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How Much Do You Drink?

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

And no, I'm not asking about booze (per se). I wonder how much fluid you drink in a day, including water, coffee, tea, milk, juice, sodas, and also any booze.

I am still having problems with low blood sodium. After my first chemo, my sodium dropped to medical emergency levels and I wound up in ICU. My levels still haven't recovered back to the normal range. I don't have any symptoms or problems from it, and there may be no clinical significance (this may be my "new normal") but I don't have much of a bumper before I get in an emergency situation. My daughter-in-law, an Oncology RN, told me that in her 10 years experience, she has only seen this 2 times. 

Meanwhile, I have been put on fluid restrictions in an attempt to get my sodium level to rise. I was also given a prescription protein supplement. What protein has to do with sodium is a mystery to me.

I miss my beverages--my cups of tea in the morning and afternoon. A glass of water always in reach, or a bottle of water in the car. My evening Coke. I'm supposed to suck on candies or chew gum instead of drink. I feel so thirsty and a little obsessed about getting a drink. 

So I am curious about how much other people drink?  

Cheers,

Rocquie

 

 

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1366
Joined: May 2012

Rocquie,

In the summer, after a morning start of three or four cups of coffee, I will drink a gallon of iced tea by myself. I might add two or three beers late in the afternoon.  I might have 3 or 4 cups of water also, mostly when downing meds.  Occasionally I substitute green tea for iced.  I have not drank a carbonated drink in years, due to my reflux. I seldom drink milk at all, and never liquior, just beer for alcohol.  I guess I intake a lot of fluids daily.  I weigh about 165, and have never had my electrolytes out of wack.

Relevant to the discussion of fluid intake.  A friend at work a few years ago announced that his sister had died. Since he was only about 30, I asked how old she was, and he replied "27."  It seems she died of "water intoxication," a condition in which too much water intake reduces electrolytes to the point that death results.  In recent years it has mostly occured in relationship to certain fad diets.  He said that when she went into ICU, the docs said her condition was "untreatable."

max

 

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

I have always drunk a lot of liquids too and before lymphoma never had any problems. It is a lingering side-effect.  I switched my morning "cup", which was actually a 12 ounce mug, not a cup, to a 7 ounce old fashioned cup and saucer. I also like an occasional beer or glass of wine, and haven't had either. Rather than have a glass of water on my desk, I go to the kitchen and measure out anything I drink so I can write it down. I will have my sodium checked again on the 31st. It will be interesting to see if it changes. 

Water intoxication is exactly what I had in the hospital. The electrolyte drop was caused by the cytoxan and compounded by the continuous IV fluids I was being given.  

Tomorrow, will you drink a cold one for me?

Rocquie

 

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Hi Rocquie,

  I drink 3 to 4 cups of coffee in the morning,medium size cup, and then the rest of the day I drink water. Probably 40 ounces or better over a 12 hour period. I don't drink any soda pop...chemo ruined that for me. I enjoy a red beer now and then, but thats it when it comes to alchohol consumption. I do like V8 juice, but it doesn't like me...terrible heart burn when I drink it, same with orange juice and lemonaide. Water is my main fluid. I put milk on cereal, but never drink it by the glassful. I always have a glass of water close by,and take a bottle of water in the car when we go out. I hope I'm not drinking too much of it...always thought drinking plenty of water was good for a person. I'll have to research about water intoxication, thanks for mentioning it, as I've never heard of it before. Take care...Sue

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

I think if the amount of fluids you drink each day has not caused you any problems, you are just fine. I was not trying to sound any alarms, I just didn't quite believe the Doc (a Kidney specialist) when he told me how much people average drinking in a day. 

As far as water intoxication, I mentioned how I got it, which was under extreme conditions. I think one would only have to worry about that if they suddenly INCREASED their amount of water consumed by a very large amount in a short time. 

I hope more people will "measure in" on their liquid intake. I am very curious (and confused!!) about this subject.

Hugs,

Rocquie

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1366
Joined: May 2012

Rocquie,

I most certainly will drink a cold one for you tomorrow.  My internal med doc now lists all upcoming doctor visits that I have, even outside his office. My oncologist scheduled me for a consult with a lung specialist recently.  The printout from my internal med guy lists the reasons as "COPD, Chronic Wheezing/Rales."  I have been staggering at times lately (without any alcohol !) .

