Dec 18, 2013 - 12:02 pm
Cancer was first seen in my mouth in April. 5 months later after it rapidly grew it was removed by ENT doctor/surgeon. Pathology said it was cancer. Frozen slice biopsy of tissue around tumor removal showed no cancer. I was refered to Cancer Center of Brevard they told me cat scan showed some enlargement in saliva gland below tongue where tumor was removed. ENT informed me that these glands may no longer work and they will swell, then apparently die...I guess for lack of a better word? Cat scan showed this slight enlargement but no real pain anymore. Assesment was stage 4 cancer? Full body Pet Scan was done. I understood that bright yellow or at least a stroung or bright red showed cancer. I looked online at galleries of Pet Scan pictures and saw that most were a defined bright colored area. Mine showed a non-defined very light red area around the areas near tumor removal. These areas are not in anyway a defined mass and in this pet scan there were other areas undefined all over my body that I pointed out to doctor. He said they weren't cancer. But he wants me to hace 39 radiation treatments and several chemo treatments which will wreak havoc on my teeth, jaw, throat, hair and tastebuds permenently! Any thoughts or expeinces on the vagueness of defined mass and coloration and this need for radiation and chemo v someother type of treatment? Would be appreciated greatly! My ent kept telling me it looked fine!