CSN Login
Members Online: 12

NED! First 3 month post check-up

6Cyn's picture
Posts: 29
Joined: Sep 2013

Well, we had good news today - PET results - wonderful with no hot spots. My husband still has some lumpy lymph nodes but they continue to shrink. For the newbies on this site - it is seven months since he was diagnosed with HPV tonsil cancer and 3 lymph node invovlement. Three cisplatin treatments and seven weeks of radiation left him exhausted, skinny, and with dry  mouth. Now, three months after last radiation treatment, he is eating, working out, and recovering. Life is good. This site has been so wonderful for us and like so many we send out best to everyone engaged in this battle.


debbiejeanne's picture
Posts: 3091
Joined: Jan 2010

6CYN, congrats on the NED!!  that's the best news we can get on this site.  we all love Mr. Ned!!


CivilMatt's picture
Posts: 3376
Joined: May 2012



Congratulations to this NED and many more.

Welcome to the abi-normal clan, we expect to see you at the meetings!



Posts: 76
Joined: Sep 2011

This is all we need!




Skiffin16's picture
Posts: 8234
Joined: Sep 2009

Many more of those NED guys in the future...


dunedintech's picture
Posts: 76
Joined: Apr 2013

Great news. Way to NED.


phrannie51's picture
Posts: 4122
Joined: Mar 2012

Every NED we hear about is like a notch in our collective cancer gun!! 

Hope you two did a jig around the kitchen table....


wmc's picture
Posts: 1220
Joined: Jan 2014

Congratulations On the  N E D !!!

Hondo's picture
Posts: 6258
Joined: Apr 2009

Glad to hear the good report, and yes life is still good even after treatment.


God Bless


Posts: 12
Joined: Jun 2013

Big awesome congrats go out to you. 

 I had my last radiation on Oct 29th, first PET Scan end of Jan and It was clear also. I had 3 rounds of Chemo, a blood clot in lower lung, 4 trips a week each spent in hospital for one thing or another.  37 daily mon to friday radiation treatments. A Trach, feeding tube and port put in back in June 2013 and Trach Removed Jan and almost healed up completly and Get Feeding Tube out This coming Friday.  I Had everything done at Stephenson Cancer Center at OU Medical Center and am Very pleased with the outcome.  It was a Very Hard last 9 months but Life 2.0 is just starting.

 Sooo glad to hear of you NED and wish all the best.




CivilMatt's picture
Posts: 3376
Joined: May 2012


Congratulations on your first NED.

It sounds like you drove a bumpy road, I hope you have smooth highways ahead.


Duggie88's picture
Posts: 649
Joined: Feb 2010

Great News!!!

Congradulations to both of you I can see the smiles from here.


Posts: 18
Joined: Feb 2014

Laughing Congrats to you both! I can't wait to hear that for my husband, he just finished his radiation treatments yesterday!

Time to do a victory dance!!  Whoop whoop!!

debbiejeanne's picture
Posts: 3091
Joined: Jan 2010

doing the victory dance here for you too!!!  congrats on being finished with tx.


Crazymom's picture
Posts: 332
Joined: Nov 2011

congrats...thanks for posting the good news!


PJ47's picture
Posts: 358
Joined: Sep 2013

You are clear!  Having my 3 mo PET end of March/first week in April and hopeful it will be NED also,


Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network