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Another Y90 update

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

Sorry to bring this up again, but I have searched the board for Y90 and the topic doesn't seem to be discussed that often.  I decided to go down the path of the Y90 procedure, mostly because I am tired of chemo and the most recent mix-erbitux and irenotecan, was not working for me.  I am scheduled to have the beads placed in one week on May 13.  I just want to know if any of you have had experience with this procedure and what side effects you experienced.   Did it work well for you? 

I have two liver mets that they are targeting.   I have been through the mapping portion of the procedure with very few issues, mostly just brushing and tenderness. 

Anyone have words of advice?

thanks.

lisa

update - the radiation dose is not quite right so I have been rescheduled for the 20th

UPDATE JUNE 8th - it has been just about here weeks since I had the radioactive beads implanted.  In my experience, he only side effect of this procedure has been fatigue.  I had the procedure on a Tuesday and I returned to work full time the following Monday.  I have tried to avoid taking pain meds but have used maybe one or two daily, typically to sleep.  I went for bloodwork to analyze liver function and all the results came back normal.  The doctor is pleased and has ordered the beads for the second tumor.  I will have that  procedure the week of June 16th assuming that the radiation dosage is at the correct level.   

June 20- yesterday was my second bead implant.  It was a very long day due to some issues at the hospital.  We left home at 9 AM and did not get back until 1 AM this morning.  The procedure itself went very well.  The doctor is certainly please with how the bead placement went.   I am feeling very well today and expect that the main side effect this round will be fatigue just like last time.  I expect to rest this weekend and go back to work Monday.   In two weeks I will have a CTScan to check my liver.  I am excited for the results.   I am certain that I have this thing!

lp1964's picture
lp1964
Posts: 926
Joined: Jun 2013

I don't know anything about that procedure, but wanted to send my support and wish you the best luck with it.

Laz

Nana b's picture
Nana b
Posts: 3047
Joined: May 2009

No liver resection?  Hope this treatment works for you. I may be interested in it.  Xeloda, oxy and irrotecan and Folfri have not worked for me either.   

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

Nana,

yes I had a liver resection in 2013.  They removed the entire right lobe of my liver.

lisa

janderson1964's picture
janderson1964
Posts: 1896
Joined: Oct 2011

I have not hadit done yet but am familiar with it. I had consultations with a couple of different interventional radiologist about the proceedure. It is something I am considering depending on my scan results later this month.

There are a few on the Colon Club Forum who have had it done. Most recently a guy whose screen name is Voxx.

Trubrit's picture
Trubrit
Posts: 1758
Joined: Jan 2013

but I don't.

I had never even heard of Y90, until you mentioned it in your last post, and then, right on cue, my Surgeon actually mentioned it as an optopn if my ablation didn't work out. 

I am guessing that they are making strides with liver met treatment. The ablation and Y90 seem to be fairly new on the scene. 

I wish you all the luck in the world, and May 13th is on my calendar.  You have my prayers.

 

danker
Posts: 784
Joined: Apr 2012

I googled it.  Sounds like it is quite effective. Best of juck to you!!

annalexandria's picture
annalexandria
Posts: 2361
Joined: Oct 2011

As Jeff said, there is someone at the CC who has been keeping folks updated about his experiences with this.  I've read a few of his posts and they've been pretty informative.

Let us know how it goes.  I'll be thinking of you on the 13th.

northa914
Posts: 90
Joined: Mar 2011

There is a person (content removed by CSN Support Team) who had Y90 treatments for cholangiocarcinoma.  I'm assuming the treatment is the same for whatever type of cancer is being treated.  You can find her on Facebook under The Cancer Assasin.  If you scroll through her posts you'll find links to her blog posts from last year that describe what she went through.  If you can't access her on FB, you probably can search for her blog on Google, etc.

All the best to you!

Brenda Bricco's picture
Brenda Bricco
Posts: 564
Joined: Aug 2011

Hi Lisa, forgive me if I 'm wrong but I think the procedure you are talking about is the same my Husband had a couple of months ago but it was referred to as Thera Spire. Anyways... if it is, it went really well and ct was negative a month ago.

GOD's blessings

Brenda

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

Thanks for your thoughts and support.   I went and read what The Cancer Assassin wrote, not encouraging, but good to know in case. I will update you all on my experience.

lisa

Varmint5's picture
Varmint5
Posts: 384
Joined: Feb 2012

I just sent you a long message regarding my daughter's experience with Theraspheres. I won't paste the whole thing here, but she had good results and is still doing well 2 years later - still getting treatment, not cured, but doing so much better than she was.

