Mar 04, 2014 - 7:02 pm
So today dad (47 yo T2N1M0 Esophagus cancer patient) is 24 hours post removal of his esophagus. Essentially, they removed the esophagus and pulled his stomach up to replace it. We have been dreding and at the same time praying for this day since he was diagnosed in November. It has been scary, and tiring and overwheling for him and us.
Our treatment was 2chemo drugs Carboplatin and taxol? once per week for 5 weeks and then radiation for 31 days. No hair loss, just lots of nausea, fatigue and insomnia. He was able to mostly control these with medications. He took his zofran around the clock starting the morning of chemo and would stop taking it three days afterwards.
The 12/29 he went from being able to drink and swollow food that had been pureed to not being able to swollow anything. So 12/31 he got a J tube. He wasnt super happy about that, but it was a relief that he could easily get his calories in now. (we found his isosource and Jevity 1.5 on AMAZON cheaper then through the home health agency)
So here we are now! His surgery was yesterday and took 7 hours, he is left with two Jackson pratt drains, one pinrose drain, nasogastric tube, one midline incision and a neck incision. He will be in ICU for 2 more days for observation. he has a "small" pneumothorax, but they are confident it will resolve itself, no other complications this far in either sugery or post surgery!! Hes been up walking around several times today. (no water/food by mouth yet though, hes not too happy about that)
He is coughing pretty frequently. He is sore, but before sugery he opted for the epidural so he is hooked up to a PCA, and can press the button when he needs pain medications.
His surgeon says well be moved to the med-surge floor in the next day or two and will spend 1-2weeks there and will start being weened towards solid foods as everything is tolerated!!! He is SOOOO excited and we are too.
He says most of his pain is in his abdomen, not his neck. He equates the pain to the pain like when his J tube was placed. *remember to splint when you cough- it can help*
Lets hope this luck holds out on the long road of recovery we have ahead of us.
**Now we wonder what to expect now that he doesnt have a "stomach"? Anyone have Ideas or advice for eating after all this? Anything to avoid etc? How long it took before solid foods could be eaten?**
Best wishes and continued prayers!