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Scared

stephanie0913
Posts: 6
Joined: Mar 2014

Hello Everyone,

I just joined this site because I was browsing for information and found many answers on here. I am a 42 year old woman and I have a 1 inch tumor on my right kidney and it has to be removed. I will be scheduling a robotic partial nephrectomy soon but am really scared. Do you all have any advice or stories that you can share good or bad that will help me know what to expect and how to prepare for life after the surgery. It sounds like I will be out of work for about a month and it will be very painful during the recovery period. Should I be prepared to sleep in a recliner instead of my bed? 

Any help would be so appreciated

sblairc's picture
sblairc
Posts: 141
Joined: Feb 2014

Hi and welcome. I joined this forum last month and everyone here is so nice and extremely knowledgable. I am 38 and I come here for information and support for my 47 year old husband that had a robotic radical left nephrectomy almost 6 months ago. He was in the hospital for a few days after his surgery. The great thing about robotic is that you have small incisions, tiny ones really. That will help the healing process and I understand that means recovery time is lessened. He had no problem sleeping in the bed and as long as he followed a regular schedule for his post operative pain meds his pain was reasonable and well managed. He tired easily and napped a lot which I think is to be expected. Walking was very important and we did that regularly at short intervals until he could do longer ones. 

We didn't want a tonne of people visiting during flu season. I made a sign and taped it to the door to keep people from visiting. Othewise, the nurses just told everyone to "come on in" and my husband didn't want a tonne of people in and out. We didn't know that was how it worked so if you want privacy, get someone to tape a sign to the door. I'm sure others will pop in with some advice this is a great place to be for information and support. 

 

icemantoo's picture
icemantoo
Posts: 1593
Joined: Jan 2010

Stephanie,

Being told that you have Cancer and that you are having major surgery is enough to scare the s--t out of anyone. It sure scared me almost 12 years ago when I found out at a then young 59. It also scared Faye across the street when she was 64. She is 82 now.

Like you mine was about 2.54 cm (1") when discovered although 4. 2 cm after it was out.

The surgery is anything but fun, but at 42 you should have it easier than most.

Your chances for a full cancer free recovery with such a small tumor are as good as they get.

Yes, you are going to be uncomfortable for awhile after the surgery, but it beats the alternative.

Icemantoo

garym's picture
garym
Posts: 1651
Joined: Nov 2009

His surgery was before the robot was invented...DaVinci had to do the surgery himselfWink

mdb2387's picture
mdb2387
Posts: 8
Joined: Mar 2014

Iceman we have very similar stories..When a solid mass was discovered on an ultrasound looking at something else I started down the path.First an MRI then CT..I looked on the internet and read that stage 1 kidney cancer had a 60% five year survival rate and that it was the most deadly deadly of the urinary tract cancers..My sister who is a nurse told me to stay the heck off the internet and I've never searched the subject again..All three scans put the tumor in the 3 cm range..When I finally sat down with the urologist three weeks after the first scan he said I was a good candidate for a partial and that the cure rate was 94%!!.He also said these tumors were slow growing .Needles to say I left feeling better..This was June 2012..The robotic surgery was done 8/23/2012.The tumor was 4.25 cm when it came out.I asked the surgeon if it had grown by a third in 2 months..He said probably not and that scans probably didn't provide an accurate measurent.When I had my first follow up scan and ran that by the radiology tech he bristled and said the scans are very accurate.So I worried about that.I get scanned every 6 months and also have a chest xray.So far so good but every 6 months I have a hard time when the time comes..I just found this site today..I wish I had earlier. Reading stories like yours helps..Thanks

garym's picture
garym
Posts: 1651
Joined: Nov 2009

We are changing the odds every day! Its been over four years for me, small tumor full nephrectomy, ten years before me my father-in-law was diagnosed and there was nothing they could offer other than keeping him comfortable. Today there are many therapy options and many success stories, trials and drugs that are working and more in the pipeline. I predict that ten years after the cure is found the internet will catch up.

icemantoo's picture
icemantoo
Posts: 1593
Joined: Jan 2010

Mdb,

The CT tries to measyre a 3 dimensional object for which the radiologist may not always measure accurately and then it may grow a little. Who knows?