Sandy

annalexandria's picture
annalexandria
Posts: 2361
Joined: Oct 2011

that if you want to read about the procedure from a slightly less intense perspective, the guy at CC who recently had it done is user Voxx66.  I think you can search on "Y90" on that forum without being a member, and pretty much everything on the topic that is recent comes from him.

He def had side effects, but not at all like the person who writes at that blog.  Like all these procedures, there is a lot of variability in how we react.  No one would ever do FOLFOX if they heard how many times I landed in ER because of it, and yet other people work while on it!  It's kinda weird.

kersha
Posts: 63
Joined: Jul 2009

My husband had this Y90 done in December 2013 with very good results meaning reduction to 3  tumors that were targeted in his liver without any adverse effects. He was able to continue to work. However, another new one appeared and he also has some mets to his lungs which he had prior to the y90 but y90 cannot be done to the lungs.  He is now in the new clinical trail of PD1 and hope that would get rid of all of the mets in liver and lungs would not know how it is working until he has his scan at the end of the month.   I wish you luck with the Y90.  Seeing that you did not have any problems with the mapping, which I think is really the difficult part you should do fine with the actual procedure.

Hooley's picture
Hooley
Posts: 156
Joined: Aug 2012

This sounds interesting.   Think I've gone wrong tho!  I thought by flagging it I could follow it and keep posted.   Sorry to all if I've messed up here. Due

thingy45's picture
thingy45
Posts: 590
Joined: Apr 2011

Good Luck, I will be thinking of you on the thirteens, hope it works out for a better and healthier you.

 

coloCan
Posts: 1878
Joined: Oct 2009
Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

Here's hoping I will post a success story here by July!

Trubrit's picture
Trubrit
Posts: 1758
Joined: Jan 2013

I'll be thinking and praying for you, Lisa. 

Trubrit's picture
Trubrit
Posts: 1758
Joined: Jan 2013

I am sorry I didn't see your update, Lisa.  If you want, you could put Update in the subject line, and that would alert us (or me, at least). Just an idea. 

Anyway, I am sorry that your surgery was rescheduled. I know how hard it is gearing yourself up for a procedure, and how disappointing it is when it gets cancelled.  

So, you're back on the calendar for the 20th. Fingers crossed and prayers said. 

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

You are awesome, very compassionate

Trubrit's picture
Trubrit
Posts: 1758
Joined: Jan 2013

Smiley cool 045.GIF = Me

No, really. Thank you for the compliment. 

carrieh
Posts: 116
Joined: May 2012

Is it Tuesday? I missed a post or something...just wanted to check on you and saw something about the 20th.

You  are in my thoughts Lisa...got a couple of cheesy puns for you...courtesy of me having too much coffee before bed.

 

I wondered why the baseball was getting bigger...then it hit me.

When William joined the army he disliked the phrase, "Fire At Will."

Police were called to a daycare when a three year old was resisting a rest.

 

Hope you smiled. Your friend, Carrie

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

Carrie thanks for making me laugh.

here's one for you:

What do you call a nun who sleepwalks?     A Roamin' Catholic  ba dumdum

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

First I want to say that all of you are amazing.  This board is so supportive.  I appreciate all of you.

Yes, I had the next part of my Y90 procedure yesterday, May 20.  The doctor was very pleased with the procedure, it went very smoothly.  I was happier with this part because the sedation was better and I felt no pain.  The initial part, where they map the arteries, the sedation wasn't as good and the doctor kept having to tell the nurse to give me more.   I had a different nurse this time. After they implanted the radioactive beads, they took me up for a scan which revealed that the bead were placed perfectly.  Very good news.

After laying in recovery for six hours without moving, a very difficult task I might add, but necessary to keep the artery from bleeding, the doctor came in to tell me he was very pleased.  So the next part of this journey....since I had a liver resection in March 2013, my liver has regenerated to the original size so they are treating it as if I have two lobes.  In two weeks, I will go in for blood work.  If the bloodwork show normal liver function, then about three weeks from now, they will implant beads into my second tumor.  So I am hoping and praying for good results.

