Dec 20, 2013 - 9:51 pm
I went in today for treatment and to see my onc.
3 years ago I was dg with tripple neg breast cancer. I had chemo 2 rounds the tumor grew. They changed the chemo. The tumor shrunk but I went into kidney failure. My onc got scared so he had my surgen take out the tumor. That outcome was great. The tumor was removed along with 22 nodes 8 cancer. I then begun radiation 30 days. Then started chemo for the next 9 months. Scans look good NED. After no chemo for about 10 months I had a very bad cough went to the doctor and was dg with mets to the lung. Very small spot on my left lung. In 2012 I began chemo again. two weeks on one week off. Did very for the next 1 1/2 years. No problems with the chemo the only side effect was loss of hair. After the 1 1/2 year I began to have very bad side effects, finger nails turned black and hurt very bad, diarehera, constipation, extreme fatigue and excessive eye tearing. They reduced the chemo for a couple of months, felt better, then the spot on my lung started growing. They put the chemo back up and the side effects returned this time worst, I could not walk, but during this time the spot had gotten smaller and was stable for a while. Soooo they decided to take me off of one of the chemo. I was off for abourt 3 months and now a very small spot is on my liver.
My onc told me today that I had to go back on the other chemo and as soon as I got home the side effects started diarehea and constipation. My onc told me that he would be lying to me if he said the chemo will make the spots go away. The chemo is just to keep the cancer from spreading...Ugh!!!
I accepted that I would have to be on chemo for the rest of my life (whatever that is), but now I'm worried about how long my body can hold out. I went to cancer treatment centers of ameriica and they told me my current onc is doing exactly what they would do. They even said they only seen some one last 6 months on the chemo I'm on before they have to switch chemo's. They keep telling me the good news is that the cancers responds very well to the chemo. The bad news is my body is not holding up.
Are there others out here that are living with spots through out there body? How long have you been receivinlg the chemo? I'm three years into this, are the others that are going through what I am and have gone longer than 3 years?
I believe in my higher power "God". I believe his word that I shall live and not die, but I also know that we all die sometime. I'm 50 years old and am very scared right now...