 

Icemantoo

 

stephanie0913
Posts: 6
Joined: Mar 2014

Thank you for the kind words and support. I actually am battling the flu or bronchitis right now. I tried to get the doctor to schedule the surgery later (like next year...lol) because I have the flu right now but he informed me that I should be better in 3 weeks so let's press. :) I've read a lot of posts about people napping a lot or being really tired post surgery. Is this your bodies way of forcing you to rest so that it can heal or is it the meds that causes the fatigue?

I will make sure that no one who is sick comes to visit. This has been a crazy winter season.

sblairc's picture
sblairc
Posts: 141
Joined: Feb 2014

I think it just takes a lot out of a body.  I also think his sleep being disrupted all the time in the hospital for 9-10 days didn't help the situation. He became nocturnal for several weeks post surgery.  I was glad his body was forcing him to rest because I was really afraid of becoming the "nap police" and really worried he would do too much and bust his internal stitches. My hubs is such an active guy I was afraid he would rush the recovery. It was a humbling experience for a person used to being in control of everything. Best of luck to you. 

Skagway Jack's picture
Skagway Jack
Posts: 79
Joined: Oct 2013

We all have the distinction here of loosing some or all of a kidney. This dubious honor will make you at home with the folks here.  I had a full right nephrectomy via open surgery. I got a whopper of a scar and I nick named it the "freak show". I slept on a recliner for about 2 -3 weeks. I went back to work by 4 weeks, but that varies a lot depending on your employment and health variables.  Pain is an individual thing.  In my case I used pain meds for two days in the hospital.  I had them pull the morphine drip at about 48 hours, and I quit using tylenol by the end of the first week.  Havent had any pain meds since then, roughly 6 months ago.   I still have numbness in the stitches, occassionally some minor back pain, but overall I would say i feel great. Robotic  surgery is less invasive so you will do great, just keep a positive attitude and the rest will take care of its self. 

 

stephanie0913
Posts: 6
Joined: Mar 2014

Thanks for the kind words. You've provided insight for me on what to expect. Unfortunately, I have low pain tolerance so I may be drugged up for weeks...but I always have an upbeat and positive attitude so I may be down but it never lasts for long. All I need is sunshine and fresh air to perk me up.

Darron's picture
Darron
Posts: 224
Joined: Jun 2013

I'll start with the beat coincidence. A good friend of mind, also Stephanie, had a 3 cm removed with a radical just about 61/2 years ago. It was comforting for me when I was diagnosed to have a friend that had been thru it. You now have about 1000 experienced friends on line. She has been cancer free since surgery, as you will be as well. 

Surgery is painful, but not unbearable. The wits pain was from the gas that was in my abdomin mode up to my shoulder. Just a solid ache that wouldn't go away. Take it slow, deunk lots of water, walk as soon as you can, slowly and don't over do it. You will be fine.

I had a hand assisted radical for a 17 cm tumor, and I was back at my desk job in about three weeks. That is pretty quick, and I didn't do 100% full days starting off. I was able to sleep in bed. Getting in and out if bed was the hard part, laying down was easy.

it is normal to be scared, but have faith and confidence that you will be well soon. Ask your new friends all the questions you need. We are here to help and support.

 

 

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Hi Stef... scared..?  Really..?  You bet..!  All of us were scared big time..!!!  The fear is far worse than the reality... trust me on that one please..!  Your tumor is tiny compared to many here.  This means you most likely will be Cancer free... but I gotta tell it like it is.. it could come back.. you are most likely in the high 90+ percent range but no one is 100%.  You will need follow up.. do it..!  Kidney Cancer (rcc) is sneaky.  On the surgery, with the procedure you are getting, then you may be pain free just hours after surgery.  They will give you pain meds, take them as needed..!  Yes you will need to rest up, and you will be tired a lot and sleep a lot.  Even once you feel good, you must not do anything strenuous for at least a month.  You may feel healed but your body may not be fully healed on the inside.

What is important, is that you have the right doctor and surgeon.  This is extremely important.. find out how many of these surgeries this doctor has done.  You do not want a small town doctor, that won't do.  Like I stated, rcc is sneaky... and you do not want anything to be missed.

Good Luck... holler back at us any time you feel the need... lots of good folks here to help you...

Ron

stephanie0913
Posts: 6
Joined: Mar 2014

You guys are so awesome. Thank you Darron for sharing your experience with gas. My aunt had surgery and gas was her biggest hurdle as she was recovering. I wouldn't have thought of it if you didn't post this. I will make sure to take walks(slow and short ones at first), drink plenty of water and stock up on ginger ale and gas-x. 

