Mar 27, 2014 - 12:58 am
Our struggles with my mom's PPC continues. In one of my earlier posts I explained our situation (she has/had (?) lymphoma also, you'll see several posts of mine in the NHL discussion boards too). In any case, they said no more chemo and sent us to hospice care on 10/30/2013. Her CA-125 was 245 when released from the hospital after several stays of ICUs for chemo. Two weeks ago it was 5000 and last week 10,000. We don't know how long she has left. For now she gets fluid built up in her abdomen very quickly. Within about 8 days she gains 10 lbs and she's had 3 parcenthesis procedures so far, the last one took out 4.4 liters. Her doctor recommended the catheter (pleurex). It sounds scary. She has a very difficult life as it is with major bloating, discomfort, pain, constipation and the paracenthesis doesn't do much, after the fluid gets taken out it comes back so quickly. When it is out too, she doesn't have much quality of life.
I want to know if anyone has had any experience with a catheter placed in. Can you please share your experience? We are looking into doing it next week. Please advise. Thank you!