Feb 18, 2014 - 11:07 pm
I 'm so sorry I did not post sooner. After the appt we had to go to Sacramento to pick up a new modem, so I wrote on my phone on the way down. I finished and was proofreading and poof my message was gone! AArgh! Bill just now got the computer running again. Well, the news is ok. The pet showed the nodes lit up., the cluster in his abdomen and 2 very small ones in his pelvic area. The doctor scheduled him for a biopsy on one of the small ones to make sure it is MCL. He and we are sure that it is. He feels that because the affected area is small and that we caught it so early that is a good thing. He thinks they will use a target med rather than chemo to treat those areas. Ibrutinib is brand new, or maybe Revlimid or Velcade which are also new in the last few years. After the biopsy results he is going to send us to Stanford . He said that out of our choices here, that is where he would go. He said the doctors are top notch and that they even bring in renown doctors from all over the world or consult with them. A friend told me their cancer center is a hospital complex of its own. So we are really happy about that, we feel we will be in good hands. Although it is not the best news, it is much better than what we expected and we are feeling back to normal pretty much. Thank you, thank you, thank you for your comfort, support, prayers, and kindnesses, it means more than you know. Our thoughts are with Karl and his family now, we will fight together.
This truly is a wonderful group, Bill A& Becky