Dec 08, 2013 - 1:59 pm
Hi everyone! I got the results back from my scan on Friday. The same lymph nodes are still enlarged but stable. He said I have one somewhere in my right side that I think is new, but I'm not sure of the exact location. (My online chart's not allowing me in today so I don't know any specifics from the report) So we're still watching & waiting, but that's not getting to me like it did when this all started in February. My next scan is scheduled towards the end of May unless new symptoms pop up, but he said if it's lymphoma that I'm dealing with it's the indolent type & not to worry. He did order IV iron infusion because my iron is still low & it's going on 10 months since all of this started. He offered two 4 hour infusions or 6 one hour infusions. I took the one hour but realized that meant 6 IVs so I'm switching it to the two 4 hour ones when they open tomorrow. If anyone has any advice/tips on dealing with this let me know. I work the next day so I'm hoping it won't make me too sick.
My main question is this... Did any of you start out with indolent lymphoma that decided to suddenly go haywire? I want to know what to expect or look for so I don't worry about every little pain or symptom that seems new. I've had pressure in my chest & my lips have turned blue a few times but the doctor didn't seem concerned about that since those lymph nodes in there haven't grown. And with these nodes being enlarged for 10 months it seems to me that a virus is a less likley cause vs lymphoma at this point. Thoughts?
Hope this finds all of you well!