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First PET scan since final Radiation in Oct NED!

Posts: 11
Joined: Jun 2013

 May 31 2013 i found out i had Squamis cell carsanoma (spelling) and started 9 months of almost hell.

I had my last radiation on Oct 29th, first PET Scan end of Jan and It was clear also. I had 3 rounds of Chemo, a blood clot in lower lung, 4 trips a week each spent in hospital for one thing or another.  37 daily mon to friday radiation treatments. A Trach, feeding tube and port put in back in June 2013 and Trach Removed Jan and almost healed up completly and Get Feeding Tube out This coming Friday.  I Had everything done at Stephenson Cancer Center at OU Medical Center and am Very pleased with the outcome.  It was a Very Hard last 9 months but Life 2.0 is just starting.


I am eating soft foods reallly well and getting better as i go at other normal foods. I lost from 215 in May to 130 at one point, only up to 140 now but feeling super good actually. Only water and milk to drink since July of last year, better foods and healther just doesnt make me gain that fast. Dry mouth is a struggle but not too bad if i have a bottle of water close by.  I do get tired fairly quick but that will just take time to get back to strength.

Life 2.0 now begins!


CivilMatt's picture
Posts: 2918
Joined: May 2012


Congratulations on your first NED.

All systems sound normal.

It sounds like you drove a bumpy road, I hope you have smooth highways ahead.


wmc's picture
Posts: 393
Joined: Jan 2014

Life 2.0 and a NED to boot. That's great to hear. Very sorry on all the weight loss but you will slowly get it back. It takes some time. As you eat more you will also get stronger as well. Glad to hear the good news and best of luck.


Posts: 11
Joined: Jun 2013

I am almost thinking loosing as much as i did may end up good in the long run. I just need to get about 150 / 160 maybe 170 and i will be doing good. I was over what i really wanted to be anyway....


Just glad everything is working out for the best.


Thanks Everyone.



Duggie88's picture
Posts: 535
Joined: Feb 2010

The bumpy road is starting to smooth out that is great news. Going from 297 to 205 I lost 92 pounds 4 years ago but I told my surgeon F--k cancer I'm gaining it all back and some. In reality that was just me lashing out but I have gained back more than wanted. Anyway, sounds like your doing well and you have much to look forward too.

Your 2.0 sounds good..............enjoy the day


debbiejeanne's picture
Posts: 2371
Joined: Jan 2010

tony, congrats!!  NED is a wonderful friend we all love.  the weight will come back in time.  i lost 120 (went from 240 to 120), but could afford to lose most of that.  but now, 2 yrs out, i'm gaing it back tooooo quickly and i don't want or need mine back.  for now, enjoy the day and new road you are on and dont' worry about the wt.  doing a happy dance for you!!

God bless you,


jim and i's picture
jim and i
Posts: 1599
Joined: May 2011

Whoop, Whoop. Doing the happy dance for your NED. May you have many more.



phrannie51's picture
Posts: 3676
Joined: Mar 2012

Love hearing those words!!  Congratulations! 


hwt's picture
Posts: 1904
Joined: Jun 2012

Congrats...always great to hear when someone reaps the rewards of the tx.

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