Mar 04, 2014 - 11:21 pm
Had first check up following rads; throat feel, nasal scope and met local rad/onc. Seems C21 R/O does not have many follow up appointments, hmmm. They had time to see me before treatment started...
Anyway, he said all looks great! Also liked his + outlook.
Now for the usual confusion about best practice regarding PETs, CTs etc. My original R/O said have one at 8 weeks, which I questioned due to reading about false positives and then they came back and said do it at 3 months.
My Otolaryngologist at Vandy said not until 6 months, and the new R/O said 3 months is good. So back to 2 out of 3 Docs say...
Guess I will go with 3 months+ unless the group disagrees?
FYI: Had my first cold/sinus infection since surgery and treatment which was also an adventure. Can't hock anymore to clear out mucous, so have been using saline solution in Netie pot 3 X a day so I can breathe. Just discovered Alkolol which is an interesting old natural remedy with eucalyptus and other ingredients in it. It is supposed to break up and thin the mucous and it is actually working! Yes! It is very strong and I can only ue it at 1/3 strength, but it really helps. Had difficulty finding it but one CVS had it and Rite Aid had one bottle left.
Glad to have some good news to share. I can eat most anything even popcorn. However, taste buds are still lacking or hypersensative. Had dinner at my fav Thai/Chineese restaurant tonight. The egg drop spinach soup was good as were the pot stickers. I boldly went where no head and neck scc patient should go and tried a smidge of hubby's double green curry tofu and rice. Had to leave the table quickly as I sarted gaging and coughing from the e which he ordered the mild I might add. I used to eat it all the time B TORS/RADS. Do not know I it will ever happen now. Do not like to spending half the evening in the ladies room, having people check on me, and stare when I return to eat. Good grief, will I ever learn?
Thanks in advance for advice, wisdom and support,