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Alcohol

Jeff2159's picture
Jeff2159
Posts: 98
Joined: Feb 2012

Last Christmas season I dont remember much due to chemo, radiation and pain meds. This year my eyes are wide open and have become the designated driver. I tried a sip of wine last month and I might as well drank battery acid. Damn did that burn and the taste lingered for most of the night even after washing out with water. Tried a sip of coke and had the same reaction. Anyone else have the same results? Not a big drinker but I do miss a nice glass of red wine

 

Jeff

longtermsurvivor's picture
longtermsurvivor
Posts: 1822
Joined: Mar 2010

I couldn't drink alcohol even if I wanted to.  Even non-alcoholic mouthwash burns my mouth.  And no carbonated drinks either.  I have finally been able to add a little pepper to my food, but even that was a no no for quite awhile.  I think you will find your in fair company in this.  Here's to New Years!

phrannie51's picture
phrannie51
Posts: 3787
Joined: Mar 2012

I don't drink alcohol....not because of cancer, but because I quit nearly 30 years ago......but I did decide to try lime Pepsi this weekend, and well.....it was a fail.  The carbination is painful, and the taste was awful....I'm always experimenting, but I don't foresee me trying pop again for a long while.

p

Mikemetz's picture
Mikemetz
Posts: 348
Joined: Nov 2011

Even five years out, I can't drink wines that are high in tannins--like cabernet sauvigons (sp--that's how much I've forgotten).  You might try merlots or pino noirs to see if you can tolerate them.  If I have some spicey foods (even some not-so spicey foods) and then follow them with a high tannin wine, it really burns--so that combination is out for me.

For me I think it is the acidity in foods or drink, not so much the 'heat', so my wife is my canary--she tastes things first and then let's me know if she thinks I can tolerate it.

Bottom line--get yourself a canary!

Mike

 

hwt's picture
hwt
Posts: 1970
Joined: Jun 2012

I had a couple of Pina Coladas and did ok with them. They were over ice, not blended or frozen. I can drink Sprite, best for me when warm but getting so I can tolerate cold but no ice. . And, warm root beer works for me too. An occasional sip of my husband's beer but mostly because when my mouth gets dry, the cold bottle feels good on my lips.  Have you tried champagne or a mimosa? Club soda with bitters. Just keep trying different things, something will work.

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

More than likely if and when your taste completely returns, or nearly, you'll be able to enjoy a drink or two.

Some like myself have had all taste return (for me that took two+ years), for others, it's somewhere in between.

John

ratface's picture
ratface
Posts: 1251
Joined: Aug 2009

At post 4 years and some I can tolerate Merlots. It's about dryness in the mouth, dry wines are just impossible as we have so little moisture in the mouth even with saliva returning it remains diminished. Bailys with it's creamy milk consistency is also quite tolerable. Do you enjoy any Liquers? I have more trouble as mentioned with tomatoe sauces or acidic fruits like oranges.  Hot sauces are upsetting to say the least and I now only use a mild one. One of the seldom cited causes of  h&N cancer can in fact be hot sauces. You will at some point most likely be able to enjoy a glass of wine or mild liquer. Most beers should be tolerable.

Jeff2159's picture
Jeff2159
Posts: 98
Joined: Feb 2012

I've been meaning to try baileys as I have had alot of milkshakes lately. Was thinking of having a kalua milk shake, use to have those in school 35 years ago.  I have all my taste buds and they work too good as they magnify all flavors. Very sensitive to spicey/hot foods as well as hot and cold liquids. Thinking back I had a rootbeer float from 31 flavors, my memory had a craving and it was a complete disappointment as the carbonation made it taste like tonic water. Orange juice is a no go-- acidic so a mai tai is out of the question. Oh well at least I can dream

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

Something else to try..., maybe over some ice...