I'll drink for you, you take a breath for me; together we will get through all of this .

max

.

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

Max, I'm really sorry to hear about your breathing problems. In the beginning of my Lymphoma journey, I had to use an albuterol inhaler; it didn't get rid of the problem, but it helped. (I had a pleural effusion and once that was drained, I could breath again). Have you tried using one? That staggering must be really disconcerting!

So, yeah, sounds like a plan--you drink for me, I'll breath for you, and we will get through this. . .

Hugs,

Rocquie

 

 

anliperez915's picture
anliperez915
Posts: 770
Joined: Sep 2011

Hi Rocquie,

I drink a lot of water during the day because I was told by my Onc and Nurses to do that...in the mornings I only drink a cup of coffee and I don't drink soda either. Sometimes I will have a beer or some Tequila :D

I did know about water intoxication but not sure of the actual amount of water to get that...I drink about 3 or 4 16oz of water bottles...I don't know if that's a lot but I've being doing this for years. And I also live in a desert which just makes it really hard not to ")

I hope your levels go back up, I remember that my mom suffered from this but it was because her protein levels would go really low. Take care sweetie (((Hugs)))

Sincerely,

Liz

jimwins's picture
jimwins
Posts: 2109
Joined: Aug 2011

Hola Liz. Usted, bebe tequila - ¿en serio?

Hi Liz.  You, drink tequila - really?  Wink

Nice to see you on.  Hope you're doing well my friend.

Hugs

anliperez915's picture
anliperez915
Posts: 770
Joined: Sep 2011

Hi Jim,

Hahaha I read through allll the post and you guys are just too funny!!! You guys made me laugh so much that people here at work were starting to think if I went loco :D

Confessing here...I do drink Tequila just don't tell my dr ok!!! Hehe

hope you're doing better including the wax build up lol!

Take care buddy, sending you and everyone here a huge HUG!

p.s. I went to California for Spring break and to the sin City (Las Vega$) lol...I had a great time! Just got back on Friday and I'm also moving from house, did that over the weekend so haven't had a lot of time but will try to play catch up!

Sincerely,

Liz 

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

Thanks for your response and I hope you are well. The amount you drink sounds like what my doctor would call a normal amount, though I can't have that much right now. I used to drink much more than you. 

Interesting that you mention your Mom's protein levels. The doc does have me on a protein supplement but I don't understand the connection between sodium and protein. Plus, my blood protein level is in the normal range. I think it has to do with the BUN/Creatinine (whatever that is).

Hugs to you too. . .

Rocquie

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1366
Joined: May 2012

I have to-date never used an inhaler. I guess that is my next Christmas stocking item to request:  "Inhaler for Max." I can envision it in a pretty green and red box... 

I have discussed Bleomycin at some length here in the past. I figured it was one of those odd, rare things that only geezers who have had their chest sat on by an Oldsmobile get, but when I went for my blood draw at the cancer center this winter we somehow got on the subject of it and the RN doing my blood draw said, "Oh ! My husband took Bleomycin and hasn't been able to breath since.  He is applying for disability now."  I guess he is about her age, or between 27-30. 

I guess it is about time to look into it...I have only been unable to breath for almost 5 years. I went for my 3-month check about three years ago and my onc and his regular NP were out, so I saw another NP from the office.  We spoke our "hellos", and she said how are you and I told her "great," and the first thing out of her mouth was "Why can't you breath ? What is that ?"  I told her I was breathing better than I had in two years, and that the doc had told me that the lung toxicity would eventually clear, but othertwise it is untreatable.

It did leave me thinking, however, and told me that my condition was immediately apparant to anyone I meet.  My boss, who I might see 3 times a year (I work independently and remotely in an area), told me over the phone last fall, "At least you are not hacking like you are about to fall over dead."  It actually did make me feel great, knowing I had not coughed in several days.    My wife makes me avoid social gatherings; says people assume I have something contageous (I do not not), and that it is annoying, so I stay home alone, with all of my friends.  I just pretend she is the web administrator....   

I am going for that drink ! Sealed  It is 6:00 PM somewhere, maybe where that Mayalasian jetliner is circling the earth for the 25th time since vanishing.  It is probably parked at JFK, loading fuel.  NSA can find what the last thing your nephew Howard texted to his girfriend was, but not a Dreamliner 777 with 280 souls on board.   I was on a boat once that had to emergency flash traffic to the Fleet that we were in extremis -- a Latin medical term used in navigation, meaning "at the point of death," so I feel some empathy with them.  I have only been told that I was about to die four times in my life, so I guess I have a good 5 incidents remaining, or so says my cat.

