Jan 09, 2014 - 2:17 pm
Hi, I'm new here. Have NHL, had my 5th round of chemo one week ago, today! just to let you know a little about myself so you will understand my question and need for advice. I am 39yrs old, diagnosed at age 38, after changing doctors. Had the same doc for 4yrs, kept getting sick, my old doc would treat me for a sinus infection, bronchitis, etc. Of course I'm no doctor so i let her continue to give me multiple antibiotics, steroid shots, steroid packs, rocephin shots,etc. As my condition worsened I woke up one morning and I absolutely had no energy what so ever so I told my husband I was going to call his doctor(who is a family friend) and try to get an appt with him asap. So, I called and he managed to get me in late that afternoon. We talked, I told him my symptoms and concerns, he did some blood test and scheduled me for a chest x-ray the next morning. Had the chest x-ray early the next morning, as I was getting in my car to leave the hospital, my new doc was calling me. He said "STOP, I just got the results from your x-ray and I need you to go back in and get a CT scan, I've got it all set up." I go back in have the CT and on my way home, doc calls again. Says "I need you in my office at 430 this afternoon, and bring your husband," he stresses "DO NOT COME ALONE!" Well, that conversation confirmed my fears before he even told me. Again, I'm no doctor but I know my body and I had been feeling for awhile that something serious was wrong with me. Well, of course 430 came and even though I had felt for sometime that I was very ill, nothing can prepare you for the horrible news that you have cancer! It was like a huge kick in the stomach. At first I was handeling it pretty well. I had to, I had to keep going and try to put the pieces back together. I have 2 wonderful, amazing children to live for, to breathe for, and a husband that absolutely adores me. He and my kids have definitely been my rock. My second rock that is(God first). So after all the other tests, PET scan, lung biopsy, bone marrow test, etc, then came the pathology report that confirmed that the lymphoma had been growing in my right lung for 18 to 24 months and I also have actual lung cancer as well. The tumors are not just confined to the lymph nodes in my lungs but tumors also exist in my lungs. The first couple of weeks after I found out I have cancer my mother and sister would try to help with the kids. My husband works 3 jobs and he can't do everything. Now, they never come around. When I'm really really sick and need them, I call them and they always make up excuses why they can't come help me with the kids when my husband is working. It's like they have the theory "well she needed us the first couple of weeks but it's ok now, she's got the hang of it now!" I don't know what to do anymore. I have run out of options with them. There are some days I need help from them but they brush it off like it's nothing. If anyone has any advice for me, please HELP! And thank you!!