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Surgery-Rodding of Right Humorous

dancnbear1
Posts: 50
Joined: Dec 2013

Well, it was determined my cancer had been in my right humorous for some time but not caught. Never had a bone scan or xray of the arm before. Well fall made the xray necessary and fracture made the rod mandatory. Does this mean I will become the $300,000 Man (cost of surgery). Have a friend with metal in her neck and once I am better we are going to go around town setting off the metal detectors.

They will do biopsy but most likely RCC Mets.

3rd infusion is 4/29. Gotta keep that trial on line and chugging along. Speaking of chugging was told shouldnt drink for a while---snuck two beers otherwise no alcohol since early feb. Would like one after the past week and 1/2

Arm Radiaton starts late April. Need incision to heal for 2 weeks from surgery.

 

 

 

 

 

 

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Jan4you's picture
Jan4you
Posts: 205
Joined: Oct 2013

WOW!! AGain I am sorry for ALL you are enduring. Hope you heal up well and move on with your treatment.

Remember, Alcohol can reduce effectiveness of other medications and you don't want to fall again.

Still I understand how you wanna beer!

Keep us informed,

Warmly, Jan

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

What a bum deal!  Sorry you're going thru this.  Sounds like you've got a long road to recovery but keep believing you will beat this, and you will.  It's amazing the price of surgery alone doesn't kill us, huh? 

Keep us posted on the biopsy findings.  And I say if ya want a beer have a beer.  But just one.  A really cold one!!

Sending good juju your way!

 

Sindy

dancnbear1
Posts: 50
Joined: Dec 2013

I like that good juju   never heard that before  like it

Djinnie's picture
Djinnie
Posts: 814
Joined: Apr 2013

I am sorry to hear that you are having to go through all this! but it sounds like you have some fun times planned for later, with that friend of yours, just make sure the two of you don't wander near any strong magnets. All the best with the treatment, keep that sense of humour handy, it's always a good buffer:)

 

Djinnie x

foxhd's picture
foxhd
Posts: 1953
Joined: Oct 2011

that I met a guy who complained about shoulder pain and weakness. When he had it checked out, it was a renal cell met. That's how his cancr was found. Upon further testing, he also had mets in both femurs. He had to have all bones rodded. He was confined to a wheelchair. He looked bad. Last time I saw him he was walking and moving well. He STILL hadn't had his kidney tumor removed. He is on the nivolumab trial.  So, I am glad that you are having yours taken care of so you can move on. There are always complications and obstacles but they can be dealt with. Just as long as you see it that way. I saw that quality in your humor about setting off detectors. You'll be ok.

Jojo61's picture
Jojo61
Posts: 415
Joined: Oct 2013

I agree with Fox, DBear!! Your sense of humor and attitue will have you sailing through this!

Hang in there! Keep us posted.

Hugs

Jojo

Cate1273's picture
Cate1273
Posts: 35
Joined: Feb 2014

Jojo,

Love the hair. You look great! Also so glad to see your great results!!!

 

Cate

dancnbear1
Posts: 50
Joined: Dec 2013

Rodding of arm complete. Was the most painful two weeks or so of my life. Thank god I was reffered to an ortho who is well versed in rcc. He had me go through a procedure the day before the rodding that plugged 4 major channels of blood flow to my bone mets. He told me that if he hadnt i could have bled to death on the table. Looks like RCC mets bleed big time. I was also told post rodding that my bone was held together by a thread and I was lucky is just didnt snap in two. Guess that was why the pain was through the roof. Was in so much pain after first procedue and before rodding that they knocked me out on the bed they brought me to the OR on---- then they moved to the or bed. The day before they were hitting me with morphine, percs, and dilauded. I was a walking narcotic store.

 

Home now and focusing on a shower, getting off the pain meds, and getting the mobility back in the arm. two kids came home from college to check on me and helput. using the arm to get them to clean their rooms lol

 

db

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Oh my!  Makes me hurt just reading about it! 

Sounds like your were in excellent hands tho, so you should heal up nicely.  Granted, it may take a while...don't rush it.  Give it time.  Take advantage of those kids and milk it for all it's worth. 

Hope you got that shower, nothing feels better than that first home from the hospital shower!

 

Sindy

a_oaklee
Posts: 174
Joined: Nov 2013

I'm so glad that the procedure is now complete and you are back home.  I laughed when you wrote about college kids cleaning their rooms...hahaha...I figure that must be the drugs talking and you are dillusional.  Anyway, enjoy the time with your family.  Sounds like great kids in that they rushed home to be with you.  If you don't mind, could you please tell me whether or not your arm hurt prior to the break?  I would think that you would have had some symptoms of bone pain at the site of the break.  Just wondering, as my husband has bone mets and we are kind of under the impression that we would know if he had another site. 

