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The Latest News with direct post from Kathryn_in_MN per her wishes

herdizziness's picture
herdizziness
Posts: 3442
Joined: Apr 2010
These are words from Kathryn:
Hospice services have been nice. I am so glad to be able to be home. I had an incredible massage & healing energy today. She climbed right into my bed with me for part of it. This is the best I have felt in a month.

I am totally bedridden now. My pain is well controlled. Because the cancerous mass totally blocks at my duodenum I cannot pass anything past the stomach into the digestive tract. I am not hungry and do not eat. I am thirsty and do drink some fluids. Sometimes they stay in my stomach long enough for my body to absorb a little so I urinate about once per day. Hooray for Depends now that I cannot get up. Most that I drink is vomited up in 5 to 60 minutes. I vomit a lot. I am tired of vomiting.

My biliary bag stopped draining for a few days. I had a bandage and bag change and it started again in a couple days.

I am losing weight. Slowly starving my body but not hungry. This is very weird and not what I ever expected to happen. I am doing better than hospice staff expected. Duodenal cancer is quite rare. So medical staff is a bit confused about what to expect too.

I have had lots of friends and family visit. My parents have been here for several days again now that my mother feels better. I have been blessed to be home on hospice and able to say good byes. Not everyone gets that chance.

It is difficult to read and write and I had a few very tough days so I cannot post much. Nicole does read your posts to me. Thank you all for the love and prayers. It is ok to stop in to visit any time. Not hard to find me. Glad I cannot go anywhere today. -22 f..

Annabelle41415's picture
Annabelle41415
Posts: 4309
Joined: Feb 2009

Just checked her blog the other day on Caringbridge and didn't read this.  Her determination has always been so wonderful.  I'm sorry that she is feeling so ill.  It seems that at least Hospice can keep her comfortable, but sorry that she has to vomit so many times a day.  Kathryn you are in my prayers and wishing you peace.

Kim

jen2012
Posts: 1208
Joined: Aug 2012

:( so sad to read this.

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

I am so glad you are home surrounded with love.  The comforting hands of your masseuse sound wonderful. Having hospice to provide you pain control and support is so very good.  Your words reflect a clarity and acceptance of the changes in your condition.  You sound brave. I hope that the vomiting can be controlled so that you do not have to deal with that. 

I wish you continued peace in your heart. You are an extraordinary person. 

Love to you. ~ Cynthia

Aud's picture
Aud
Posts: 476
Joined: Oct 2009

Kathryn, you are an amazing woman.  I am so glad that you are home surrounded by family and friends and love.

Holding you in the Light for continued Peace and Comfort and for relief from the vomitting

 

wolfen's picture
wolfen
Posts: 1194
Joined: Apr 2009

Your strength & presence of mind are a continuation of the character you have always shown us. Glad you are able to be in your own home & are being kept comfortable.

Sending warm thoughts & peace to you.

Wolfen

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

what a true fighter you are.just keep hanging in there and do the best you can do and soon my friend you will be out of pain and in the land of glory.hope to meet you one day....Godbless...johnnybegood

rls67
Posts: 127
Joined: Nov 2012

Sending thoughts and prayers to you and your family. May your days and nights be pain free. You are a true warrior. May God be with you.

Phil64's picture
Phil64
Posts: 480
Joined: Apr 2012

Wising you PEACE, STRENGTH, LOVE, and COMFORT during this trial. You are a brave woman. Thank you for sharing with us.

Sincerely,

Phil

UncleBuddy
Posts: 664
Joined: Aug 2013

I don't know what to say. My heart breaks for you. I hope you get a break from all the vomiting. I'm glad that friends and family are able to give you comfort. Know we are all thinking of you and wish you comfort.

Lin

Semira's picture
Semira
Posts: 284
Joined: Mar 2012

you are such an amazing Lady! Sending warm hugs from Germany

Petra

annalexandria's picture
annalexandria
Posts: 2270
Joined: Oct 2011

and that hospice is helping you to be more comfortable.  Just as you have always helped others who face this tremendous challenge, you continue, even on the last leg of the journey, to light the way for the rest of us.

Thank you for all that you have done for your fellow colon cancer folk, and may the rest of the path you walk be a peaceful one, and full of love.

