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Things moving quicker than originally planned

luv4lacrosse's picture
luv4lacrosse
Posts: 1387
Joined: Jul 2010

Good morning all. I received a call Friday from my Onco Nurse, she said he and pulmonary doc discussed my CT and the issue with my pleural efflusion not improving since the 8 weeks I habe been off Taxotere. Their consensus is I have a Para Mallignant Efflusion, since none of my lung fluid has ever showed the presence of cancer cells. They say 50% of the time the lab cannot find cells. I'm am now going to start Cisplatin this coming Friday, and every Friday going forward. the expectation if the Cisplatin works the the fluid should fix itself.

Wish me luck

Mike

hwt's picture
hwt
Posts: 1906
Joined: Jun 2012

Have you had cisplatin before? Hopefully, getting it in weekly doses won't be too hard on you. I know once they dropped my dose to weekly, it was allot easier for me to handle. Smaller doses more often. I had mine in combo with the rads2012  so hard to say what was tough on me, the rads or chemo. Getting it solo should be easier. I know my recent taxol/erbitux was so much easier stand alone than with rads. 

Prayers are with you!

Candi

luv4lacrosse's picture
luv4lacrosse
Posts: 1387
Joined: Jul 2010

Hi Candi, yes I had Cisplatin my first time around. One whopping dose every 3 weeks while getting both sides of my neck radiated. It was horrible then, but I had worse side effects from the rads. It was the only drug that my cancer did not re appear, so I feel like it will work again. My doc also says the smaller weekly dose should minimize the side effects.

Mike

hwt's picture
hwt
Posts: 1906
Joined: Jun 2012

Have you had cisplatin before? Hopefully, getting it in weekly doses won't be too hard on you. I know once they dropped my dose to weekly, it was allot easier for me to handle. Smaller doses more often. I had mine in combo with the rads2012  so hard to say what was tough on me, the rads or chemo. Getting it solo should be easier. I know my recent taxol/erbitux was so much easier stand alone than with rads. 

Prayers are with you!

Candi

Greg53's picture
Greg53
Posts: 830
Joined: Apr 2010

Mike,

A little cisplatin ain't nothin' for a tough North County Boy!  Kick some butt Dude!!

Greg

ps- Go Blues

luv4lacrosse's picture
luv4lacrosse
Posts: 1387
Joined: Jul 2010

Yes sir, brought a lot of North County hood toughness to Tx. I'm getting a little worried about the Blues, but Coach Hitchcock expects most if not all of the injured players will be game ready Thursday.

Miss you brother.

osmotar's picture
osmotar
Posts: 953
Joined: Jul 2011

Mojo, blessings, and good light coming your way in this next step of your journey. 

Linda

donfoo's picture
donfoo
Posts: 1205
Joined: Dec 2012

As always, thanks for the updates and your courageous attitude in your fight with the beast. Sorry to hear the source did not point elsewhere. But chemo is hardly a stranger to you so you know the drill. Best wishes and thought for you. Don

KTeacher
Posts: 924
Joined: Jan 2011

Do you have a port?  I lost my poor veins to cisplatin.  Stay hydrated.  I had something added in and slept like a baby at the center.  I hope that this does the trick for you.

Guzzle
Posts: 519
Joined: Mar 2014

Mike the mantra if Liverpool is YOU'LL NEVER WALK ALONE. Google the words of the song brother. Pretty much says it all. G.

luv4lacrosse's picture
luv4lacrosse
Posts: 1387
Joined: Jul 2010

Yes, I had a power port put in 2 yrs ago. I've been lucky with my veins as the working out keeps them huge. I actually get all of my blood drawn and IV contrast through my AC vein in my arm. It's just so much quicker vs the lab trying to find an RN and do the port.

debbiejeanne's picture
debbiejeanne
Posts: 2371
Joined: Jan 2010

mike, saying many prayers that things only get better from this point forward.  i'm also sending good mojo and positive vibes your way.  you can do this.

God bless you always,

dj

CivilMatt's picture
CivilMatt
Posts: 2920
Joined: May 2012

 

Mike,

Let’s hope, like you said the Cisplatin works and the fluid will fix itself.

Wishing you lots of luck,

Matt

KB56's picture
KB56
Posts: 244
Joined: Apr 2013

mike, I didn't have Cisplatin but it doesn't sound like you're a stranger to it or what to expect.   Good luck as you get started and get it behind you.  

 

All the best, 

keith

Hondo's picture
Hondo
Posts: 5734
Joined: Apr 2009

Here pulling for you that the cisplatin will do the trick, keep your positive way of looking at things and you will do very well. As always keeping you in prayers my friend

 

Tim Hondo

jim and i's picture
jim and i
Posts: 1599
Joined: May 2011

You keep on truckin no matter how much they throw at you. Praying for mild side effects and success.

Debbie

Skiffin16's picture
Skiffin16
Posts: 8069
Joined: Sep 2009

Prayers your way...

Can't really speak of side effects of either, though I had both Taxotere and Cisplatin simultaneously...

I know with the Cisplatin especially, they start flushing your kidneys with lasix and such right away... You'll be the Pee King more than likely like I was.

So sit close to the head, and drag your pump with you if you have one...

It's like the first pee after drinking for awhile... Your good until the first pee, then every few minutes you gotta go...

Hang in there bro..., beat this thing.

John

patricke's picture
patricke
Posts: 463
Joined: Aug 2006

Hey Mike, I'm sorry to hear that you're having to go through this treatment, but I'm wishing and hoping that it does the trick quickly and effectively.

PATRICK

 

arndog64's picture
arndog64
Posts: 536
Joined: Mar 2011

Sorry to hear you have to go on weekly treatments. I am praying it does the job and cleans all the bad cell out. Stay strong!!!

 

fisrpotpe's picture
fisrpotpe
Posts: 1334
Joined: Aug 2010

cisplatin is nothing a tough guy like you can't handle. keep that fight going, so proud of you. 

 

john 

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