Mar 24, 2014 - 11:08 pm
Jim has "Terminal Restlessness" that keeps him moving, jerking, seeing people and things and restless. Anyone have experience with this. I looked it up on line. I know I shouldn't but I never heard of this before and wanted to know. The oncologist added Haldon which helped some but he still could not be still so they shortened time between dose of pain med and Haldon. He did sleep last night but still changed positions a lot. His tongue has been hurting. Oncologist and nurse think cancer has spread to brain. All his vitals are good so nurse thinks he will live a month or more. The pain and restlessness are still not under control but the oncologist doubled both meds and nurse will check him tomorrow to see if he needs a pain patch. One of the sites said that there were two ways to die from cancer, the natural way which is easy and the "Terminal Restless" way which is hard. I can't bear to think of him suffering for a month. I pray they can get the meds right to give him comfort and peace.
The Psalm for yesterday in my prayer book was 46. Verse 10 has popped up in many was this past year and a half. "Be Still and know that I am God!" I am trying to be still and rely on God to provide Jim with an easy passing into his arms.
Thank you all so much for your continued thoughts and prayers.
TODAY, WEDNESDAY IS MUCH BETTER. CUT BACK ON THE AMOUNT OF HALDOL BY A LOT AND THE PAIN MEDS. THIS MORNING HE WOKE ME! HE DOZES A LITTLE AND TIES HIS IMAGINARY FISH HOOKS SOME BUT IS AWAKE MOST OF THE TIME. I THINK THEY OVER MEDICATED HIM. HE KEEPS SAYING HE IS TIRED BUT THAT IS PROBABLY BECAUSE HIS MUSCLES KEPT JERKING FOR TWO DAYS. I WILL TAKE THIS OVER THE LAST FEW DAYS. THANKS FOR THE PRAYERS THEY ARE WORKING. DEBBIE