Back to work in 3 weeks is amazing and thanks for telling me about the half days. Maybe if I have to return early I will but start off with half days. How have you been since the surgery?

garym's picture
garym
Posts: 1651
Joined: Nov 2009

Hi Stef,

It may not seem like it, but you are very fortunate to have been diagnosed at such an early stage, the odds that you will be and remain cancer free following surgery are nearly 100%. Everyone here has been right where you are, we understand what you are going through, and we're here to help any way we can. This is not going to be as bad as your imagination will make it out to be, keep your mind off it be staying busy, and daily exercise starting now will be a big help during recovery. At only 42 you can look forward to another 50 years of living.

Godspeed,

Gary

nsb748
Posts: 61
Joined: Feb 2014

Stephanie, 

if you are looking for support and knowledge you have come to the right place.  I actually have my partial nephrectomy today in about 4 hours.  From reading everyone's stories in here, and talking to people, I have gone from terrified, to mildly annoyed.  I'm sure you will do the same.  

you will be just fine, and should be able to look back and laugh about this later in life

 

 

 

foxhd's picture
foxhd
Posts: 1951
Joined: Oct 2011

now I think I'll permanantly cpoy this to all new nephrectomy patients.

Go get'em Steph! I've been here so long now, that I don't get concerned or worried when people are scheduled for nephrectomies. I get excited for them. It may very well be the most important thing they ever do for themselves and their families. I may be a little warped. (ok alot warped). But when people are frightened of the procedure and the pain, I smile. We've all been there. It gets better.

Make sure you get an oncologist, regardless of what your primary or surgeon says.

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

NSB, I like your attitude..!!  "mildly annoyed".. love it... see you after the deed is done..

 

Oh and Stef... in case you did not know, Gary is our resident comedian... and of course he delivers..! Laughing

Ron

garym's picture
garym
Posts: 1651
Joined: Nov 2009

CRAP...now fox is going to be calling me for pizza and beerFoot in Mouth

stephanie0913
Posts: 6
Joined: Mar 2014

Thanks so much. I'm taking all the advice and getting ready. 50 more years huh? I hope so Smile

CommuterMom's picture
CommuterMom
Posts: 120
Joined: Jan 2014

Hi Stephanie,

I had a robotic partial on 2/13/14 and was back and work on 2/24/14.  The pain for me only lasted a few days and mostly only hurt when getting up from a seated or lying position and when bending.  The incisons didn't really hurt much at all and are fading fast. 

good luck!

Diana

stephanie0913
Posts: 6
Joined: Mar 2014

Wow! I didn't expect so many great responses. You all have really made me feel much better. I feel crazy because I am active duty Air Force and I have a ton of responsibilities at work. I feel so guilty for feeling this way but this is the worse timing ever. I feel like I just don't have time to be sick right now. And I'm so used to taking care of everyone else and being so tough on the outside that I don't know how to express how truly terrified I am to those around me. I am single with no children and find it so hard to reach out for help. I am the one who helps everyone else so letting people see me in such a vulnerable state is hard. Your words of experience and kindness has soothed my spirit.

I'm afraid to be vulnerable, of letting people down of being in pain of hearing that the cancer has spread or returned. There is a lot going on in my head right now and it seems that all of you have been there done that :) Thanks for sharing.

As far as I know, my doctor is one of the top urologists and kidney cancer specialists in the country. I am happy that I was referred to him because the first doctor that the military sent me to was very unsure of himself. He is the one who referred me to the doctor that I am currently seeing. My surgery is scheduled for the 25th of this month and I have a lot of time to prepare myself for whatever happens.

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Oh yes.. as you can see a positive attitude helps...  I am one of the less lucky ones around here..  I thought I would not make it through the surgery.. WRONG..!  So, once I woke up I wanted to jump for joy.. !!  

Now the pain part, the pain comes on fairly quick, so any hint of it coming on is when you want to start pushing the button for more drugs.. it takes time for the drugs to kick in, so you do not want to wait.  And really I expect it not to be that bad.. but we all are different.. you will just have to find out..!!

On gas.. I had NO problems with gas.. now anyone that DARED to come in the room, well they had a problem for sure..!  Same with that first B.M., I had no trouble there either.. but could not get any privacy... heck the nurses had to evaluate the remains...  I do feel sorry for those nurses..!

Speaking of nurses, it helps to be nice and friendly... (flirty in my case)..  I was not allowed to get food for several days, but I got popsickles at 3 AM..!!  I still remember how good those popsickles were..!  (I had the extra heavey duty surgery, yours will be a lot easier, guaranteed..!!)