JG

Jeff2159's picture
Jeff2159
Posts: 98
Joined: Feb 2012

no luck on the baileys. Even that had a burning sensation for the little that I tried. I blended up some lasagana and that too burned. Well its still trial and error. Ramos fizz sounds nice thia time of year but I know what the outcome would be

 

Jeff

Roar's picture
Roar
Posts: 247
Joined: Mar 2013

I have been known to drink before cancer- after treatment rads and chemo 1 year out I still can't enjoy drinking. Being a diabetic it seems all things happen for a reason however I will have a glass of wine here and there or a vodca and club soda once Ina while to test things out - everything still burns. I still wake up The morning with a dry mouth like the desert. 

Roar's picture
Roar
Posts: 247
Joined: Mar 2013

I have noticed that when I do consume alcohol I seem to experience thrush like symptoms for a few days afterwards. I have been taking probiotics for a three months now- I am not sure if it's helping or not but it is the holiday season - so if it means I can only enjoy a drink or two that's all it will be. The good news I'd that I don't taste the difference between the good vodkas or the cheap ones

fishmanpa's picture
fishmanpa
Posts: 1116
Joined: Jan 2013

I have been known to partake and then some in my day. Since OC that's changed drastically. Wine is almost totally out with the exception of cooking with it. Hard liquor is out just because but I did have a Bloody Mary that was quite good albeit weak. I've been able to enjoy a couple of beers occasionally, however, the heavier beers I used to enjoy are out. I'm finding the lighter ales are quite good and cause no issues. The carbonation is a wake up for the first few sips but fine otherwise. Trial and error I guess.

Positive thoughts

"T"

Time Bandit's picture
Time Bandit
Posts: 23
Joined: Dec 2013

Yes Jeff, I'm in the same boat. wine is a no for me. I can drink some beer but it can't be ice cold. For me, ice tea is the drink of choice, sweetened, no lemon. I find this the best for soothing my tongue after anything distasteful. 

donfoo's picture
donfoo
Posts: 1277
Joined: Dec 2012

Now six months post and taste for alcohol is actually better than before. Wines are fine. Beer. I used to be all into the highly hopped and barley types: IPA, stouts, etc. Light pils were like water. Now I find a lowly Bud is really quite tasty and refershing!

TracyLynn72's picture
TracyLynn72
Posts: 732
Joined: May 2013

drink alcohol, but I can't drink ANY type of soda.  It burns me up.  I stick to just water and watered down coffee. 

Mikemetz's picture
Mikemetz
Posts: 348
Joined: Nov 2011

Your comment about coffee got my attention.  I used to be a big coffee drinker.  I didn't drink a lot every day, but really liked it--the stronger the better. Since completing treatments, all coffee tastes like bad instant coffee to me, so I have stopped drinking it.  I do order it every once in a while so I can wrap my hands around the cup to get warm and enjoy the aroma!

Mike

 

fishmanpa's picture
fishmanpa
Posts: 1116
Joined: Jan 2013

Same with me. I couldn't function wthout my coffee in the morning. It was about 5 months out that it started to taste good again. I'm back to my 20oz mug in the mornings :) Helps get things "moving" if you know what I mean!

Positive thoughts, erry Christmas and chocolate (yes, I can finally eat it and it's wonderful!)

"T"

CajunEagle's picture
CajunEagle
Posts: 362
Joined: Oct 2009

 After almost 5 years post diagnosis of stage 4 left tonsil, I become very used to iced coffee only, with just a dab of Half-and-Half and a spoonful of Orange blossom Honey.  My night time sippage of choice....(which seems to burn just a tad) is a Bloody Mary made of two jiggers of plain Tomato juice, a jigger of Kettle One, squeeze of 1/8 fresh lime, small squirt of Lemon juice, 1/4 teaspoon of Wochestershire sauce....all over a 12 oz cup of ice.  Good stuff (to me anyway).

Larry

Skiffin16's picture
Skiffin16
Posts: 8096
Joined: Sep 2009

I'm kinda partial to Beef Eaters Gin and Clamato Juice, and maybe a dash of Celery Salt, along with the lemon/lime and Wochestershire you mention...

~JG

Mikemetz's picture
Mikemetz
Posts: 348
Joined: Nov 2011

I like a Bloody mary every now and then, but leave out the lime and/or lemon jiuce to avoid the burn.  Try that.

