Feb 05, 2014 - 8:22 pm
I found this forum by mistake while searching for info on my husbands diagnosis. He has malignant neoplasm of the oropharynx and connective tissue and other soft tissue, tested positive HPV and primary was found in right tonsil after he felt a lump in his right neck. Original biopsy going into the neck discovered a mass which was wrapped around jugular and some spinal nerves in neck. Doctor removed 90% of tumor and we immediately headed to MD Anderson in Houston Texas. Unlike my husband I like to know the whens, whys, and hows. This discussion board helped me prepare my husband for the possibility of side effects. I recently lost my father on Dec. 21 to esophageal cancer and three days later we were in Houston starting all over again with his journey. MDA is the place to be, they have prepared us for all side effects you discuss here and my husband even enrolled in some research clinics to help further the research for HNC.
He was borderline for chemo, but after the tumor board they decided 38 IMRT radiation treatments would be enough, no surgery. He completed his 13th rad treatment today. Since Monday the effects have started to kick in, dry mouth, taste buds haywire, nausea and fatigue. Doctors are trying to protect the left side of mouth so he wears a stent to keep his tongue pushed to the left during radiation since he is getting a low dose to his lymph nodes on left side. Nightly I read some your discussions to him and encourage him to gargle, gargle, eat, eat, and drink, drink! We do neck exercises together at least 5xs a day lol. We are blessed to have great insurance plus sick leave and the means to stay in Houston close to the medical center until his treatment is over, I drive in three nights a week. As long as he feels up to it he drives home for the weekend.
I would just like to say THANK YOU for a great forum, and even if people don't actually sign in, they are reading your discussion board, I did! It has helped tremendously. God Bless you all and keep it up!