Apr 12, 2014 - 1:22 am
In 2008 I was diagnosed with undifferentiated embryonal sarcoma of liver. This is a very rare diagnosis in an adult. I was 48 at he time. I underwent a liver resection, removing a 16cm sarcoma. I then had intensive chemotherapy following the ewings protocol. I am here five years later and so far cancer free. I used to have a thread on this dicussion board but it has disappeared. Several people posted that they too had this rare cancer. I wanted to restart the thread to give hope to those who feel very alone upon getting this diagnosis.
Please feel free to ask questions and post your stories.
Remember, rare is not equivalent with worse.