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CEA = 0.7 YEAH!!

marbleotis's picture
marbleotis
Posts: 578
Joined: Mar 2012

I will be 2 years NED on 1/31/14.

CEA is 0.7, all scans clear.

2 year colonoscopy on 1/17.

I was 3b with signet cell.

My best to everyone.  Thanks for your continued encouragement

Chelsea71
Posts: 1170
Joined: Sep 2012

Way to go!  Congrats.

Chelsea

devotion10's picture
devotion10
Posts: 640
Joined: Jan 2010

And to be two years out ... well, this is just extraordinary. You are so fortunate to have caught your stage 3b colon signet ring cell cancer early before there were mets since this form of cancer tends to be aggressive. Your persistence to seek a colonoscopy and then follow after diagnosis with resection and chemotherapy was certainly wise -- a good lesson for as early intervention as possible.  You listened to your body and you pushed for anwers. Congratulations, I know you must be very happy and relieved.

Peace. ~ Cynthia

 

marbleotis's picture
marbleotis
Posts: 578
Joined: Mar 2012

Well I am 1 big lesson learned.  I was 49 at Dx.  Symptoms were pain left side front and back.  After 3 months of tests/ER, gallstone was Dx'ed.  Had that out but 3 weeks later the pain in back came back, really bad.  Finally had colonoscopy since we did everything else and there you go cancer stage 3b and wait for it....signet cell.  I was shocked.  I had what they call referred pain (other side).

Lessons to be learned:

  1. Do not ignore pain
  2. Referred pain exists and means something
  3. The "little" voice in my head that kept me up for weeks saying, "something is wrong" - was right
  4. Have a great relationship with your medical team
  5. Be very informed about what you have and your options
  6. Have a good day, have a bad day - sometimes that happens.  You will be ok
  7. Get into some kind of of a wellness program after chemo
  8. Neuropathy is bad buts gets better
  9. Be good to yourself
  10. Reach out and help another cancer patient
  11. God does listen and helps and guides

Thanks for letting me brain dump.

chp's picture
chp
Posts: 28
Joined: Dec 2012

Fantastic!!  As a fellow signet ring cell gal, I take special Inspiration from you!

Cathy

Phil64's picture
Phil64
Posts: 600
Joined: Apr 2012

Congratulations!!!  And thank you for sharing your success and reflections.

thxmiker's picture
thxmiker
Posts: 1283
Joined: Oct 2010

Thank You for sharing your great news!   We hear the doom n gloom to much.    WTG!!!!    Keep up slaying the dragons!   Keep being the inspiration.   Keep loving life and sharing you excitement for life.

 

 

Best Always,  mike

 

PS   You are my new HERO!

marbleotis's picture
marbleotis
Posts: 578
Joined: Mar 2012

So nice.  We really are each others Heros.  Holding each other up when we need and resting on someone when we need.

 

janderson1964
Posts: 2094
Joined: Oct 2011

That is great news.

LindaK.
Posts: 429
Joined: Apr 2013

Congratulations!!  I love reading good news like this

Linda

annalexandria's picture
annalexandria
Posts: 2484
Joined: Oct 2011

Making the 2 year mark is a big deal, so congratulations!  May you have many more years of clear scans and scopes!

AA

marbleotis's picture
marbleotis
Posts: 578
Joined: Mar 2012

My birthday is Jan 25 so it is close to the 2 year mark on Jan 31.

I have been wanting a new serger (specialized sewing machine) - I just might do it this year.  It is a little $$, so we will see.

 

danker's picture
danker
Posts: 858
Joined: Apr 2012

My oncologist said,"be good to yourself."  So I bought a 2014 Mustang.  It"s only money, you will get more of it ,so go for the serger !!!

Joy1216's picture
Joy1216
Posts: 292
Joined: Mar 2006

Great news!

Joy

Trubrit's picture
Trubrit
Posts: 2217
Joined: Jan 2013

Happy Dance man .

Such good news.

I loved your list.  I too ignored the little voice in my head. We must learn to trust our instincts. 

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