Dec 29, 2013 - 7:40 pm
My beautiful mom passed away last night from PPC. I am stunned with grief as well as fear. I feel like there is nothing we can do to catch this disease early. Her sister and aunt also had PPC. I am frustrated there is no stage l or ll because there isn't any test or warning or possibly visible cancer at those stages?
I only found out the details of my mom relatives' diagnosis two weeks ago and only because I started asking questions! I had no idea we had such a strong genetic history as no one in her family knew of BRCA. They had no idea cancer could run in families. I wish I had asked these questions when mom first got diagnosed.
I have had gas and bloating for over a year now and thought it was a digestive problem. I have an intravaginal ultrasound next week. I have four children and of course after just losing my mom I am so sad and scared.
My question is this: does knowing my risk is very high change my fate? At best the scans and blood tests are hit and miss. How can my sister, daughter, and I monitor ourselves to catch this before stage lll?