Overall, today I am a bit tired, but I am finding it difficult to rest.  It is a beautiful day here and I want to get out and go.....who wants to take a day off work to just lay around!  So I am thankful that it is beautiful and that I am feeling well.  I will update more later.

CammieS
Posts: 43
Joined: May 2014

Good news for you! I hope the next steps go well, too.

Trubrit's picture
Trubrit
Posts: 1758
Joined: Jan 2013

I am so happy to hear that first, the surgery went ahead, and second, it went well. I am happy to know that you are home, and being taken care of. 

Thank you so much for the detailed account. You know how much it helps others who are facing the same procedure. 

I thought of you all day yesterday, and will continue to think of you as you recover. I hope you get a bit of time outdoors, though PLEASE don't overdo it. I got told off after my liver ablation for wanting to get going straight away. 

Take good good care. 

SUE

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

Sue,

I think we are cut from the sme cloth!  I am resting now and I promised my daughter I won't do anything for an hour and a half!

the challenge is on!

Lisa

janderson1964's picture
janderson1964
Posts: 1896
Joined: Oct 2011

That is great news Lisa.

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

Just an updat

UncleBuddy
Posts: 732
Joined: Aug 2013

I'm keeping my fingers crossed that this sends you in the right direction and you become NED!

Get a lot of rest and take care of yourself.

Keep us posted!

Lin

Trubrit's picture
Trubrit
Posts: 1758
Joined: Jan 2013

 

UPDATE JUNE 8th - it has been just about here weeks since I had the radioactive beads implanted.  In my experience, he only side effect of this procedure has been fatigue.  I had the procedure on a Tuesday and I returned to work full time the following Monday.  I have tried to avoid taking pain meds but have used maybe one or two daily, typically to sleep.  I went for bloodwork to analyze liver function and all the results came back normal.  The doctor is pleased and has ordered the beads for the second tumor.  I will have that  procedure the week of June 16th assuming that the radiation dosage is at the correct level.   

What a wonderful update. 

I missed reading it on the 8th, so I hope you don't mind me copy and pasting it as part of my post. 

I am so happy that you are feeling so well, and that you will be ready to have the other procedure done so soon. Keep on keeping us updated, and I will certainly keep you in my prayers. 

janderson1964's picture
janderson1964
Posts: 1896
Joined: Oct 2011

Thanks for the update Lisa, and thanks for the reply to the PM I sent you. It was real helpful.

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

So far so good!   See detail in original post

Trubrit's picture
Trubrit
Posts: 1758
Joined: Jan 2013

Wel, not the long journey home, that must have been terribly frustrating. But I am happy that the planting went well, and even happier that you are feeling good about it. 

Get as much rest as your body needs and keep posting the positive progress reports.

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

You are the BEST!

janderson1964's picture
janderson1964
Posts: 1896
Joined: Oct 2011

That is great news Lisa, and I lover your positive attitude. It will take you far.

Helen321's picture
Helen321
Posts: 951
Joined: May 2012

I don't know anything about it but I'm excited that you're excited, way to feel good!  It's a good feeling to kick cancer!  I've been sending so many good vibes into the atmosphere lately that the world should be filled with cancer fighting juju.  Can't wait to hear that you're on the NED bandwagon. 

Nana b's picture
Nana b
Posts: 3047
Joined: May 2009

What great news. I will be checking into this myself. Thanks! 

Lisa2012's picture
Lisa2012
Posts: 142
Joined: Feb 2014

Your support is so appreciated.   I went back to work today bu only last from 8 to 1 before I decided that a nap,was in my best interest.  I am feeling well, just tired and some nagging pain in my midsection.  I am getting up and doing something everyday, I have big plans for the 4th so I need to get back to normal.

the doctors called today and I will do my bloodwork and a CTScan after the 17th of July.  Until then, I will work on leading a "normal" life.   Blessings to all of you and thanks for your support.

lisa

janderson1964's picture
janderson1964
Posts: 1896
Joined: Oct 2011

Rest up good for the 4th and enjoy yourself. I will be recovering from y90 on the 4th. Then as you know i have big plans 10 days after y90 flying from virginia to seattle so i will be getting plenty of rest before then.

I am glad you are an active part of this community. You have helped and inspired many including me. And thats pretty hard to help and inspire a grizzled long time survivor like me.

annalexandria's picture
annalexandria
Posts: 2361
Joined: Oct 2011

I'm very excited for you!  I'm looking forward to those scan results, and sharing in your celebration.

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