan 2012

I'm so sorry that you are having to deal with this again.  Big hugs.

my cancer is not able to be tracked through blood work with cancer antigens.  My ca-125 at diagnosis was 11.  Totally normal.

ive done the carbo/taxol route and it wasn't as bad as I imagined.  The first infusion caused some pretty significant pain in my legs, but I didn't have a problem with that on subsequent infusions.  When my hair started falling out my scalp was very sore.  I wasn't prepared for that.  It felt better after I shaved my head.  I gained weight on chemo, which it need to do.  Eating was not a problem for me.  Stay well hydrated.  Be weary of constipation.  All the premeds can cause serious constipation problems.

 

i hope things go smoothly with you and you see significant results quickly.   Keep us posted and let us know if you need anything.

ioanna
Posts: 36
Joined: Apr 2014

Thanks a lot for your support :) I am sorry I didn't write earlier but I had to find the medication prescribed for Tuesday.

Cancer antigens are called indicators in Greek so I wrote it wrong. The ones I had tested were all normal.

The lump nodes near my spine are really swollen and bother a nerve. So I have trouble sitting, standing and I can barely walk.

I hope it gets better after Tuesday...

Thanks again:)

ccfighter
Posts: 399
Joined: Jan 2012

I hope that everything goes smoothly with your treatment.  I am sorry that you are having pain.  I hope that your doctor is able to prescribe something that helps.  Consider radiation as well to the mets, perhaps cyber knife or something similar.  This should be possible along with chemo.  It should help alleviate the pain as well.  Best of luck to you.  Keep us posted.  Hugs.

ioanna
Posts: 36
Joined: Apr 2014

Hi, I had my first chemo cisplatin/taxol combination. It's been very smooth, only a bit of nausea and some pain in back.

I suppose it could have been much worse.

But I have been doing some research over the internet on the outcome statistics and some were as low as nine months. Have you read anything;

ccfighter
Posts: 399
Joined: Jan 2012

I'm so glad your first chemo is going smoothly.  Drink plenty of fluids.

also, please don't believe everything you read on the internet.  You are you, and don't fit into general statistics, you are a statistic of one.  Though reading about recurrent cervical cancer can seem discouraging, most of the info is outdated and no one can predict how you will respond to treatment.  

I had a recurrence of my cervical cancer in two locations 18 months ago.  Right now, I am NED and plan on staying that way, despite the less than desireable prognosis I was given (10% chance of surviving this crap disease). so...stay positive and stay strong and know it is possible to beat this.  Hugs.

ioanna
Posts: 36
Joined: Apr 2014

Thanks for your support and reply :) Things have been very smoothly with my first chemo so far. I only feel some burning in spine and just a bit of nausea. I didn't manage to get much sleep last night due to this burning but I did sleep today afternoon.

We spoke to the doctor again and looked into what's next. After these 3 chemos I more likely to continue with tomography machine for radiation therapy. So, so far so good. I'll probably be done much earlier than what I thought.

I am really glad you are Ned and I wish you to remain so forever:)

ioanna
Posts: 36
Joined: Apr 2014

Hello! Does anyone know anything about lemphaedema?? My legs are swollen and don't feel right. Especially my left one is huge. Doctor said I should rest and we'll see, but I am worried...

NoTimeForCancer's picture
NoTimeForCancer
Posts: 577
Joined: Mar 2013

Lymphedema is the buildup of fluid in soft body tissues when the lymph system is damaged or blocked.  It is not uncommon after surgery that removes lymph nodes, as many of us have had, and "rest" is NOT the treatment.  You need to get referred to a physical therapist who specializes in massage and properly fit you for a compression garment to keep the fluid down. 

This is not uncommon, so please do not get worried.  It is totally treatable but get referred to a physical therapist first thing Monday!

ccfighter
Posts: 399
Joined: Jan 2012

Hmmm...

perhaps your doctor might be able to provide some more insight for you.  Lymphadema is common for those who have had lymph node removal or radiation to the lymph beds.  Considering your recurrence is in lymph nodes and left ovary, this might cause a disruption in lymph flow or it could be a result of treatment.  

Try compression stockings and massage.  Get your doctor to take you seriously and give you an answer.

