Jan 06, 2014 - 8:27 pm
Well, I got an appt made for Mayo in February with a pulmonologist. My clinic and a Mayo clinic rep. were on the phone with me at the same time.
When the Mayo appt. staff told me she would be mailing me out a packet of information, I asked if they sent me information on the doctor I will be seeing. I told her our clinic has cards with their name, schooling information, specialities (and specialities within that specialty), and a little bit about them. Mayo told me that they don't have those, but I could look up my doctor on the Mayo website.
Well, I tried doing that today and my doctor does not come up on any search on the Mayo Website. I called and spoke to the appt. staffer and it was obvious she didn't care, but I made her care and she passed me onto the Pulmonary Department.
The rep from the Pulmonary Department didn't care either. I explained that she needed to pass this information onto to whoever enters staff into the physician directory becuase it is very important to some patients, like me, to know a little bit about the doctor I will be seeing.
She told me to google her name. I told her I already did and so many different websites come up, some call her an internist, some a critical care dr, some a pulmonologist, and almost all were those websites that just have you rate the doctor and didn't give me an information.
It was obvious that things didn't go how my pulmonologist said they would. First they were supposed to get my info and WHY I needed to be seen there. THEN the appt. would be set up.
I want to make sure I am seeing someone who has experience dealing with severe cases of Hypersensitivity Pneumonitis. I don't want someone who doesn't know much more than my local doc.
I am not spending all this money on a hotel, gas (Mayo is quite a few hours from here), medical bills for someone who is NOT an expert on HSP.
I decided I don't trust the gals on the phone. I am writing my doctor a letter explaining that she is not listed on the Mayo Clinic physician directory and that I want to make sure that she is knowledgeable on severe cases of HSP. If she isn't, I will repsectfully request that she refer me to a Mayo Clinic doctor that is.
Man, I get so sick and tired of this crap. I really think dealing with the mistakes, misinformation of medical clinics is worse than the illness itself. At least in my case anyway, cuz I have had doctors and surgeons make some doosey of mistakes (and in fact, I caught one surgeon last year in an outright lie while waiting for my appendectomy...he told staff that I didn't have LE, that I didn't have any nodes removed and that "I" said I had LE..that he looked in my records and there was nothing. This of course was Bulls^^&t because when I called his boss to complain about his behaviork, she saw it right away...the dx, the OT notes, the surgical notes.the whole shebang...)
Thanks for letting me vent.