.

jimwins's picture
jimwins
Posts: 2109
Joined: Aug 2011

Well, Rocquie will breathe for Max and Max will drink for Rocquie.  I occasionally have problems with constipation so who will do "that" for me ?  Embarassed Surprised  I'm thinking there's a guy in NC whose name is like a snake?

Hugs and smiles...

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Yep,  that's me. Gotta go take a "Jim" so I have to cut this short. Yell  John

jimwins's picture
jimwins
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LOL - yes and think about you name, "John" ;).

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

I'm glad you came out to play today. . .

Rocquie

 

 

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
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Joined: May 2012

Jim,

We may be taking the notion of "surrogate" to its final limits here !

jimwins's picture
jimwins
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Hopefully I wasn't too off color - I just couldn't resist and I brought John out of hiding and got some grins too I hope :).

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

Jim, I was going to tell you he probably couldn't do it for you because he may already be full of it. 

Maybe you don't drink enough fluids??

Cheers,

Rocquie

 

 

 

jimwins's picture
jimwins
Posts: 2109
Joined: Aug 2011

It's a good day to pick on John I guess ;).  I probably don't drink enough at times and I need to eat more fiber and do some more exercise.  I also probably have too much coffee in the mornings (2-3 cups usually).  I just couldn't resist finding some humor - you know me ;).

 

 

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Well I guess you know that's how John Wayne got his nickname , "THE DUKE"...It just wouldn't work for him being called "THE JOHN"

 BTW: Is this Lymphoma related?Tongue Out

 Also Jim, I read where eating fat crayons with all that wax can really plug you up. LOL !!!!!!!!!!!Yell

illead's picture
illead
Posts: 607
Joined: Aug 2012

Yes, it's good to hear from you John, I knew you were lurking out there somewhere.

Becky

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I am here everyday. Been traveling a lot lately. I travel from one Dr. to the other. AHHHH!!! the joys of getting old. The Golden years is nothing but the sound of the gold leaving my pocket into the Drs. pocket. Seems to be flowing more quickly now that this GREAT health care plan is taking hold. John

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Dang...couldn't stop laughing! Glad to see everyone in good spirits! You need to come out and play more often John.Wink The large waxed crayons comment left me with a visual that made me laugh out loud.Laughing Sue

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Sue,

  I been telling Jim all he has to do is sit on a hot heating pad for a few minutes and that should cure his problem. That big crayon wax will melt and problem solved.  John Yell

jimwins's picture
jimwins
Posts: 2109
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I think I have seen some of that in modern art museums, John Tongue Out. Thanks for making me laugh - I've been having a "jimmy" day.

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Jim,

  On the serious side though and I guess I do have one believe it or not. The Dr. I go to for my Colonoscopy told me to never use milk of mag, exlax, epson salts and most of off the shelf stool softeners. He said that will really mess your system up. He knew how chemo drugs and other drugs can throw your plumbing off and gave me a prescription called POLYETHYLENE GLYCOL 3350. It's by prescription only, but the best stuff out there. He said you can use it prn with no side effects. If ever need a refill just call the office. John 

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Rocquie,

   As Sue says it's good to have a little humor and good spirits once in a while. Got to go !!! I got a "JIM" coming on. JohnMoney Mouth

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

John, not to worry. . .Jim knows I have a sense of humor or he wouldn't have started smarting off on my thread. Only thing is I was trying to ask a serious question about #1 and he started in on #2. 

Gotta roll with itSmile

Rocquie

 

jimwins's picture
jimwins
Posts: 2109
Joined: Aug 2011

Rocquie, that was funny and really made me laugh.  I didn't mean to distract from your post but laughter is good for us!