 

mike

 

TracyLynn72's picture
TracyLynn72
Posts: 732
Joined: May 2013

I've found that I ONLY like it with vanilla caramel creamer.  Anything else is bitter and gross :)

CathyHorner's picture
CathyHorner
Posts: 29
Joined: Nov 2013

I was a huge coffee drinker but now a luke warm cup just makes me choke up a little and doesn't taste right to me either! UNLESS it's a thick creamy latte. The only way I can enjoy coffee everyday is with lots of ice. I know..it smells so good then disappoints!!

dales2loud's picture
dales2loud
Posts: 45
Joined: Sep 2011

I've been out of treatments about 2 1/2 years, in the beginning coffee and all drinks tasted bad but I would drink a cup of coffee with my wife every morning out of memory. Fast foward to today and coffee tastes great, soda still not so great but I'm content not going back to a diet pepsi addiction, but it is starting to taste a Lot better. Give it time. Happy New Year Everyone!!!

KB56's picture
KB56
Posts: 255
Joined: Apr 2013

I used to love a glass of CaBernet but now it's a bit painful to enjoy.   I'm hoping when I can finely get rid of the Thrush once and for all I can still enjoy a nice glass of wine.   I may have to back off the Cabs to something lighter/less tannins but I'm going to keep trying the Cabs because I like them so much.    My wife stuck through me through thick and thin as I went through the treatments but she said she was going to divorce me if I didn't start drinking wine again.   I think she was serious:).  

 

I didn't drink a cup of coffee from April until probably Sep but once I got my sweet taste buds back I like it just the way I used to With half and half and sugar.  

i am a great DD now for sure!

donfoo's picture
donfoo
Posts: 1277
Joined: Dec 2012

I've been drinking little wine but wife got a nice bottle for Xmas. Comment was to lay down for 6 - 8 years - it lasted maybe 6 hours. lol Bouquet and taste were wonderful but the tannins did make for some huge pucker action. If you like cabs I'm sure you can find them with less tannin. Whatever you don't like, send them on over. Happy New Year!

 

PJ47's picture
PJ47
Posts: 334
Joined: Sep 2013

I used to enjoy a glass or 2 of white wine like  a Savingion Blanc, Gewutztraminer, or Vioginer on the weekend.  I would love to have some Prosecco for New Years, but am sure it would gag me and send me into coughing fits so it will be a long time before I try any alcohol again  and I am listening to my body on this one!

Cheers,

 

PJ

Roar's picture
Roar
Posts: 247
Joined: Mar 2013

Like they say everyone is different - coffee does not taste the same as it use to- but I drink a few cups every morning out of habit. Chocolate- still tastes salty to me as do all sweets- water still tastes metalic - any alcohol still burns a bit but that don't stop me. Yet I work with some one who is 4 weeks out of treatment from tonsil cancer with almost the same treatment as me although I don't know the particulars as I had an unknown primary( I am sure a lot more things got radiated than my friend did) and he has all his taste, no fatigue and no side effects. Soda burns as well- I drink lots of water even though it tastes like metal. 13 months still have this thick stuff I am constantly swallowing - but I am able to eat- so I am thankful- 

 

hawk711's picture
hawk711
Posts: 525
Joined: Jan 2010

Coffee, strong coffee with milk, but it must be very hot for me to enjoy.

as for alcohol, beer is good.  All else tastes like turpentine.  I miss a good Kettle One martini.  It just isn't worth the money.  

After my HBO dives, my saliva got better and now I enjoy a small glass of chardenney or beer now.  Saliva helps everything taste a little better.

all the best to all you survivors in 2014

 

Steve

 

Irishgypsie's picture
Irishgypsie
Posts: 331
Joined: May 2010

I can drink pretty much anything I want red wines and beer, never was much a mixed drink person. I do tend to stay away from spicier wines, but I was like that before.  My theory is that it's like a newborn babies mouth; You have to expose your new throat to different tatses all over again.  Happy New Year!  Life is short! 

 

Cheers!

 

Charles

CajunEagle's picture
CajunEagle
Posts: 362
Joined: Oct 2009

 

I told you you'd make it.  Laughing  It was soooooo easy, right ????

Good to hear from you, Charles.

 

Larry

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