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Just more bad news!

Djinnie's picture
Djinnie
Posts: 914
Joined: Apr 2013

I have to go for fresh scans and a round of testing over the next few weeks. After suffering from an incessant cough for over a week I was sent for an X-ray. The result of which shows a new mass in my left lung. I was devasted, I am at a loss, I really don't understand how these growths are manifesting at such speed. From everything being clear in September to this seems implausible.

I am transferring to another team of doctors in Lorient now, I am hoping for a better standard of care there.  I will post again in a few weeks when and if I have a clearer picture.

 

Djinnie x

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Oh my Dj... sorry to hear this...  thoughts and prayers headed your way...

Ron

Limelife50's picture
Limelife50
Posts: 420
Joined: Nov 2011

So sorry to read this and thinking about how you must feel.Hoping this new team of Doctors will get a treatment plan in place that will be able to stablelize or even rid this disease from your body.

CommuterMom's picture
CommuterMom
Posts: 120
Joined: Jan 2014

Djinnie 

Sending love hugs prayers and positive energy your way! <3

Gordon Charles's picture
Gordon Charles
Posts: 91
Joined: Jun 2012

Dearest Djinnie:  I'm sitting here trying to think of something appropriate but none of it would be acceptable for public consumption.  Be assured that there is an immediate stomach drop when each of us reads your post.  Do not hide.  Do not fight this alone.  We are all here adding our hopes and prayers to yours.  There are too many things about this disease that we have to take on by ourselves.  Please let us continue to be a sounding board and place of refuge when the frustration of the moment tries to consume you. 

Jojo61's picture
Jojo61
Posts: 481
Joined: Oct 2013

Hi Djinnie

Gordon said it all so eloquently. I hope the new team of doctors will be very knowledgeable and skilled. Stay strong, but remember there is strength to be offered here, too.

You are in my thoughts and prayers.

Big Hugs,

Jojo

cancerat46's picture
cancerat46
Posts: 35
Joined: Feb 2013

Djinnie, I'm so sorry to hear this! My thoughts and prayers and support are with you! I'm glad you're seeking a new medical team and taking control of your care that way. Bravo to you for that! About 9 years ago my hubby was very ill from systemic Scleroderma and was getting worse and we just told the doc we need you to refer us to someone with more expertise in this disease. That's a difficult thing to do, confronting a doctor, but we found the right doc and today he is sitting next to me as I type this. So kudos to you for taking control! Big hug to you! Kris

Srashedb
Posts: 241
Joined: Dec 2013

so sorry to hear your news; why did they do x-rays instead of scans? Very glad that you are seeking a new team.

Please know that I am thinking of you

Sarah

Jan4you's picture
Jan4you
Posts: 235
Joined: Oct 2013

{{{{ Djinnie }}}}}

 

 

The shock you must be feeling..geez. Maybe once they get a more accurate scan you'll know more from the oncologists. Try really hard not to rush into the future, but stick with today.. its enough to deal with right? Breathe.. breathe.. breathe..

Like Gordon said so eloquently, you are not going through this alone, WE're here along side you.

You can feel whatever you need to feel right now.

Please let us know how you are doing~

Here's another HUG~

Jan

Skagway Jack's picture
Skagway Jack
Posts: 92
Joined: Oct 2013

Good call on switching medical teams.  All I can say is I am very sorry you have to contend with this.  Hang in there and fight, fight, fight!  Positive vibs heading your way.

 

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Gordon hit the nail on the head...an immediate stomache drop.  It's what I felt. 

And then, it hit my heart and immediately my heart felt heavy and sad.  I'm sure you are at a loss...right now.  And the devastation you're feeling, well, that just makes you normal.  These are feelings you have to accept and deal with, then, proceed to fight with all your might! 

I'm happy to hear of your transfer to a new team of doctors.  I just bet they are going to take excellent care of you, with a standard of care you've only dreamed of.  That's my hope and prayer for you and your doctors.

