Jan 04, 2014 - 7:13 pm
Hi, my name is Ashley and I am from Portland Oregon. I never thought I would have the courage to talk to others about what I am going through. It has been almost 2 years since I had a seizure then surgery where they took out about 98% (or so) of my Oligodendroglioma grade 2 tumor. It was in my left temporal lobe and the surgery went great. They said I have had the tumor for about 10 years. I can't believe I never knew it was growing. I get worse headaches now then I ever did before the surgery. Ever since the surgery I have horrible short term memory, trouble functioning with reading and writing, mood problems and a few seizures. It could be much worse so I am just happy to be alive and living life! One thing that kills me is knowing if/when it is going to come back and the life expectancy I have (unfortunately). I was 22 when it all happened. My parents were there through it all and they keep telling me I am going to live a long life and that the doctors said theres a chance it wont come back. I know they don't want to scare me, but they have to realize I just want to know. I thought I would ask others who are going through this what they know.
Along with that is there any good recommendations anyone has that will help? Things to eat? Things to do? I want to live my life to the fullest and do whatever I can to stay healthy and beat this thing! Thank you so much