Jan 06, 2014 - 8:42 pm
These are words from Kathryn:
Hospice services have been nice. I am so glad to be able to be home. I had an incredible massage & healing energy today. She climbed right into my bed with me for part of it. This is the best I have felt in a month.
I am totally bedridden now. My pain is well controlled. Because the cancerous mass totally blocks at my duodenum I cannot pass anything past the stomach into the digestive tract. I am not hungry and do not eat. I am thirsty and do drink some fluids. Sometimes they stay in my stomach long enough for my body to absorb a little so I urinate about once per day. Hooray for Depends now that I cannot get up. Most that I drink is vomited up in 5 to 60 minutes. I vomit a lot. I am tired of vomiting.
My biliary bag stopped draining for a few days. I had a bandage and bag change and it started again in a couple days.
I am losing weight. Slowly starving my body but not hungry. This is very weird and not what I ever expected to happen. I am doing better than hospice staff expected. Duodenal cancer is quite rare. So medical staff is a bit confused about what to expect too.
I have had lots of friends and family visit. My parents have been here for several days again now that my mother feels better. I have been blessed to be home on hospice and able to say good byes. Not everyone gets that chance.
It is difficult to read and write and I had a few very tough days so I cannot post much. Nicole does read your posts to me. Thank you all for the love and prayers. It is ok to stop in to visit any time. Not hard to find me. Glad I cannot go anywhere today. -22 f..