So now you see both ends of the surgery spectrum, we got Commuter Mom that was in and out so fast it is amazing.. me and a few others, well not so fast.. don't really matter..  Once the deed is done a big weight will be lifted off of you.. the sooner the better.  The waiting does not help..

Oh yes, I do not think anyone mentioned water.. drink a ton of water from now until surgery time.. or when they tell you to stop.  Water is your friend, forever..!  

And yes, getting up the first few days can be very painful.  In fact I quickly learned NOT to let the nurses touch the bed raise / lower functions.  Slow and easy works.. fast does not work.  So I took charge of the bed remote, moved it up real slow.. allowed my body to adjust...  That made it nice..!  Oh and the sooner you get up to walk the better, in more ways than one.  Walking helps the healing process, plus you get to use the bathroom instead of a bed pan.  Trust me the bed pan is awful..!  The second day they brought me a portable commode.. that worked, just zero privacy.. after that I walked to the bathroom, ah.. 

Hang in there... you got like just over 2 weeks...  feel free to holler at us at any time..  Usually someone is here darn near 24/7.

Sorry for the long...... message.......

Ron

mdb2387's picture
mdb2387
Posts: 8
Joined: Mar 2014

Stephanie..I had a partial robotic August 2012.I started at 4:30 in the afternoon and was not bad at all.I was up walking at 11 PM and they actually wanted to discharge me at 8 AM the next day..I had a slight problem though in that they filled my bladder and said they would let me go as soon as I urinated..I don't know if it was because I had never been catheterized before or what but it took me until 4 that afternoon to go..I swear that the only real pain I had was from straining all that day..I was working at home two days later(very much against doctors orders) and went to a labor day party 8 days later.I only took one pain pill after being discharged.18 months later and you have to look really hard to see the tiny scars..You'll do well I'm sure

DSFrey's picture
DSFrey
Posts: 57
Joined: Jan 2014

Granted it might not be your favorite piece of cake, but the robotic surgery is quick and nearly painless. I had mine a couple weeks ago and was off the morphine drip within 2 days was home on the 3rd day and off prescription pain meds within 5 days. And the pain was never really that bad. Your body will generally let you know when you are about to push it too far. The only reason I'm not back at work yet is my employer wanted me to stay out the full 6 weeks so that I could return to my job without special provisions, since it generally involves some heavy lifting. So now I'm basically at a point were I'm largely healed, just no heavy lifting, and I'm getting paid for it too! A paid 6 week vacation is nearly what it amounts to in my case. Good luck!

JoanneNH
Posts: 57
Joined: Sep 2013

I had a laparoscopic full nephrectomy in September.  I'll give you some suggestions.   If the anesthesiologist offers an epidural, do it.   I went into the radiology suite, got onto a special bed, face down, and that is the last thing I remember until I woke up in the recovery room.   The epidural numbed the surgical site until they took it out.  I also had a button I could press if I needed pain med, but it turns out I really didn't need it with the epidural in.  After the epidural was taken out, I did have strong pain but I took oral pain meds at the max dose at the soonest allowed interval.  I told the nurses/doctors I wanted to keep on top of the pain and not let it get too far along before getting meds.  They totally agreed.  I was able to wean off of it within a week of being home.   I didn't get morphine or any of the oxys.  They decided to give me dilaudid.

You will probably have a Foley catheter, but they put it in while I was out, assume it was in the OR, but I don't know for sure.  I thought it would be uncomfortable, but it wasn't.

I had the head of the hospital bed raised up so I was semi-sitting up.  When I was in bed, I had automatic compression stockings on.

Bring a small pillow with you to the hospital.  You should hug this if you need to cough or sneeze, and I hugged it when getting up and when walking.  Tell friends/relatives not to make you laugh.

Don't be surprised if you gain fluid.   When I got home, I had gained 20 pounds in fluid, but it was gone in less than a week.

The nurses first helped me get out of bed and into a chair.  I would stand up and do deep knee bends at the chair, so if I felt weak I would just simply sit back down.  I think this helped strengthen my legs in preparation for walking.  Do as much walking as you can in the hospital.  I looked like I was drunk at my first walk, holding onto the IV pole.