AA

Momof2plusteentwins's picture
Momof2plusteentwins
Posts: 460
Joined: May 2012

Kathryn - thank you for posting your journey through this site and caring bridge. I have followed you and feel like I know you personally. I hope you can remain comfortable with hospice. I will be thinking of you and your family.
Sandy

Chelsea71
Posts: 1170
Joined: Sep 2012

You're a hero.  You've brought strength, hope and knowledge to so many people.  May the remainder of your time be pain free and  filled with joy, comfort and time with family.

 

Chelsea

Coloncancerblows's picture
Coloncancerblows
Posts: 296
Joined: Feb 2013

Such sad news to read.  May God comfort you during this difficult time.

devotion10's picture
devotion10
Posts: 642
Joined: Jan 2010

accepting the Elika Hemphill Memorial Award for being an inspiration, supporter, and a colorectal cancer advocate.

https://www.youtube.com/watch?v=M9sDgYQSX-w#t=23

What an incredible person.

Peace. ~ Cynthia

Cathleen Mary
Posts: 600
Joined: May 2011

Kathryn, You continue to be amazing.  What a gift you are to so many of us at CSN. Be gentle with yourself and may your days be filled with blessing and peace.

CM

Trubrit's picture
Trubrit
Posts: 1519
Joined: Jan 2013

You are in our thoughts and prayers. 

May you be surrounded by the love everyone has for you. 

You're strength throughout has been an inspiration and continues. 

Blessings!

thingy45's picture
thingy45
Posts: 583
Joined: Apr 2011

dear Kathryn, I can only send you just love, like you have given to us.

i wish for you that you are surrounded by love and peace. And it is a blessing that you have a chance to say your goodbyes. i am in awe of your strength and thsnk you for sharing with us the wonderfull person you are.

love and light I send you,

Marjan 

karguy's picture
karguy
Posts: 1024
Joined: Apr 2009

I am sorry to hear the sad news.You are a true hero to many,and a strong person.I will keep praying for you.At least you have little pain,and have your family with you.

thxmiker's picture
thxmiker
Posts: 1232
Joined: Oct 2010

We are sending our thoughts and love from the AZ!   We wish you happiness and comfort in this diffcult time.

 

 

Best Always,  mike

 

 

 

PhillieG's picture
PhillieG
Posts: 4673
Joined: May 2005

While I'm saddened to read about your cancer I'm glad to hear that you are with your friends and family and are staying as comfortable as you can.

Peace...

phil

lilacbrroller's picture
lilacbrroller
Posts: 306
Joined: Jun 2012

You are so brave!  thank you for your advocacy work.  It will make a difference!

bet

Karin

janderson1964's picture
janderson1964
Posts: 1682
Joined: Oct 2011

I am glad to hear that hospice is making you as comfortable as possible and you are surrounded by family. Thank you for using your precious time and energy to post about your experience.

BusterBrown's picture
BusterBrown
Posts: 221
Joined: Mar 2005

 

Kathryn, you bring new meaning to the words dignity and grace. Thanks for sharing this most difficult news. I too am happy you are at home with your family and friends.

Peace Kathryn!

 

Buster....

marbleotis's picture
marbleotis
Posts: 498
Joined: Mar 2012

Simply put - you inspire!!!!!!!!

hippiechicks's picture
hippiechicks
Posts: 340
Joined: Sep 2012

Sending peace and comfort to you with continued thoughts and prayers.  I am so pleased to hear hopice is comforting you at this.  They do wonderful work and are so thoughtful. 

I hope for you to enjoy your family and feel the warmth of love. 

Sundanceh's picture
Sundanceh
Posts: 4306
Joined: Jun 2009

Made me and wife cry as I read this to her.....so very difficult to imagine all of that......you're so brave, Kat...so brave with dignity on full display for all of us to see:)

I'm sad you are suffering so much.  Thank you for posting to us.  You really got Kim today. 

Maxiecat's picture
Maxiecat
Posts: 524
Joined: Jul 2012

Kathryn..... You are in all of our hearts and our minds... You have shared the most intimate details of what you are going through with grace and dignity.  I hope that the days ahead of you bring you some peace and comfort from pain and the time to spend with loved ones to say what you want to say to them.  You are in my thoughts and prayers.

alex

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