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rls67?

Chelsea71
Posts: 1170
Joined: Sep 2012

I went back and forth about posting this.  Want to respect your privacy but also wanting you to know that you have friends here, who understand.  Hopefully it's all going as well as can be expected and we know you'll seek us out when your ready.  

Take care.

jen2012
Posts: 1208
Joined: Aug 2012

Been thinking of you guys also.

UncleBuddy
Posts: 635
Joined: Aug 2013

I hope they were able to unkink her intestines and alleviate the pain. Let us know how she's doing. Please take care of yourself as well.

Lin

janderson1964's picture
janderson1964
Posts: 1641
Joined: Oct 2011

I have been thinking about you and your wife as well.

rls67
Posts: 127
Joined: Nov 2012

I have good news and bad news. The good news is her blockage has become unblocked.Her short term prognosis has improved. The bad news is both of her lungs are filling up with fluid. The doctors seemed very reluctant to drain the fluid. She is very weak and tired. She barely eats. The drs. still think she may only have months left. They want to send her home because the blockage is gone, but I can't take care of her at home by myself. I am so confused.

janderson1964's picture
janderson1964
Posts: 1641
Joined: Oct 2011

Can you afford a nurse sometimes insurance will cover part of it. Do you have any family that you can rely on for some help.

LivinginNH's picture
LivinginNH
Posts: 1307
Joined: Apr 2010

 

Hi,

You might want to inquire about a Hospice Home where she will receive comfort care.  Even if hospice came to your home, they aren't there all day, just a hour or so each day, so you or another relative would still have to be her full-time caregiver.  That's a major problem with our health care system, they don't care that you have to work and that we often don't have close family members to care for the ill.  The hospital's social worker should be able to provide you guidance for assistance.

Take care,

Cynthia

fatbob2010's picture
fatbob2010
Posts: 397
Joined: May 2012

I am so sorry that this has come your way.  What an emotional roller coaster it must be.

I know how hard this can be for you and the entire family.  Have you had a chance to talk to the chaplain or someone else about this.  Sometime they can be a very good resource.  Another choice may be 211 (if it is offered in your area).  

This may be a hard subject to wrap yourself around.  A short term nursing facility that offers hospice may be another place to start.  This is sometimes covered under your insurance or state support of some kind. We had to find such a place for my mother.  Family assisted to make this a more attractive option for her by offering frequent visits and social support such as outings.

Peace to you,

Art   

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