Hugs

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

At least I said roll WITH it. . . 

epicc's picture
epicc
Posts: 137
Joined: Nov 2012

Roquie,

I brought up this subject last year when my mom was going through her chemo.  After her second treatment her sodium dropped to emergency level that sent her to the hospital and then ICU.  She actually went into a coma.  Finally when they got her sodium levels to return, she woke up.  We called a very good kidney specialist and she monitored my mom and put her on a medication that brought her sodium to normal levels   The cancer and possibly the chemo had alot to do with it.  But, when my mom's chemo changed from R-CVP to Bendimustine, the sodium levels went back to normal.  Not sure if your doctor would consider using the medication.  Good Luck.  This is the first time anyone here spoke about the sodium level.  Hope I was of some help.   Emily

 

Rocquie's picture
Rocquie
Posts: 579
Joined: Mar 2013

Thank you so much for your reply. I read your post about your Mom's sodium and her diagnosis of SIADH, which was also my diagnosis. Your post was the only reference to the subject I found. I was also in a coma. They brought my levels up with a very concentrated sodium solution. Though not all the way up to normal levels and my sodium has not reached more that 130 (normal range 135-145). Two weeks ago, it was 125. My SIADH diagnosis was over a year ago.  

I am also going to a kidney specialist. You don't happen to know the name of the medication your Mom took do you? Right now, the doctor has me on a protein concentrate and very limited fluid intake. I will have my sodium checked again on the 31st.

I also know from reading past posts that your Mom lost her battle with Lymphoma and I am very sorry to hear that. I know you were a loving daughter and outstanding caregiver to her. Many hugs and my deepest condolences on your loss.

Thank you again for your reply,

Rocquie

 

 

epicc's picture
epicc
Posts: 137
Joined: Nov 2012

Rocquie,

SIADH,,how could I forget.  Wow, i blocked it out.  Rocquie, it was a very crazy time for us.  My very close friend is a RN and Kidney Dyalisis nurse.  She had connections with a very good specialist.  I was able to call my doctor at anytime of the day.  The first medicaton which was the least expensive did not work.  They had to switch her to the most expensive one.  Her sodium was monitored once every few days.  Rocquie your numbers are very low.  130 is passable, but the 125 is not good.  I wish I could remember the name of the meds, however, if you google SIADH I think they list it.  If not, I'm seeing my girlfriend tonight and I can ask.  It was a very difficult 6 months for me and my familiy.  We just hit the one year mark and it doesn't get easier.  Everyday is a constant struggle and I miss her so much.  Her lymphona was a very rare B cell called Intravascular Lymphoma.  She was very healthy for 82 years.  I guess I should be thankful for that.  This cancer took her in 6 months.  Not a lot of time to prepare.  I hope your sodium starts to go up.  Please let me know how you do. 

 

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

Emily,

  So nice to see you are still with us with the posting. So many have desserted us, but you have stayed on even though your mom has passed on. Hope you are doing Ok. John

epicc's picture
epicc
Posts: 137
Joined: Nov 2012

I could never leave.  I care too much about all of you.  I especially love your posts.  You are so entertaining!  And right!  I was so surprised to see someone with SIADH.  Last year noone had heard of it.  It was so fustrating.  It also went away on it's own.  I hope they give Rocquie the meds.  They worked very well and took the worry away.  I hope you are doing well John.  I'm hanging in there.  I have a wonderful support group.  But, I have my days.     Emily

epicc's picture
epicc
Posts: 137
Joined: Nov 2012

I could never leave.  I care too much about all of you.  I especially love your posts.  You are so entertaining!  And right!  I was so surprised to see someone with SIADH.  Last year noone had heard of it.  It was so fustrating.  It also went away on it's own.  I hope they give Rocquie the meds.  They worked very well and took the worry away.  I hope you are doing well John.  I'm hanging in there.  I have a wonderful support group.  But, I have my days.     Emily

GKH
Posts: 370
Joined: Jul 2012

I have about 4 cups coffee, ice tea at lunch, then at least 2 liters of water every day, sometimes more. No soda or beer., but an occasional glass of red wine (maybe  2 glasses per week) and a martini on our monthly nite out with our friends. I could drink scotch every day but seldom touch it. My wife always gets me an expensive bottle of single malt for my birthday. That usually lasts about 3-4 weeks. Straight, no ice! I am so glad God made Scottish peat bogs.

COBRA666's picture
COBRA666
Posts: 2418
Joined: May 2010

I drink about 3 cups of coffee in the morning while surfing the computer. I do drink about 2-3 glasses of iced tea a day. I used to drink water, but not as much as before or as I should. Maybe a soda a day. I do not drink beer, wine or hard liquer. Being from NC I am sure glad God made Copper stills, copper tubing, corn, sugar and yeast. And the band played on. YaHoo !!!!

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