Jan 15, 2014 - 3:08 pm
Question for the Lary’s.
I am a neck breather and total Laryngectomy with neck reduction on both sides, level II~V
and 86 glands removed. I have a TEP and use the HME to speak. I have marked biapical bullous emphysema Stage III
but I get 98% on the oxygen, [My Doctor can’t explain this], however I can’t retain Oxygen and get short of breath very fast.
T3,N0,Mo supragolottic squamous cell carcinoma. Surgery was Oct 2 2013.
I was told that we [Larys] can not blow out candles or whistle, and a lot of other things too.
Yes I can not smell unless air is forced in my noise, and eating is a little different with swallowing
and some loss of taste. Now I know how lucky I am that I did not need chemo or radiation. I was able to start
talking in 15 days after my surgery. I have taught myself to blow out candles and I can whistle. I admit, not very
well, but I can whistle for my dog and do the two tone “wolf whistle”. I have worked at this for two months and it not easy or like I did before the surgery but it is getting better all the time.
I guess my question is, do you know of others that can also do this or is it that rare? My speech pathologist
seemed shocked when I whistled.