Apr 01, 2014 - 11:03 am
I had an open partial back on 3/6/2014 and I am slowly getting on with my life. (actually started back at work today) I was looking to get some opinions on follow up scans based on your experiences. My surgeon, seems to think I would be fine with bloodwork and a chest x-ray six months post-surgery, and then another x-ray, CT and bloodwork at two years. His logic is that I am a very low risk of mets, and any reoccurence would grow so slow that he wouldnt be able to see it for two years anyway. I disagree with him, but I figured I would get some more facts before I push the issue with him and/or get myself an oncologist. Although my tumor was small, it did extend microscopically beyond the renal capsule. My surgeon says that this is not a concern, but the fact that it was not fully contained freaks me out. I would think I would at least need one CT scan per year for three years. Below is the relevant data from my path report that I copied over. I think my Urologist was great for the surgery, but I think he is out of his element when trying to reccomend follow up.
As a follow up question to that, If I need to get an Oncologist who specializes in RCC, should I find them on my own, or do I have to get a referral from my Urologist?
Type: Clear Cell RCC
Sarcomatoid features: Not Identified
Tumor Size: 2.2 cm
Tumor Focality: Unifocal
Histologic Grade: Fuhrman Grade 2
Tumor Extension: Beyond Renal Capsule (Microscopic)
Parenchymal Margin: Negative
Perinephric Fat Margin: N/A
Renal Capsule Margin: Positive
Adrenal Gland: Not Included
Lymph Nodes: Not Included
pT1a, pNX (Stage 1)
The specimen consists of an irregular portion of tan tissue measuring 3 x 2.5 x 2.6 cm. One surface is smooth , apparently representing therenal capsule. The surface exudes a small amount of golden yellow material . The renal parenchymal resection margin is inked in black .Sectioning reveals a golden yellow and hemorrhagic mass measuring 2.1 x 1.5 x 2.2 cm . The contents of the mass are exuding onto the free capsular surface of the kidney