Jan 14, 2014 - 9:16 pm
I posted that my latest scans were not good, as lymph nodes in the abdominal increased not only in size, but now there are numerous more, including a mantle of them. I was stable for about ten months with Doxil. I am now on topotecan, 3 weeks on, one week off. I have had 3, and resume this upcoming Friday. Dr. says we will scan after this next 3 rounds. ANyway, he said that if this doesn't control or shrink it, that we will try gemzar. He mentioned another drug (can't remember the name of it) is an oral chemo that we can try if topotecan and germzar fail. He indicated that is the end of the drug line we can try.
I have read on here and another support group of women who have had many different drugs. My dr. does not repeat drugs. I asked him about taxtore. He said no because it was a cousin to Taxol.
I have had six rounds of carbo/taxol/avastin following surgery. 2011 I was in remission for about 7 months, while on avastin alone. Three rounds of cistplatin/taxol.
I have had 10 rounds of Doxil.
Currently on topotecan.
Is this about the end of the line for me? I don't want to give up. I am tolerating chemo well. I have too much to live for. My kids lost their DAd at a young age (he was 52; I'm only 51). My daughter married this past summer, my son is engaged and planning to marry this spring. I have to see those grandkids. I just have to!
I do not have a gyn./onc. (I did for surgery, of course). There are 4 gyn. onc. in my area, but they all work at the same clinic, which does not accept my insurance.
I should be eligible for disability medicare in August, at that time I should have access to more doctors.
I really do like this doctor. He is very kind and compassionate. He listens. I'm just really scared. I'm not afraid to keep trying chemo drugs.