Feb 26, 2014 - 6:20 pm
i've been a member here for about 2 years. i recall many posts from you guys speaking of your 3 or 4 month check ups with your ent, mo or ro and I had no idea what the mo and ro meant, i just knew i didn't have one of them. you also spoke of being poked, prodded and scoped by the ent at every 3 month check up. again, i didn't get that and i wondered why. well, it has been two years since my total laryngectomy and i've NEVER been scoped by my ent surgeon. in fact i've had no scopes, no scans, no nothing. my niece who is an RN told me it is not my surgeon's job to follow up with me with that type of care. She explained that he is a surgeon and that once the surgery area is healed, the surgeon's job is done. i have another niece who works for a big cancer medical facility and sees cancer patients of all types everyday. well, my two nieces started talking one day and decided i needed to see a medical oncologist. i received a call telling me how they felt and the one niece wanted me to go see a doctor in her group. well, i went today and the doctor was not happy that i have not been scoped at least EVERY THREE MONTHS. but again, that's my fault because i have been seeing the wrong type of doctor. the doctor i saw today wants me to see my regular ent for scopes. the new doctor, Dr. David Waterhouse, ordered blood work and is going to review my scan from 10/1/12 and then order another one. he wants to compare them to ensure there is NO change. he also wants to see me every 4 months. i feel so good that i'm finally seeing the correct type of doctor and i'm going to receive follow up care. as i look back on my cancer journey, i realize i was not an active participant. i clearly remember going thru the 35 rads but that's where my memory ends. i don't even remember being told the cancer had returned or the plan to do surgery being discussed although i know it was. i don't know why i don't remember these extremely important events in my life. i was very ignorant of cancer and tx. i wish so much i would have found this site before my tx started and i'm thankful that others ARE finding it before their journey starts. cancer is the worst journey i've ever taken and i've been more ignorant about that than anything in my life! i cannot believe how little i knew or even still know. i'm glad my nieces loved me enough to think about me and get me on the path to the correct doctor for follow up care. i pray everyone knows up front that follow up care is very important and it isn't just the surgeon you should follow up with, you also need a medical oncologist. please don't wait 2 years like i did. I just had no idea and this is one time that ignorance is NOT BLISS!! God bless you all and thank you all for everything you have shared over the years. I've learned a lot and truly appreciate YOU!
God bless everyone of you,