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This poor kid beat kidney cancer 4 times and now is dying because a drug company won't give him a drug to fix him in 2 weeks

nyisles's picture
Posts: 27
Joined: Mar 2013

This is crazy.  You have to read this story to understand. A fellow kidney cancer patient has beated this disease 4 times and is clear of cancer but has a blood infection that a drug will fix but is not being given by the company because it is not approved by the FDA and they say they have "no money" yet the government just gave them $72 million.  Sickening.



icemantoo's picture
Posts: 1857
Joined: Jan 2010

Accorgind to news reports the drug company revesed their decision. Hopefully Josh can pull through.




angec's picture
Posts: 734
Joined: Mar 2012

The latest is that he is now going to get the drug. Praying this little guy makes it through. He has been through severe trails for his young life and is a fighter! The reason the drug company changed their mind is because many people called, wrote to them, started petitions and made alot of NOISE!  That is the way to do it!  Some people even threathened them and their families. Too bad it had to get to that, but you can see the anguish people go through.  It is a shame that people who need help have to go through so much to get it.  The drug should be approved around 2016. Perhaps the fight should be stronger to make the FDA approve drugs quicker if they are shown to work as well as this one!  Keep fighting, little man!

GSRon's picture
Posts: 1306
Joined: Jan 2013

I heard a slightly different story...  I heard the FDA agreed to allow it and not jeopardize the potential to get this drug approved.  Sometimes there are hard decisions to make, and I am glad I do not have to make them...


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