Feb 28, 2014 - 7:16 pm
I have been reading for a while. I thank you all for sharing so much information. It has been so helpful and given me hope. My name is Catherine. I am 58 and I had a radical nephrectomy in May of 2013. At surgery, I was told stage 2 but after removing a 12 cm tumor and finding a met in each lung I learned it was Stage IV grade 3-4. The lung mets were just watched with no growth to date but a scan in November showed a mass to T-6 vertebrae. So in December, I received 5 Cyberknife treatments. January scan showed growth of lymph nodes in pelvis. Luckily one spot had just opened in the IPI/Nivo trial at Foxchase Cancer Center. I passed the tests and had my first treatment Feb 12. So far, side effects have been ok. I did break out in hives when they were administering the Nivo, so they had to stop and give me Benadryl before the rest was given. Now they will give me Benadryl first. Started to get a little achy yesterday. Next treatment is Thursday. Hopefully, Nivo will be the drug!!!