We are all here for you, Djinnie.  Use us.  Let us be your soft place to fall when you need to vent or just talk, about anything or nothing at all.  It's amazing to me how therapeutic this site can be.  This is my first experience with a support group, of any kind.  Besides the feedback, advice and camaraderiere we share, there's just something about putting your thoughts and feelings on paper (so to speak), typing away at a keyboard, lost in thought.  It does my body good.  I find it to be extremely calming and it almost always makes me feel better.  In fact, do you know how many times I've typed out entire paragraphs, pouring out my heart and soul or venting or asking what I know are stupid questions, only to hit the delete button instead of the send key?  So lame, I know.  But, it helps. 

Anyway, I'll be anxiously awaiting updates in the coming weeks.  In the meantime, you just keep picturing yourself on the otherside of this fight, stronger and wiser and healthier than ever.  You'll get there.  May have to fight your way there, but if you stay focused and don't back down from the fight, you'll get there.

Keep your chin up, girl.  You got this! 

 

xoxo

 

 

 

 

Suekub's picture
Suekub
Posts: 131
Joined: Apr 2013

Djinnie, not sure that I can add anything that hasn't already been said but wanted you to know that positive vibes  are being sent to you from here in the southern hemisphere.

take care.

Sue

 

foxhd's picture
foxhd
Posts: 2066
Joined: Oct 2011

is accurate. Don't know how to fix that. But the air just leaked from our balloon and we will take care of that. You are regarded as one of the tough members of this forum. With new doctors you will face this and the plan will work. Not just being positive. Being confident. You are a rock. Take care of business and we'll hear from you soon. We'll hold the fort and send karma your way.

TillieSOK's picture
TillieSOK
Posts: 246
Joined: Jul 2013

Well, dammit!  I'm so sorry to read this, djinnie.  We are all hoping to be right here for you anytime you need anything...even if it's just to scream obscenities.  I would take this from you and switch places with you in an instant if it would do any good.  You are a strong woman and a fighter.  Take a deep breath and go kick some cancer butt!! (((((((Hugs)))))))

kerrie75's picture
kerrie75
Posts: 20
Joined: Feb 2014

I have to say I haven't known you all long but everyone here is one big family.It's a great feeling to know you have all these wonderful people caring and praying for you! I'll be thinking and praying for you.

 

Kerrie

Miashelle1's picture
Miashelle1
Posts: 40
Joined: Aug 2013

((( hug )))

Michelle x x x

garym's picture
garym
Posts: 1651
Joined: Nov 2009

DJ,

I know you're down right now, but there is still alot of fight left in you, I feel it in every one of your posts and hear it in your every word.  We're here and we've got your back!

Godspeed,

Gary

angec's picture
angec
Posts: 664
Joined: Mar 2012

DJ, so sorry to hear this! I know you will get through this like you have in the past!  Will be praying for you, you are always so  encouraging to us in many ways!  What form of treatment did they start you on? Sending you gigantic hugs! XXX

cran1's picture
cran1
Posts: 129
Joined: Mar 2013

Sorry to hear D. You are in my thoughts. Hang in there.

Darron's picture
Darron
Posts: 242
Joined: Jun 2013

I am so sorry to hear your news. You will be in our thoughts, especially the next few weeks while you wait for the scans.

Hang in there!

danbren2's picture
danbren2
Posts: 204
Joined: May 2013

Djinne,

     I hope you remember how you and the others held me together during my year last year.  You really helped keep my spirits up, and I am here for you now!  This is just a bump in the road, and you will get over it.  Take a day and cry and get it all out, then just get control and take up the fight and know that we are all here for you.  Every little piece of information is as important to us as it is to you, please do not forget to keep us informed and to lean on me, they way you let me lean on you!  I am there fighting right along side you, sending strength, prayers, and love!

                              Love and prayers for good health!

                                Brenda

cjhawk38's picture
cjhawk38
Posts: 44
Joined: Dec 2013

I'm sorry to hear that you keep getting bad news.  Hoping that the new doctors can put you on the path of a cancer free life.

brea588
Posts: 129
Joined: Jul 2012

So sorry you have bad news again.  I will keep you in my thoughts and prayers.

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Hi DJ, hope you are doing OK.,.. just thinking good thoughts about you... hang in there...

Ron

todd121
Posts: 641
Joined: Dec 2012

Djinnie,

Sorry to hear.

I hope and pray the new doctors will pay off. Please keep us updated. I think it's time for some good news.

Wishing you well.

Hugs,

Todd

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