Get well soon.

Annie

dancnbear1
Posts: 50
Joined: Dec 2013

Arm hurt big time and drove me to ER. Pain started about 4 weeks out and just got worse. couldnt move arm at all/

 

foxhd's picture
foxhd
Posts: 1953
Joined: Oct 2011

When I had the mets in my iliac crest, I could hardly walk around the house without being on percocets. My ribs hurt so much that if I sneezed or coughed, I would see stars and barely keep from passing out. Now I feel for you.

dancnbear1
Posts: 50
Joined: Dec 2013

Can you give mr some idea of the healing process with regards to pain, movement, and strenght. popping pills like candy

 

Jojo61's picture
Jojo61
Posts: 415
Joined: Oct 2013

Sounds very painful. I hope that part is over soon, Nice to have your kids around...you probably could get them to do a lot more than cleaning their rooms, right now if you wanted to! Hmmm yard work, wash your car or paint a room. Shoot for the moon!

Keep your chin up!

Hugs and smiles,

Jojo

 

foxhd's picture
foxhd
Posts: 1953
Joined: Oct 2011

I think. You can take the drugs for pain. That is what they are for. Just know that is for the short term. You have to be patient and keep this in perspective. There is no reason to push anything. Let things heal. Move gently within your tolerence. You've had a bad break. Pun intended. It was not the direction you wanted to go in but you have no choice. Managing your injury and pain has to be your doctors job. They will allow therapy when they see fit. So, You can't do much for a while. Just follow their orders and hang in there for now. Sorry.

dancnbear1
Posts: 50
Joined: Dec 2013

6 days post surgery and moving forward--next few days will be fun. tomorrow full body bone scan. Monday meet with radiation team to map out and prep for 10-day program. Tuesday--off to infusion which means tons of blood, 3 sitting ekgs, meet with Dr., and then 3 1/2 hours of infusion---cant forget about the chills i get 1/2 way through the second bag of my "juju" juice. Yes, I told you I would steal your phrase. Then hop in car drive 40 minutes to surgeon to have xray and review of rod with that doctor. The funny thing is I am loving every second of it. Why--cause I am alive and fighting

 

last thought----said this to my wife last night

Pain is Gods way of showing you that you ARE ALIVE and you should be acting that way and not as if you are dead.

To all myRCC  brothers and sisters we are alive and that is all that matters. Keep kicking ass!!!!!!!!!!!!!!!!

 

 

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

I can't help but admire your amazing attitude.  What an inspiration you are!  Keep us posted along the way. 

Sounds like you are going to be a very busy man next week so try to relax and enjoy this beautiful Easter weekend. 

I'll keep the good juju coming.

 

Sindy 

Cate1273's picture
Cate1273
Posts: 35
Joined: Feb 2014

DB,

  You are always in my thoughts and pryaers. I am sorry you have to go through this. You are so tough and I know you can make it through. Your attitude is wonderful and you are right, we are alive and we all need to keep fighting!!! Lots of hugs!!

Cate

Jojo61's picture
Jojo61
Posts: 415
Joined: Oct 2013

Hey DBear!

You have been through a lot, and have a big week ahead of you! Your attitude is amaz**** and that is what will get you past this!

Keep your chin up! We are all cheering for you and looking forward to hearing about your good results!

Hugs and smiles

Jojo

dancnbear1
Posts: 50
Joined: Dec 2013

I was able to take a shower by myself and use my right arm for the first time in 3 weeks and thought wow things are moving forward. Then realized that means no more wife in shower with me. Damn. Should have thought that one out better.

 

db

icemantoo's picture
icemantoo
Posts: 1599
Joined: Jan 2010

Dancinbear,

 

Nobody said you couldn't enjoy perks along the way. Now youre going to have to fake it.

 

Icemantoo

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

lol, thanks for starting my day out with a good laugh!  Hilarious!!

Glad your recovery is moving in the right direction. 

 

Sindy

 

 

dancnbear1
Posts: 50
Joined: Dec 2013

Had full body bone scan and the results are cancer confinded to Right Humorous and no signs anywhere else. Good news !

sblairc's picture
sblairc
Posts: 145
Joined: Feb 2014

That is fantastic to hear. Lots to be thankful for, congrats. 

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Awesome news!  You were due for some, huh?  Hope you continue getting good scans for years to come!  Thanks for the update.

 

Sindy

Jojo61's picture
Jojo61
Posts: 415
Joined: Oct 2013

Way to go DBear. One thing for sure is this hasn't affected your funny bone!

Sounds like you are doing great!

Hugs and smiles,

Jojo

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