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Hurthle Cell Neoplasm ADVICE PLEASE

court1213
Posts: 1
Joined: Jan 2014

I just left my endocrinologist after receiving my results of the FN biopsy.  He originally said papillary cancer was not seen.  However, there are an abundant amont of hurthle cells w/occassional lymphocytes and scant colloid material.  The differential diagnosis includes hurthle cell neoplasm and hashimoto's thryroditis.  (The abundance of Hurthle cells and the rarity of the associated lymphocytes raises the possibility of Hurthle cell neoplam)

That was the diagnosis on the pathology report.  My endo wants to check me for Hashimotos (even though all my thryoid blood work is always normal, though have all symptoms of underactive thryroid) and do nothing regarding the neoplasm.  (I also continually have swollen lymph nodes on side of neck)

From researching, it would appear that Hurthle cell neoplasm's are serious, or could become servious. 

Any ideas?  I am wondering if I should get a second opinion?  Why should I wait a year to get another u/s, especially if Hurthle cell carcinoma (if it ends up being) is very aggressive and hard to treat.  Shouldn't just remove the thyroid to be safe?

Any ideas/suggesitons/comments?

Thanks!

Courtney

janettelavon
Posts: 4
Joined: Nov 2012

I had hurthle cell cancer in 2011/2012. My cancer was not definitely diaganosed until after my first thyroid surgery. I was told that hurtlel cell cancer is only diaganosed after a thyroidectomy. The cancer had spread to my lymph nodes by the time it was found and I had to undergo a second surgery. Please get a second oppinion as soon as possible. If you feel that you could have hurthle cell cancer and the doctor wants to wait and see, don't take that as a final answer. Get another doctor that will listen to you. I'm sorry I've not been on this site for a few months or I would have posted an answer sooner. Please let me know how you are and what you ended up doing. 

 

Janette

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