Jan 13, 2014 - 9:12 am
After a couple of years of seeing my PCP for diabetes, weight loss, anemia, I finally got a CT scan in August of 2013 where a 10 cm tumor on my right kidney was found. Also got a negative bone scan before surgery. Radical nephrectomy on 9/13/13. Recovery has been pretty good. Went back to work after the govt shutdown ended and intended to retire at the end of December but I've decided to stay a little longer. I will be 65 this year and have 42 years of federal service and my wife is also a fed who is eligible to retire.
So I've had no treatment in the four months post op. Just a few visits to the urologist to get staples removed and an inital visit with the oncologist. My diagnosis was stage IV with a non-contiguous tumor on my adrenal gland which was also removed. Not sure what all this means. The urologist said "cautiously optimistic" but when he called with the pathology report his voice let me know it was pretty serious. The oncologist was not so rosy. Got my first PET scan a week ago and they called a few days later to make a follow up appointment for 1/24. I asked if the doc could call with results and she said she'd ask, but so far no call. So I've got an 18-day wait after the scan and I'm trying not to be negative.
I'm feeling so much better than I have for years and have gained 40 lbs (I was 250 for many years and down to 165 by surgery and now 200). But I went to the kidney cancer organization website and filled out the mortality calculator which says I have a median life expectancy of 3.5 years. So I don't know what to think.