CSN Login
Members Online: 14

Karl (Shoopy...How are you?

allmost60's picture
allmost60
Posts: 3154
Joined: Jul 2010

Hi Karl,

 We are all wondering how you are doing? Check in when you can, or feel up to it. Keeping you in my prayers. Love...Sue

(FNHL-stg3-grd2-typA-Dx 6/10-age 63)

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 1018
Joined: May 2012

Sue,

I was wondering about Karl myself yesterday and today.  He said in a post from a week or two ago that he was
going to "take a break" from the Boards for an indefinite period of time.   I hope he updates us soon.

max

Shoopy
Posts: 210
Joined: Jul 2013

I was hoping to take a break after I got through SCT.  However, it's more of the roller coaster and things getting serious.  The regimen they put me on after Revlimid worked for the first week but not the second.  The regimen was R-GemOxy.  So, we took a week to look at all the options including clinical trials and CART-19.  CART-19 would be my ideal...but this cancer would need to sit there for 5 weeks without chemo...and it just won't do that.  So, last Monday we decided on doing a regimen of EPOCH-R with Velcade.  I started Tuesday here at Area 51 (Roswell).  Should be finished on Sunday.  Everything seems to be moving in a 'good' but slow direction so we'll see soon what happens with the numbers.

I don't know if I told you but we have a perfect match donor...my brother!  He is so happy as am I.  Now...we need this new regimen to get us to the spot we can start the allo SCT.

I plan to live forever...so good so far

Karl

Rocquie's picture
Rocquie
Posts: 465
Joined: Mar 2013

Karl, I love your attitude. I love your fighting spirit. I love the determination of your health care team, there at Area 51. I love, love, love that your brother is a perfect match donor and is as happy about it as you are. 

You really are going to live forever!

Love, hugs, and continued prayers,

Rocquie

 

 

jimwins's picture
jimwins
Posts: 1984
Joined: Aug 2011

Glad your brother is a perfect match!  Love your attitude also.  Now be careful of those aliens at Area 51 and their "probes" :).

Hang in there!

Jim

Shoopy
Posts: 210
Joined: Jul 2013

Yeah...they are giving me the prednisone right at 9pm...by now I would welcome a probe...

MChantal's picture
MChantal
Posts: 94
Joined: Apr 2013

Sending every bit of positive thoughts your way!

I am so happy your brother is an absolute perfect match :)

 

Michelle

allmost60's picture
allmost60
Posts: 3154
Joined: Jul 2010

Hi Karl,

 You amaze me! I'm so happy your brother is a match for you...wonderful! Hang in there friend...you are an inspiration!

Love and prayers...Sue

(FNHL-stg3-grd2-typA-Dx 6/10-age 63)

illead's picture
illead
Posts: 489
Joined: Aug 2012

You're right Max, I forgot Karl was taking a break, I don't blame him.  Just hope that's all it is.

Becky

illead's picture
illead
Posts: 489
Joined: Aug 2012

So happy you are okay, but know you have a long road ahead.  You give Bill and me strength with your positive outlook.

Forever prayers for you, B&B

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network