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Lung Cancer lower right lobe of lung-Thorocotomy

snickers63's picture
snickers63
Posts: 2
Joined: Feb 2014

I had a thorocotomy in November of 2012,with the lower lobe of my right lung removed. I was in ICU for 12 days. The surgery went well, no complications that I was told of, but, the pain from the surgery has not diminished . I have gone thru all of the required rehabs. Pulmonary,as well as, physical. Also had 2 nerve blocks done , and a thorcentisis. Nothing stops the pain, uncluding every imaginable pain medication. I am pretty active, walking my  dog, cleaning the house, doing yard work, ( can't shovel snow or mow the lawn ) but the pain stays. Somedays it is so bad I have terrible difficulty breathing. I would love to know if anyone else has or is experiencing these symptoms, and, what you are doing for relief. Thanks For Listening.

dennycee
Posts: 817
Joined: Mar 2011

Have you investigated less traditional pain treatments?  There are a couple of people in my support group that have had good results with accupuncture.   

dennycee
Posts: 817
Joined: Mar 2011

Also, I've had good pain relief from Fentanyl patches.  Have you tried morphine or methadone yet?   If there is a Palliative Care physician in your hospital they are very good at dealing with this type of issue.  Please don't confuse them with ho****e, the palliative care is about symptom management.  

snickers63's picture
snickers63
Posts: 2
Joined: Feb 2014

Hi denny

               Sorry for the horrible delay responding to you. I still have pain, not as bad as it was, but, still very annoying, and very limiting in my daily functions. I am going to look into Palliative Care. Thank you so much for the information. I will be in touch.

So happy to hear you well

sarahfreeh212's picture
sarahfreeh212
Posts: 1
Joined: Feb 2016

I am going through diagnostic program at the Cancer Treatment Centers of America in IL.  My largest nodules are in my lower right lobe.  May I ask what type of lung cancer it was you were diagnosed with and if you had any symptoms. Just anything from your experience would be very helpful and I would appreciate it more than words can describe.  I hope that your pain is finally under control... I know how challenging living with chronic pain is <3 

dennycee
Posts: 817
Joined: Mar 2011

Welcome to the ACS lung cancer board!   My stage 4 adenocarcinoma of the lung was diagnosed in Oct of 2010.  At that time my primary was 12 cm on its largest measurement.  I had mets to the opposite lung, lymph nodes and a malignant pleural effusion.  At that time I was told I might live another 10 months or so with aggressive treatment.  As it turned out I am considered a super or complete responder.  

I have a friend who has been going to CTCA one is very happy with her treatment.  

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