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2nd scan after surgery(creatinine levels way to high)

bcbigb
Posts: 31
Joined: Sep 2013

well ,I think my scans hopefully went ok because my blood work didnt.My creatinine levels were way to high. Looks like dialisis and on the list for kidney transplant.Looks like the only kidney left isnt working to good.Anyone been in this situation.Can the levels be helped with pills ? See my kidney specalist on next monday will find out more.

Thanks gang 

Brian

icemantoo's picture
icemantoo
Posts: 1481
Joined: Jan 2010

Brian,

 

Less than perfect blood work goes with the territory. That said what are your Creatine leveks, your GFR and your age. Hopefully there is only a concern for the future. Lowering your blood pressure does help.

 

Icemantoo

twinthings's picture
twinthings
Posts: 392
Joined: Jun 2013

Hi Brian,

I can't offer words of wisdom but just wanted to say I'm sorry for what you're dealing with. It must be so scary, the very idea of dialysis and transplant. 

I'm sure next Monday can't come soon enough but, try not to worry yourself sick.  I hope you'll keep us posted, let us know what doc says.  Till then, I'll be thinking about ya. 

 

Sindy

bcbigb
Posts: 31
Joined: Sep 2013

ya it is scary,first the cancer and now this.being only 51 you think you are going to live for ever.If I have to go for dialisis ,its not a death sentence but it is a shitty way of life.hopefully just go for more tests and then go from there.but it will be a long week.

thanks for all your support

Brian

Jojo61's picture
Jojo61
Posts: 353
Joined: Oct 2013

Hi Brian,

I am sorry that you are going through this. I know someone else who lost her first kidney cancer and now she is prone to kidney stones, which poses a problem. Before I lost my kidney, I had very little knowledge of kidney function and health problems due to kidneys. I have another friend who has been on dialyisis for years and years. It is a lifestyle adjustment but he still did everything. I am sure this challenge is very scary for you. My thoughts and prayers are with you. Keep us posted!

Hugs,

Jojo

bcbigb
Posts: 31
Joined: Sep 2013

talked to my sister who is a doctor and she said my levels are high in the low 200but they will just monitor it and they dont do dialysis untill it gets in the 400to 500 range

just get the hebie jeebies around scan time

thanks brian

icemantoo's picture
icemantoo
Posts: 1481
Joined: Jan 2010

Brian,

 

It did sound a little fishy that you went from good bloodwork 3 months out to being on a kidney transplant wait list 3 months later. The nephrologist should be able to keep your kidney function stable and will probably take over your BP monitoring from your GP. One of the things I have learned from seeing a Nephrologist is that maintaining your kidney heath is important to your heart heath down the road and that the effect of bad kidney numbers has more effect on a heart incident than the chance of you needing dialysis.

I am not sure about the numbers you were using as Kidney function is measured by GFR. A number over 90 is good for the general population while a number greater than 60 is good for us one kidney guys. Numbers between 30 and 59 are classified as stage III Chronic Kidney disease (CKD). Most of us with 1 kidney have numbers below or way below 60 anyway. Mine has ranged between 37 and 47 this past year. My age of 70 has something to do with that.

So do not get overly depressed if you are classified as Stage III CKD now or at some time in the future. The bark is worse than the bite.

 

Icemantoo

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hydration is very important to kidney function.

twinthings's picture
twinthings
Posts: 392
Joined: Jun 2013

I have overreacted a time or two...OK, more than a few times.  That makes us normal.  It's OK.  Probably won't be the last time you overreact, cancer tends to do that to a person.  Hopefully, your docs will get you straightened out and you can relax a bit.

 

Sindy

 

GSRon's picture
GSRon
Posts: 1185
Joined: Jan 2013

Since you are talking Creatinine, I suspect the numbers are 2.00 then 4.00 and 5.00..?  If so that makes more sense to me.  Post surgery my Createnine went up to 7.80 range, due to all the dye used during surgery (mine was more complex than most).  But it took  10 days for it to come down.  Here is the key thing, Diet.  What you eat will influence the test results.  So, if you have not changed your diet, then perhaps it is time to do that.. especially with one Kidney..  Remember, water is your best friend..

Ron

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