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Re: Good news on cat scan for UPSC - NED - 3 years out from original diagnosis!

cheerful
Posts: 127
Joined: Apr 2011

Hi Everyone:

 

  I wanted to post that I just got my results back this afternoon (Thursday) from my cat scan I had done on (Tuesday morning) and it shows I have "NO" evidence of disease or metasis to other organs so I am Very happy and relieved and so is my Family.  I was originally diagnosed back in February of 2011 so now I am 3 years out from diagnosis.  I was diagnosed at Stage 1 of UPSC and underwent 6 rounds of carbo and taxol and 3 rounds of brachytherapy. My cancer was a large polyp at 5 centimeters. I still have 2 more years to be diligent and watchful and I Never ever let my guard down with this cancer.  I know this is a terrible and very scary type of cancer (UPSC) to be diagnosed with and it is such a rare and aggressive cancer.  I go back and see my oncologist in 3 more weeks as I normally see him 2x a year.

  I just hope that I can continue to remain cancer free and with NO evidence of disease for now and in the future.  I enjoy life every day and live life to the fullest and hearing that I had cancer did change me.  I am eating a lot healthier and better since being diagnosed three years ago.

  I also wanted to ask you women on the board about peanuts - I did read in the American Cancer Society booklet that if you have peanuts it will thwart cancer so I have been having shelled peanuts for 3 years and have them Every day a bowl full of them - it has definitely helped, but I am wondering if any of the women have eaten peanuts on an everyday basis either the shelled peanuts or cashews or walnuts or any other kind of peanuts to help with the cancer.

  Any insights on food you can give me would be appreciated.  I do not have much meat - I have a couple of meatballs during the week along with spaghetti - I have coffee 2 x a week and we just bought a Keurig.  I also eat fruit, salad, yogurt, baked potatoes and soup during the week and I am also trying to lose some weight.

  Also, I wanted to mention to the women on this board who are fighting UPSC or any other kind of uterine cancer that should they have a reoccurrence, my heart goes out to everyone of you and I wish you all the best going through more chemo and keep up the good fight.  Never, ever give up.  Just enjoy each day and be thankful for every day. No one knows what tomorrow will bring or even next week, next month or even next year so do try and enjoy each and every day.

Cheerful

a/k/a Jane

  

ConnieSW's picture
ConnieSW
Posts: 623
Joined: Jun 2012

Wonderful news and I wish you more of the same.  I'm one year behind you and hope I do as well.

cheerful
Posts: 127
Joined: Apr 2011

Hi Connie:

  Thank you so much for your wishes.  I really do appreciate it.

  I hope you will continue to remain with No Evidence of Disease.  If you have reached the 2 year mark, then you will have thwarted off the highest chance of reoccurrence with UPSC as it is as you know within the first two years it is the highest chance of recoccurence for UPSC to return,  so continued good luck and good health to you.

Jane

 

 

 

ConnieSW's picture
ConnieSW
Posts: 623
Joined: Jun 2012

Surgery was 2 years ago today.  I take nothing for granted and, no matter what happens, am grateful for Each day I've had since then.

Ro10's picture
Ro10
Posts: 1483
Joined: Jan 2009

Celebrate your dance with NED, and may your dance continue for a very long time.  I am so happy for you.   Continue to enjoy each day.

cheerful
Posts: 127
Joined: Apr 2011

Hi Ro:

  Thanks for your wishes - I really appreciate it.  I am always nervous, concerned and anxious when I go for the cat scan or even see the oncologist.  It is a big worry for me and I am Always diligent and watchful. I don't take anything for granted.  I am just grateful for each day that I have as cancer does change you.  I have changed my eating habits for the better and am eating a lot healthier and I do feel a lot better.  I live for each day as I don't know what next week, next month or even next year will bring. I will continue with my good eating habits.  

  I know that your facing an uphill battle right now with your cancer.  I wish you all the best and you will come to a good decision. Do what you feel is best for you and I know your doctors will advise you and help you to make the right decision.  I know going through chemo is not easy at all.  I will keep you in my prayers.  I have lost 2 people to cancer over the past year or so - my first cousin died from brain cancer back in the fall of 2012 (he was 73) and had it for over 2 years so he lived a pretty long time with it. I will always remember him and will always miss him. He was so good to my family he lived outside of Baltimore, MD and came down a couple of times a year to visit with my Mom and I and he treated both my Mom and I to lunch so he was a very giving person. I have so many good memories of him.

