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Surgery went well home now

Jan4you's picture
Jan4you
Posts: 200
Joined: Oct 2013

sorry for the delay in posting. No computer. Surgery was 30th 3 hours all lap incisions YEAH!!

Had some fun hallucinations  and confusion with all pain meds. Having no pain. But can never take my anti inflammatory for my multiple sclerosis again. Seems one kidney cannot handle such a drug. This could affect my future walking & sitting. Won't even think about t hat now.

Thanks for support!

Jan

Djinnie's picture
Djinnie
Posts: 812
Joined: Apr 2013

Hi Jan, Good to see you back, I am so glad everything went well with the lap surgery! I am sorry to hear about the issue with the MS meds though! but as you say cross that bridge when you come to it. You have enough to concentrate on for the time being! Take good care of yourself:)

Djinnie x

GSRon's picture
GSRon
Posts: 1306
Joined: Jan 2013

Glad it is over. Now to move forward. Rest up and let it all heal. Ron

Jojo61's picture
Jojo61
Posts: 407
Joined: Oct 2013

So happy to hear that it is done and went well. Focus on feeling better again - you are well on your way!

Take care!

Jojo

foxhd's picture
foxhd
Posts: 1951
Joined: Oct 2011

Jan, one thing that MS doesn't need is a secondary diagnosis.It can capitalize on your being weakened and compromised. With the tumor gone, it can't hide and now the immune system has a greater chance of working to help you. I'll bet after recovery from nephrectomy, you will be stronger than ever.

icemantoo's picture
icemantoo
Posts: 1592
Joined: Jan 2010

Jan,

 

The worst is over . Relax and enjoy the NFL playoffs. Easy on drinks for awhile.

 

Icemantoo

Jan4you's picture
Jan4you
Posts: 200
Joined: Oct 2013

I can always count on your new perspective Fox.  It's the Gitelmans that prevents me from taking the anti inflammatory med. It's that rare kidney disorder that cannot  allow that med with only one kidney.

TillieSOK's picture
TillieSOK
Posts: 245
Joined: Jul 2013

Glad everything went well and now all you have to do is to heal and gain your strength back. You've handled the hard part.  Welcome to the club no one wants to join....

tonib's picture
tonib
Posts: 33
Joined: Nov 2013

Glad everything went well!

Darron's picture
Darron
Posts: 223
Joined: Jun 2013

You will be amazed how much you improve every day!

Glad it went well.

Eims's picture
Eims
Posts: 420
Joined: Feb 2013

Sleep is now your best friend......take your time recovering and listen to your body x

Minnesota Girl's picture
Minnesota Girl
Posts: 115
Joined: Jul 2011

So glad you wound up with the lap surgery. I know you were worried about it. Take all the time and rest you need to recover. Even with the lap, this is still MAJOR surgery. As my husband liked to remind me, the doc reached through the front of my body to pull out something from the back. If no one has mentioned it, keep a pillow nearby to hold against your tummy if you cough or laugh - it helps!

Jan4you's picture
Jan4you
Posts: 200
Joined: Oct 2013

thanks for the good thoughts and recommendations. Never thought of this as reaching from the front to pull out something from the back. i no longer need a pillow to hold my side but found ice was the best medicine! I remember asking for ice and the RN in the hospital gave me   a look like I was crazy. 

 

I just cannot seem to SLEEP, not tired enough. only sleep an hour or two then wake up. I am up all the time.

Jan

Frank302's picture
Frank302
Posts: 71
Joined: Feb 2013

I'm glad you are home and getting along well .

Is it possible that your problem of not sleeping could be related to the fact that you can no longer take the anti inflamitory meds you were taking before your sugery ? I used to take meds for arthritis and had to stop them after losing a kidney and I couldn't sleep well either . Over time I've begun sleeping better but still not as well as I used to .

Jan4you's picture
Jan4you
Posts: 200
Joined: Oct 2013

Hi Frank,

I had to be off anti inflammatory med before and this never  happened. I had lap surgery 2 years ago and this never happened then either. Who knows why I cannot sleep. Going to try Meletonin tonight.

Seems I had quite the side effects after last week's pain med halllucinations, being hyperverbal do had to go off all of them.

Hope you are doing well, thanks

Jan

todd121
Posts: 611
Joined: Dec 2012

I had a lot of sleeping problems once I was diagnosed and for several months after my nehprectomy. I think it was because of anxiety. My doctor gave me Xanax and another time Ativan. They are addictive, so he said one at bedtime and that's it. I found the Ativan the most helpful. I still use it but only once in awhile, and only 1 at bedtime. I was careful not to get in a habit of taking it every night because they can be habit forming. I'd try to sleep for awhile, and if I really couldn't, then I'd take it. If I used it a couple nights in a row, I'd make myself not use it.

Recently (after over a year post nephrectomy), I'm sleeping through the night and falling asleep easily more often than back a few months ago.

Todd

Jojo61's picture
Jojo61
Posts: 407
Joined: Oct 2013

I had trouble sleeping as well. I ended up taking a gravol for a couple nights and since then I have been pretty good.

Good luck! It's no fun, and you need to sleep to get better!

Hugs.

Jojo

twinthings's picture
twinthings
Posts: 403
Joined: Jun 2013

Hi Jan, I was so happy to 'hear' everything went well and it sounds as though you are recovering as expected. All good news!! 

I agree with what Fox said about you having a stronger immune system now that the cancer is gone and perhaprs your body will do a better job regulating your MS.  I only say that because I have an autoimmune disease, pustular psoriasis, aka palm and sole disease.  Granted, it's not MS but it is no picnic!  I've suffered great pain with it.  There are times I can barely use my hands.  Sometimes walking is pure torture.  It flares up in varying degrees of severity, sometimes only on my hands, sometimes only on my feet and more often than not, both.  Dermatologist say's it's stress induced, whether it be physical or emotional.  Cancer is apparently a HUGE stressor on the immune system because I have had very few flare-ups since my neph and the ones I have had, were mild. 

Until I read what Fox said to you, I never really thought about it.  I just knew that for some reason, the past several months, my palms and soles have been better than they've ever been, since diagnosis, almost 11 years ago.  Apparently the stress on my system from the cancer was worse on my psoriasis than the coaster of emotions I've been riding. 

I only tell you this to offer hope, not to imply in any way that my psoriasis can be compared to MS.  It can't.  I get that.  I am sure your doctor's will find other ways to manage your treatment, but hopefully, ridding your body of cancer will be a big help.

I learned something from you that I did not know regarding anti-inflamatories with 1 kidney.  I take Mobic, for my neck, as needed.  I've never been told that I shouldn't take it but you can bet I'm going to google it. 

Hope you slept better last night! 

 

Sindy

Jan4you's picture
Jan4you
Posts: 200
Joined: Oct 2013

Hello and thanks for your very informative responses. Today I am feeling the lack of sleep!  Gladly, I still do not use any pain meds, they were messing me up.  Just feel like my body is "waking up" more since Gen Anes.

My generalized weakness is back so I am resting more. I have this rare kidney disorder called Gitelman's. Tubles i(?) in kidneys cause electrolytes to spill believing my body is in "fight or flight. Gitelman's is why I cannot take Anti inflammatory drugs.

All my disorders, incl MS have been stable. Never thought how having cancer growing, albeit slowly, could affect you. Never consider that affect. My hope is that my Gitleman's will be half as bad now LOL maybe?

Continued wellness, Jan

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