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CT Scan Results tomorrow

Jojo61's picture
Jojo61
Posts: 365
Joined: Oct 2013

I had my first folllow up CT scan on March 27th and tomorrow I go for my results. (My path report of the 13 cm tumor was Stage PT3aM0N0 Grade 2). I am feeling optimistic that this will show up NED. (But I am also curious if anyone out there ever got a NON-NED report after their first follow up scan?)

That being said....is there anything specific I should be asking the uro-oncologist tomorrow?

Thanks!

Jojo

Jan4you's picture
Jan4you
Posts: 184
Joined: Oct 2013

Just wanted to say Hello and know that I am still supporting you very much!

Can't answer your other questions, but will be waiting to hear from you soon.

Gentle hugs, Jan

brea588's picture
brea588
Posts: 114
Joined: Jul 2012

Just want to say my thoughts and prayers are with you and you have NED!!  You are such an inspiratin to me on this forum.  Always pleasant and makes people feel better.

icemantoo's picture
icemantoo
Posts: 1511
Joined: Jan 2010

jojo,

 

May your scan show NED. We are all rooting for you.

 

Icemantoo

a_oaklee
Posts: 161
Joined: Nov 2013

Thoughts and prayers are with you tomorrow.  Sorry I can't think of any questions.  Just wanted to offer well wishes. 

Annie

GSRon's picture
GSRon
Posts: 1211
Joined: Jan 2013

Good thoughts for you JoJo.. Ron

Srashedb
Posts: 178
Joined: Dec 2013

wishing you "unremarkable" results in your scans. Post after your appointment.

Sarah

thaxter's picture
thaxter
Posts: 70
Joined: Jan 2014

Good luck on your results.  I get scanned on 4/21 post IL2.  Unfortunately my first post-op scan on 1/6 after nephrectomy on 9/13 showed several small lung mets which is what we are dealing with now.

twinthings's picture
twinthings
Posts: 401
Joined: Jun 2013

Hi Jojo,

I know you must be so anxious but I gotta a feeling!  Today's gonna be a good day for you, I just know it!  I will anxiously be awaiting your post visit post.

My first scan, in fact, all three of my scans, since surgery, have been good.  Not perfect mind you, but certainly no mets. 

Did you also have labs drawn, when you had the ct?  If so, then you'll surely want to ask if all was fine with your bloodwork, what your GFR and creatinine levels are.  And don't forget to get your copies so you can look them over yourself.  I always get my report before I see Dr, that way I've had a chance to look it over.  Granted, working out of state like I do, makes for a lengthy time between the actual scans and follow up with doc.  So, I make the most of it by pouring thru my records with a fine-tooth comb and writing down questions. 

Hang in there girl!  Keep that beautiful smile on your face and you'll be just fine!!

Limelife50's picture
Limelife50
Posts: 411
Joined: Nov 2011

There are usually more NED reports on first follow up scans than non NED reports i just happened to be one of the non ned reports.My original tumor was a grade 2  5cm by 4cm by 3.5 on my follow up i had a 1.4cm in my remaining left Kidney good luck jojo hope you get a all clear.

twinthings's picture
twinthings
Posts: 401
Joined: Jun 2013

Limelife, sorry to hear your first scan revealed a new tumor.  I hope you are getting excellent medical care. 

My tumor was not much smaller than your original one, also a grade 2.  I shudder when I hear stories like yours.  I'll keep you in my thoughts and prayers.

 

Sindy

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