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ca125

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

im 16 months from my last chemo treatment. my ca125 have been 5-6 since ending treatment untill last month when i was a 9 and this month a 10... i know it is still normal level... i have no real symptoms other than irritable bowel but have had that since surgery.... im somewhat worried about a reoccurance.any advice??? i talked with my surgeon and oncologist and i get a ct scan and vaginal ultrasound next week.

 

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

just background,,,,,my background is highest ca125 was 89 before debulking surgery,,,i was stage 3c.....

 

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

Getting a CT scan and ultrasound will give you and your ONC clearer info. We'll be waiting to hear of your results. Your CA-125s look great, but the scans will give you peace of mind.

                                                            ((((HUGS))))   Maria

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

i know the ca125 is normal... but is the first change in 16 months... a little scary... thanks for the support1 kim

scatsm's picture
scatsm
Posts: 236
Joined: Apr 2013

I finished treatment in March 2012, almost 2 years ago. CA125 was in the 4's starting after surgery (I had 4 rounds of chemo, then surgery, then 4 more rounds). for the next year it stayed there, then it went to 5, 8.8, 14.4, and now, 17.1.  A month ago I had a CT scan because of rising liver enzymes (fatty liver) and it was clear for liver and lungs, but there was "nodularity" on my omentum (whats left of it I guess). Now my gyn onc wants another CA125 in March and if it rises again, another CT scan.....while my CA125 is still in the normal range, it is rising each time I have the bloodwork done and, after 4 rises in a row, is therefore possibly a recurrence. 

So, the good news is that yours has risen only twice and there can be a lot of reasons for that having nothing to do with cancer. 

I wish we could have an easier time of it. Fear of recurrence seems to be an on-going stressor. I want to be told that I am cancer free and not to worry anymore, but that isn't going to happen....ever.

Right now, I am really trying to stay in today, and today I don't have a recurrence. Today the sun is shining (finally) and I am going to have a good day. I am going to think positively and be grateful for my blessings. I have a month before I have to deal with this and I hope I will go into denial mode and enjoy life.

I hope you can do the same. It is a shitty card we've been dealt, but all we can do is try to live life fully anyway! 

Take a deep breath and have a good day...and don't forget to let us know how you are doing.

Susan

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

I appreciate your support. I hope you to will stay in remission.  remember your own words to me...it is still in normal range!!! Drink some gren tea, it could help!! You too kep up with us about your tests. Kim

 

lovesanimals's picture
lovesanimals
Posts: 1234
Joined: Sep 2011

I'm sending good thoughts and prayers your way that you get good results from your scan and ultrasound.  The small rise could very well be due to other non-serious things.  Please keep us posted!

Warm hugs,

Kelly

 

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Normal Normal Normal...  Keep telling yourself that.  I know easier said than done right....  After chemo I stayed at 10 or 11 except for once it was 19 but I was getting over a little intestinal bug at the time.  Retested the next month at it was 11.  My test in NY all stayed between 10 and 11 since chemo ended.  My doc was happy with that and my scan was clear....  Please TRY not to worry.  Like Susan said "focus on today"..  I will say that when I had my CA in October it was 5.8.  This last one in January was 6.4 and my onc was thrilled with the result...  You are in my thoughts and prayers..... Please keep us posted.

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

CT scan and vaginal ultrasound yesterday.....All clear...No sign of any reoccurance!!! What a relief.  Thanks to all for your support. KimSealed

Glad to be done's picture
Glad to be done
Posts: 558
Joined: Jul 2012

Wool hoop.  You had me second guessing mine going from 5.8 to 6.4....   I am soooooooo happy for you.  You finished chemo right behind me.  I am 20 months out

lovesanimals's picture
lovesanimals
Posts: 1234
Joined: Sep 2011

I'm doing the happy dance for you! Smile

Kelly

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

Oh, Kim, I'm so very happy to hear this news.   (((((HUGS)))))   Maria

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

Recheck yesterday....CA125 doubled to a 20.  Still normal and yeah scans and ultrasound a few weeks ago normal...but concerning. My last time I was in the 20's was right before I started chemo. I get another check in two months. Does anyone think 2 months is too long to wait for a recheck?

Kim

Alexandra's picture
Alexandra
Posts: 1205
Joined: Jul 2012

Don't panic. And 2 months till re-check is not too long. If it is in fact an early recurrence (and it's a big IF, since everything is still normal), radiologically (CT scan) disease will be only seen about 1 month after CA125 hits 70 (double upper normal limit). And symptoms follow 3-4 months after that. There is no need to start treatment until there are symptoms.

I hope it's a false alarm.

All the best,

Alexandra

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

my worries i was never higher than 89 prior to surgery. 29 after surgery  4 weeks and before first chemo... im not one of those high CA125 women..... i know my level is normal...but concerning for my history.KIM

 

wholfmeister's picture
wholfmeister
Posts: 249
Joined: Dec 2012

I agree with her.  It is a bit long for you NERVES but not for your cancer.  CA125 is a funny test and is just one thing to consider. Don't panic.  My two remaining cancerous nodes are so very small my gyro-onc can't feel them, and he could only tell the increase in size by comparing to the CT from six months ago.  The CA125 rise was very, very slow, albeit constantly upward.  Be patient.  Live life..

kimberly sue 63's picture
kimberly sue 63
Posts: 396
Joined: Apr 2012

Good advice

thank you

 

Cafewoman53's picture
Cafewoman53
Posts: 735
Joined: Jul 2010

I would ask your doctor to check it in a month if it is going to cause you too much worry to wait.Rule of thumb is to watch it if it doubles at any level.

Can you have a pet/ ct scan done when they scan you? You are probably fine so try to relax but it is better to ask for the extra ca125 rather then worry the whole time.

Colleen

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