When you get home, it might be painful to lie down flat, so if you have a recliner use that.  My recliner was uncomfortable and I ended up propping three pillows on the couch and sleeping sitting up.   You probably will not be able to bend over for a couple of weeks.  I think I spent about 2 1/2 weeks sleeping on the couch.

Pain medication can cause you to be constipated.  I didn't want to deal with pain with that, so I started taking a little bit of Metamucil several times a day and it was a really good choice for me.

I didn't have staples or stitches closing the operative ports.  They used glue.

Get a large size of sweat pants to wear.   I am a 10-12 and I was wearing a size 20 (I got them at the second-hand store; still had the tags on them and I got them for 25 cents).  

Your tumor is A LOT smaller than mine, so your operation and recovery may be different.  I just wanted to give you some suggestions to consider.

Please keep us posted and ask any questions....   I was very scared, too!

donna_lee's picture
donna_lee
Posts: 415
Joined: Feb 2009

I don't ever remember being afraid of the surgery or of pain that it might cause.  But I was not looking forward to the death sentence the physicians had given me....which was 5-7 months away unless surgery could be done.  And neither the PC and Oncologist were of the opinion that surgery could even be attempted. 

Fast forward nearly 8 years, 3 cancer surgeries, 1 ankle reconstruction (now that hurt when it broke and dislocated), and other assorted temporary set-backs, I'm still here to cheer you on.  I won't bore everyone with the details, but you can click on my user name to find out what and how my surgeries were done.

The worst part is behind you.  The cancer started, it was found and scared you sh**less.  The Dr.s determined a course of action and you have a date set.  You are probably antsy waiting for the day.

Go to work, buy groceries, make sure you have clean sheets on the bed the morning you go to the hospital.  If you have room for a shower stool in the tub/shower, get one.  Ask for help!!! Light meals to be brought in.  Have someone who will pick up groceries for you, bring your mail or paper in, run to the pharmacy if you need something.  Get someone to do the laundry or even carry the laundry baskets from Point A-B and back again. 

In the 80's, I had 2 lap surgeries and went home with steri-stips holding the incisions together. A little bloating for a day, slept off the anesthesia, drank plenty of fluids, and got on with whatever had to be done.

With cancer, there will be follow-up monitoring tests. You can let the anticipatory fear paralyze you, or not.  Recognize there will be some anxiety to hear the results, but the test is the easy part.

Be just like the old book about the Little Toy Train..."I think I can, I think I can."  And you will.

Good Luck

Donna

Septemberzoe
Posts: 45
Joined: Sep 2013

Hi Stephanie!

i had a robot assisted partial nephrectomy in September at age 43. My tumor was clear cell 3.5 cm. The surgery was not bad...I had trouble with nausea from the anaesthesia and was in the hospital for 2 nights. Was on pain meds for 4 or 5 days...make sure they prescribe a stool softener! Took 3 weeks off from work as a preschool teacher but might have been able to go back after 2 weeks. The worst part now is anxiety over scan results... I have my 6 month scans tomorrow and am scared. Had a bone scan, chest, abdominal and pelvic ct immediately after pathology results and they were good except for 2 micronodules in lung (Don't think they are related to rcc). 3 month chest pelvic and abdominal ct was good with one micronodule In lung remaining but unchanged. Tomorrow 6 month chest abdominal and pelvic ct with dr appt on Thursday for results...lots of anxiety but I've heard that gets better with time...hoping for good results and hope your surgery goes well with a speedy recovery :)

When is your surgery? We will be thinking of you! :)

mdb2387's picture
mdb2387
Posts: 8
Joined: Mar 2014

Septmeber Zoe..I had my partial 8/2012 and just went through the 3rd post scan.I understand and sympathize with the anxiety completely..I go pick up the results as soon as they come back..usually next day..When I see my doctor and so far have been able to tell him I already know the good result..He looks at me and says,what do you get so anxious about?..Stage 1 tumors under 7 cm in size have a 94% cure rate..It helps and I must say please take heart that my first post scan was the worst anxiety and it has lessened the last two times 

Jojo61's picture
Jojo61
Posts: 408
Joined: Oct 2013

Hi!

Welcome! I know what you are about to face is scary, but honestly, the worst part is the waiting (and for me, the pre-surgery weigh-in! lol).

There was some pain, but not unbearable, and when you know what the pain is from, it isn't so bad. My pain meds didn't work at all until they changed them on the second night....and I was only kept on those for 12 hours. However, each person is different. Another member here, Jan, used dry ice on her incision. I think if you can find that, it might be a wise idea.