  I just recently lost a friend who I met through going through chemo when I was going through it back in 2011 (she had Peritoneal cancer stage 4) a rare cancer of the stomach lining and the doctors only gave her a year or two to live and she lived almost 4 years and outlived the doctors' prognosis so I guess the doctors don't know everything. She went through chemo several times. She was young by today's standards only 63 about a year older than I am.  She had an infectious laugh and a great personality, and I will always remember her and miss her.  We kept in contact via telephone.  She lost her sister to breast cancer at age 53 back in 2005 and her dad had colon cancer many years ago so she has lost other family members to cancer.

  I am meeting a cancer friend of mine tomorrow for lunch for the first time - she also has Stage 3(c) of UPSC and has had one reoccurrence. She is going through chemo and it came back on her a few months ago. She was done with her initial treatment about a month after I finished mine back in Nov of 2011. She lives in my area about a 15 minute drive from where I live and just by an ironic coincidence last year I had contacted her regarding a legal position at the firm she is working at and I found out through talking with her that she was diagnosed with the same kind of cancer (UPSC). it is so coincidental and ironic so we are keeping in touch.

Jane

 

 

  

Kaleena's picture
Kaleena
Posts: 1226
Joined: Nov 2009

Dancing for joys with you!

HellieC's picture
HellieC
Posts: 460
Joined: Nov 2010

This is the news we all love to hear.  Long may you enjoy your dance with NED.

 

Kindest wishes
Helen

cheerful
Posts: 127
Joined: Apr 2011

Hi Helen:

  Thank you for your very nice wishes - I really appreciate it.  

  I saw that you have had reoccurrences on your blog I will say some prayers for you and I hope that you are doing as well as can be expected.

  I also saw that you live in the England. I have a good friend that I worked with many years ago at a large law firm in Center City, Philadelphia and I had worked there for a number of years and she now lives in Norfolk, England and has lived in England for a number of years. We keep in touch during the holidays with a Christmas card and note. How far are you from Norfolk, England? I am just wondering.

Warmest Regards,

Jane

  

  

 

 

 

 

HellieC's picture
HellieC
Posts: 460
Joined: Nov 2010

Hi Jane

Yes, I have had several recurrences, treated sequentially with radiotherapy, then surgery/chemo, now hormone therapy.  I plod on but the darned thing keeps coming back in my pelvis (but so far nowhere else).  I have just been switched to Provera (a progesterone) as the previous hormone therapy (Letrozole) stopped working after 20 months.  This is a very persistent, pesky disease!  But more and more of us are learning to live with it as a chronic illness and expect to go in and out of treatment as the need arises.

I live on the south east coast of England, in East Sussex, whereas Norfolk is further north, on the east coast.  Not that far in terms of miles, but England is a very congested country and driving distances which would seem very moderate to you are torture here!  However, I have been to Norfolk on holiday and it is a lovely county.  It is quite a flat county, so it is loved by artists, because the skies are so big and the light is amazing.

Kindest wishes
Helen xx

txtrisha55's picture
txtrisha55
Posts: 432
Joined: Apr 2011

Congratulations on your three years.  May you have continued good news. Trish

cheerful
Posts: 127
Joined: Apr 2011

Hi Trish:

  Thank you for your good wishes - as I really appreciate it.  I know you are very close behind me with the time frame as you are approaching the three year mark and I hope you receive very good news as well.

  Incidentally, I was wondering will there be a uterine cancer walk this year as you had done the uterine walk a couple of years ago in the spring.

Jane

txtrisha55's picture
txtrisha55
Posts: 432
Joined: Apr 2011

What I did was the cancer relay for life. It is not just for uterine cancer. There are several in the Dallas area to chose from. I am thinking about joining a fund raiser for kids, it is shave it for kids cancer. I have been bald before and for me personally it was no big deal. I have had several people tell me they will donate  but will not cut their hair.it also us in the Dallas area in May. Trish

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