Feb 02, 2014 - 10:47 am
So I was diagnosed with type 1 papillary renal cell carcinoma in my left lower pole. They are going to do a robotic laparoscopic partial nephrectomy on 2/12. I feel very comfortable with this. My problem is this. This past July I was admitted in the hospital for over 2 weeks for E Coli 157, which is a deadly strain to get. I was put on dialysis, plasma and even had blood transfusions. They did 2 CT scans. One at the hospital I was originally at and second was the one they transferred me to. So while discharging me after all those weeks they gave me a copy of my records from the hospital stay to give to my neurologist, which I did. He gave them back to me. So over Christmas I was reading through them. The neurologist on call that weekend, so literally saw him for 2 days. He put in his notes that I needed to be followed up on the mass in my kidney. So no one followed up with me! Not the other neurologist that took over while I was still in the hospital, or the regular MD that was taking care of me. Not even the neurologist that I was transferred to after I got out of the hospital. Not even my primary Doctor. I shouldn't had have found it, should I? Sorry, this irritates me. I work in a medical clinic so it makes me think if other people's diagnoses that are being missed. I know it's a slow growing tumor, but I'm a stubborn person about complaining about pain or anything. Who knows how long that tumor would of stayed in there.