My tumor (named him Arnold) was 13 cm and was attached to my liver and pancreas. It was tricky but they managed to do it via laprascopy. They even filmed it! (Maybe I should have charged THEM! lol) It was stage 3, grade 2. I had the surgery December 2, 2013 and returned to work January 13, 2014....and I was lucky to go back gradually - Human Resources insisted (I have a geat sick leave plan at work) and my doctor was happy that I did it that way. I am glad too, because although I felt well, I found I was utterly exhausted after being at work a half a day. Now I don't tire much at all! I feel really good - and a lot of people are saying that my color looks much better....they said I kind of looked green, but I am thinking that maybe it was just my new lipstick color!

I hope these stories help you out. It's a great bunch of people here...I consider them the silver lining of having RCC.

Hugs,

Jojo

 

 

Jan4you's picture
Jan4you
Posts: 202
Joined: Oct 2013

Hello my dear~

Glad you feel able to ask for help here. Good place to ask as many questions a so many want to support you, including me! I take it you have never had any surgery? Sounds like you got a great doctor so trust him.

I have had 2 robatic laproscopic surgeries and had little to no pain. For me, I was placed on a Dilauded IV and had extra morphine to push a button whenever I needed it. Funny thing is I dont' remember them telling me to push the button. See one of the drugs they give you is Versed which is a type of amnesia and it lasts the first day. So have someone with you or ask them to repeat information more than once.

It would be good to have someone with you at home or if you could stay with someone. I had my cousin stay with me. Turns out I really didn't need her much at all. I had more trouble with side effects from pain meds but I have a drug interaction problem. Thats me.

I also used a lumbar wrap after both my surgeries IN the hospital, on the way home and for days following. I would use ice or dry ice tucked inside this wrap and that really helped the sligh swelling around the largest incision.

Good thing is you are keeping your kidney so you may only have a few of these little incisions which are about 1 inch wide at the most. That is where the instruments go and the surgeon is controlling them robatically. There are Youtube videos on this if you want to see it.

I was able to get out of  bed with the use of a side rail to pull myself up. I had no problem sleeping but I did use a smaller pillow under the side where I had the incisions to support that area. I could get up and down pretty well.

Now IN the hospital, know that they pump AIR into your abdomen so that the other organs are out of the way and the surgeon can SEE better. The problem is that this gas gets trapped inside, like even around the shoulder. THAT was the only pain I really had. It took a few days to go away completely. I don't remember farting too much, but warn folks LOL

I ate fine, but just wanted to rest. General anesthesia takes awhile to get out of your system completely so you may be a big sluggish for a bit. I no longer work but felt I could return w/in 2 weeks easily.

You may need to work less hours if too tired. Also I insisted on having my iron checked. No one told me it was low. I kept calling and finaly found out. I take over the counter SLOW FE and will have it rechecked soon. You need to insist on SLOW FE as it does not constipate you like the ones the doctors usually order.

I have a feeling you will be fine. You're scared and that is to be expected. I have been through alot and a few surgeries to this one was not that bad at all for ME! LOL

Write anytime and feel free to contact me if you want to privately. I will be here for you and walk this journey so you don't feel so alone.

Hugs my dear~

Jan

cjhawk38's picture
cjhawk38
Posts: 41
Joined: Dec 2013

I had my robotic surgery last Monday, came home on Wednesday and went to a concert on Sunday.   Removing the jp drain tube was not fun but not as bad as I thought it would be.  No pain unless I had to move so it would have been great to keep the foley especially for night time.  I have had a bronchitis cough since October so another fear was how much coughing was going to hurt.  They give you a little pillow to hold against you and the first cough is more of a jaring hurt but the second cough doesn't hurt just more scared it will.  I have been sleeping on the couch  lenghwise  sitting up with one of those neck pillows and been sleeping pretty good.  For me it makes it easier getting up to go to the bathroom and tomorrow I think I will try the bed.  So far I have had no problem with gas pain!

 

 

Any other questions let me know.

 

Cindy

cran1's picture
cran1
Posts: 128
Joined: Mar 2013

Finally some1 with a smaller tumor than mine! Mine was 1.6. As you can see Steph you and I are pretty lucky that it was found so early. The surgery is not to bad. When this is all over you will prob find the worst part of this whole ordeal is the Scanaxiety right before you have your imaging done. Hang in there. I am also in the AF, a crew chief on fighters and just landed in Elmemdorf. 

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