Jan 01, 2014 - 5:30 pm
Few of us have the adenoid cystic carcinoma dx. But I was given hope beyond belief from another fighting bone mets. (same dx) I need to ask for a scintigraphy (kind of like a PET scan) it will show any changes in the bones. I was told with our dx, I should be able to avoid anymore biopsies to confirm mets. (what a relief !) I'm a bit ahead on the targeted meds., as I had my tumor profile done last yr. So chemo may be an option. They are also using a med. normally used for osteoprosis...(for thinning bone mass) that is keeping mets in check and relieves the pain for quite awhile. I know this might be a shot in the dark, but at least it's hope !
I think this information has lifted the blanket of darkness that has fallen over me because of the intense pain I'm experiencing. 2014 sure looks alot more full of hope and promise to me ! I'll keep posting as I journey through the maze. Hugs sent ! Katie