 

i hope you resolve this quickly.  Hugs.

ioanna
Posts: 36
Joined: Apr 2014

Hello Everyone! Thank you very much for your support. I hope you all get well and stay healthy :) I spoke with my doctor and I was eventually prescribed with lasix for my legs as well as cymbalta for the neuropathy as I couldn't walk.. I am doing much better now! I've had four rounds of cisplatin, taxol and avastin. My legs still hurt but not as much and I can walk around. My appetite is ok. Now I am on holidays with my family and having a great time

Judemo
Posts: 99
Joined: Jun 2014

Glad to hear your feeling better ioanna! Have a great trip and enjoy the family!

ccfighter
Posts: 399
Joined: Jan 2012

Glad they have your discomfort under control.  Have fun on holiday with your family.  And congrats on passing the two thirds of the way done with chemo landmark.  Your almost done!  Stay well.  Hugs.

Judemo
Posts: 99
Joined: Jun 2014

How's it going Ioanna?

ioanna
Posts: 36
Joined: Apr 2014

CoolHi! I've been doing quite well. Today is the last day of our holidays. Luckily I managed to rest a lot and I had a great time. I am still taking a lot of pills but I don't mind. I now can walk around more and I even got to swim a couple of times after sunset!

My next chemotherapy is on Wednesday and I am a little anxious about it. Last time my stomach hurt. Hope this time is better!

 

How have you been doing? Has your treatment been planned??

Judemo
Posts: 99
Joined: Jun 2014

Great to hear from you ioanna and great to hear your feeling better! It's amazing what time away can do for the soul and body!  I started a new thread about cervical cancers which updates my status (which is pretty much in a holding pattern) and I'm hoping to hear from other cervical cancer survivors. Thanks for letting us know how your doing! Will be thinking about you on Wednesday.

ioanna
Posts: 36
Joined: Apr 2014

I hope everyone is doing well. I haven't been around much lately. Signed in but rarely spoke. Thing is I haven't been doing very well. I had my fifth round of chemo on August 20th. I got an allergic reaction and a lot of vomiting the next days. My doctor did not react soon enough. So on Aug 29 I got a seizure and while already in hospital for dehydration. I stayed in intensive care for two days. I had acute kidney failure and severe stomach problems.

I had my 6th round last week. It was not as bad as the previous one, although I still was hospitalized to make sure I don't gat dehydrated again.

on Sunday I was rushed to the ER with extreme bowel colic. After given the necessary treatment I was discharged on Monday.

 

I am much better now. I still cannot drink tap water. I can drink Perrier and decaf coffee. I have to take two pills before and one after every meal just to keep food down but I do :)

 

How have you all been doing?

ccfighter
Posts: 399
Joined: Jan 2012

Ioanna,

((((Hugs)))).   It sounds like you have had a rough go at it.  I hope that you are feeling better,.  Was the chemo what causef the acute kidney failure?  Or severe dehydration.  Hospitals are no fun.  I am glad you are home and hope you are recoveribg comfortably.  I know bowel pain and it is no fun!  

Are you done with chemo now?  If so,  congratulations on finishing treatnent.  Recovery time.  Be good to yourself.  Patience.  Take things slowly.  You'll be feeling better in no time.

 

Hugs.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 577
Joined: Mar 2013

ioanna, I am so sorry to hear you have had so many things going on! 

So your are done with your six and final chemo?  Hopefully it is all heading in the right direction and I am praying for you.

hugs

ioanna
Posts: 36
Joined: Apr 2014

Thank you for the support :)

 

It was the dehydration that caused kidney failure. For a week I couldn't keep anything in my stomach :( Is much better now, although I still throw up sometimes.

I am having an MRI this week. Hopefully I won't need another chemo but this depends on the result. I also went to another doctor for a second opinion. Thing is I don't really trust the doctor I've had as I think I might have avoided kidney failure if they had taken me seriously.

ccfighter
Posts: 399
Joined: Jan 2012

Good for you ioanna,

you must be your own advocate.  I am glad you sought a second opinion which I think is always a good idea when diagnosed with recurrence.  I hope you MRI shows great results and your nodes have disappeared.  M sorry you got so severely dehydrated.  Your oncologist most certainly should have taken you seriously.  A lot of people deal with that while undergoing chemo.  it is not unusual.

rest and reCouperate.  I'm glad you are feeling better and I hope it stays that way.  Hugs.

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