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Mayo Clinic Update

cinnamonsmile
Posts: 1059
Joined: Dec 2010

I had written the pulmonolgist I am supposed to see at Mayo a letter, explaining to her that she was not in the list of drs at their website and that my hypersensitivity pneumonitis is particularly aggressive & fast growing. I am suprised at Mayo's repsonse.

The doctor had the receptionist call me to explain she is doing her fellowship & that is why I couldn't find her in the physician directory. She also referred to me to a staff physician that has experience treating aggressive HSP like mine!!!

Now the problem is, scheduling difficulties. It takes just about over 4 hours to get there and Brian's sisterinlaw is driving since I can't drive that far (and alone). She works a southern swing shift at the local paper mill, and has varying days off.

As it stands, I have an appt. set for 1 pm in February. However, if additional testing needs to be done the next day, I can't becuase Sara works at 2 pm.

If I go for a day when we can have the appt. on the first day, and open for more testing on the 2nd, I won't get in until March. I don't know what to do. I can't afford to drive back, get a hotel for a second visit.

So I think I will call my local pulmonologist and explain the situation to him and see if he thinks I need to be seen in February, or if I could wait till the beginning of March.

 

carkris's picture
carkris
Posts: 4529
Joined: Aug 2009

I think you need to be seen asap

SIROD's picture
SIROD
Posts: 2204
Joined: Jun 2010

Hi,

Can't your sister-in-law request time off for a very good reason?  Or perhaps Mayo can schedule all the test on the same day after your pulmonologist explains your situation.

Good luck to you,

Doris

CypressCynthia's picture
CypressCynthia
Posts: 4017
Joined: Oct 2009

If I could, I would be there driving you.  Praying this works out.  You do need to be seen there!

VickiSam's picture
VickiSam
Posts: 8507
Joined: Aug 2009

works out.  Fingers crossed and prayers going your way.   Please keep us updated.

 

Vicki Sam

cinnamonsmile
Posts: 1059
Joined: Dec 2010

I talked with my pulmonologist via medical assistant who was emailing/texting him. He says it is better to wait and see the Staff Physician at Mayo Clinic until the first week of March.

I have tests and another CT Scan scheduled with local pulmonologist in February.

I finally gave my two little Zebra Finches to my mom, in case they are contributing to my HSP. I cried & cried on Sunday. I miss their chirping, watching them interact. I could still cry right now typing about them. My mom says they are quiet at her house. I had a perch with a mirror that has a sensor on the front that I  made a recording of my voice talking to them. Mom says they go in front and make the sensor trigger my voice a lot. I think they miss me, too. I sure miss them.

Anyway, I don't seem to be getting anyworse. 40 mg Prednisone seems to be holding off growth.

Thanks for support. Brian's sisterinlaw (who is accompanying me) is on a Disney Cruise somewhere warm til next week.

CypressCynthia's picture
CypressCynthia
Posts: 4017
Joined: Oct 2009

Oh I am so sorry about your finches.  I know you miss each other.  Praying that you feel better soon.  Please keep us updated.  Big (((hugs))).

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